『HC&U』のカバーアート

HC&U

著者： Ben and Lindsey Massengale
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  • サマリー

  • This podcast is meant to be a resource for patients and caregivers dealing with the metabolic disorder, homocystinuria- also known as HCU.
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  • Episode 26 with Sam Stallings

    Episode 26 with Sam Stallings
    2024/04/25

    In the twenty sixth episode of HC&U, we interview Sam Stallings, HCU patient and advocate.

    We discuss Sam's experience living with multiple rare diseases and her advocacy for the HCU community.

    We wrap up with Lindsey’s Low-Pro Bitessss. We discuss homemade pop tarts and rate it on our random fruit or veggie scale! We hope you enjoy!

    Please share the podcast and give us a 5 star rating and review!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    Email the podcast!

    HCU Network America on Twitter

    Everylife Foundation for Rare Diseases

    Rare Disease Legislative Advocates (RDLA)

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
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    34 分
  • Episode 25 with Jamela Gutierrez

    Episode 25 with Jamela Gutierrez
    2024/03/28

    In the twenty fifth episode of HC&U, we interview Jamela Gutierrez, HCU patient and advocate.

    We discuss Jamela's journey with HCU and patient advocacy.

    We wrap up with Lindsey’s Low-Pro Bites. We discuss veggie pot pie and rate it on our random fruit or veggie scale! We hope you enjoy!

    Please share the podcast and give us a 5 star rating and review!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    Email the podcast!

    HCU Network America on Twitter

    Patients and Providers for MNEA

    https://flok.org

    Register for "Ask me anything with Flok" on Monday, 4/22 @ 7 PM ET here!

    Newborn Screening Petition

    Everylife Foundation for Rare Diseases

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
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    30 分
  • Episode 24 with Liz Carter

    Episode 24 with Liz Carter
    2024/02/29

    In the twenty fourth episode of HC&U, we interview Liz Carter, communications manager of HCU Network America, caregiver advocate, and mother to Elliot who has classical homocystinuria.

    We discuss metabolic newborn screening, patient advocacy, and Rare Disease Week.

    We wrap up with Lindsey’s Low-Pro Bites. We discuss “healthy tomato basil soup” and rate it on our random fruit or veggie scale! We hope you enjoy!

    Please share the podcast and give us a 5 star rating and review!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    Email the podcast!

    HCU Network America on Twitter

    Elliot's Story

    Newborn Screening Petition

    Everylife Foundation for Rare Diseases

    Rare Disease Legislative Advocates (RDLA)

    Expecting Health

    VMP Genetics- Sign up to become a patient/teacher

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u
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    37 分

あらすじ・解説

This podcast is meant to be a resource for patients and caregivers dealing with the metabolic disorder, homocystinuria- also known as HCU.
クッキング アート 衛生・健康的な生活
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