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  • Meet Beatrice Credi from ELPA
    2025/10/09

    Beatrice, the Head of the Brussels Office for European Liver Patients Association, speaks to us about the organisation and explores feel is the biggest opportunity and potential challenges for patient involvement. Listen to her perspective on how the digital transformation of healthcare could reshape the landscape and how to ensure involvement remains meaningful.

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    6 分
  • Jenny Bright ICHOM
    2025/09/28

    Dive into an enlightening discussion with Jenny Bright from ICHOM (International Consortium for Health Outcomes Measurement). She introduces the organisation's work in standardizing health outcomes and reveals what she sees as the biggest opportunity, or challenge, for patients in the years ahead. Jenny also delves into authentic engagement, pushing for better representation and ensuring a diverse array of patient voices shape the future of healthcare.

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    5 分
  • Keith Berelowitz from PRXEngage
    2025/09/23

    Tune in to listen to Keith talk about his organisation PRXEngage and their aim to support, signpost and guide patients into feeling more confident about taking part in Clinical Trials. Keith also shares his view on the biggest opportunities for patient involvement in the years ahead

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    3 分
  • Mandy Daly Irish Neonatal Health Alliance
    2025/09/15

    Mandy from the Irish Neonatal Health Alliance introduces herself and explores the broad scope of their vital work supporting families, advancing research, and advocating for better neonatal outcomes.

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    4 分
  • Donna Rubenstein - PAN
    2025/08/24

    Join Donna's talk about the role of PAN, the Patient Advisors Network. She shares her thoughts about the opportunities open to the growing network over the coming years.

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    4 分
  • Patient Engagement in Practice
    2025/08/20

    🎙️ Podcast intro

    In this episode, we are joined by Vera Pinto Gomes from Associação Crohn Colite Portugal.

    She shares her thoughts on what patient engagement really is and why it is so important – not just for patients, but also for the healthcare system and society as a whole.

    How can patients' voices become an active part of decision-making?

    Why is it crucial that patients are not only heard but also involved in the development of treatment, research and health strategies?

    Vera tells us much more about this in today's conversation.

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    28 分