『HC&U』のカバーアート

HC&U

HC&U

著者： Ben and Lindsey Massengale
無料で聴く

This podcast is meant to be a resource for patients and caregivers dealing with the metabolic disorder, homocystinuria- also known as HCU. アート クッキング 衛生・健康的な生活 食品・ワイン
エピソード
  • Episode 51 with Zamira Castaneda

    Episode 51 with Zamira Castaneda
    2026/05/29

    In the fifty first episode of HC&U, we interview Zamira Castaneda.

    Zamira is the mother of Luciano who has Cobalamin G. She shares her family's medical journey along with some struggles and triumphs of living with Cobalamin G.

    During Lindsey's Low Pro Bitesss, we discuss Mom's fried sweet potatoes.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    Luciano's Story

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
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    38 分
  • HC&U Bite Sized with Nicolo Betoni

    HC&U Bite Sized with Nicolo Betoni
    2026/05/24

    HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.

    In the second installment of HC&U Bite Sized, we talk to Nicolo Betoni about his presentation at the American Academy of Neurology conference.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
    続きを読む 一部表示
    6 分
  • HC&U Bite Sized with Kristen Skvorak

    HC&U Bite Sized with Kristen Skvorak
    2026/05/07

    HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.

    In the first installment of HC&U Bite Sized, we talk to Kristen Skvorak about her presentation at ACMG.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr
    続きを読む 一部表示
    4 分
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