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あらすじ・解説
In the twenty fourth episode of HC&U, we interview Liz Carter, communications manager of HCU Network America, caregiver advocate, and mother to Elliot who has classical homocystinuria.
We discuss metabolic newborn screening, patient advocacy, and Rare Disease Week.
We wrap up with Lindsey’s Low-Pro Bites. We discuss “healthy tomato basil soup” and rate it on our random fruit or veggie scale! We hope you enjoy!
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Elliot's Story
Newborn Screening Petition
Everylife Foundation for Rare Diseases
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What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know!
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