エピソード

  • 401 - A BA Journey - Kasai Only to Adult Transplant
    2025/04/15

    🎧 Season Premiere – BARE It All Coffee Talk


    Welcome to a brand-new season of BARE It All Coffee Talk!

    We're kicking things off with powerful conversations and exciting updates—we're now streaming on all major podcast platforms and on YouTube!

    In this emotional and eye-opening episode, we sit down with Brooks, an adult living with biliary atresia. Brooks shares his deeply personal journey, the medical challenges he's faced, and the mindset that helps him keep moving forward.

    Whether you’re navigating a rare condition yourself or just want to hear an incredible story of resilience and hope, this episode is a must-listen.

    🔔 Don’t forget to subscribe, rate, and share to help us spread awareness and inspire others.

    Topics Covered:

    • Living with biliary atresia as an adult
    • Facing chronic illness with courage
    • Finding strength through community and conversation


    #BAREItAllCoffeeTalk #BiliaryAtresia #PatientStories #PodcastSeasonPremiere #ChronicIllnessAwareness #HealthJourney #Resilience

    続きを読む 一部表示
    1 時間 4 分
  • Coffee Talk with Sarah & Dan
    2024/11/26

    On this BARE It All Coffee Talk episode, Stephanie sits down with Sarah and Dan to share their journey with Biliary Atresia. They open up about their experience raising a child who’s had a Kasai procedure and offers insight into the emotional and physical challenges of navigating such a medical journey. Tune in to hear about their unique perspectives on this life-changing experience from mom and dad.


    If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠⁠contactus@bareinc.org⁠⁠⁠⁠. Let's amplify our voices and foster understanding together."


    Connect with us:

    • ⁠⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠


    If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠⁠ to learn more about how they can help.

    Music by ⁠⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠⁠ from ⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠

    #BiliaryAtresia #KasaiProcedure #MedicalJourney #Parenting #BAREItAll #CoffeeTalk

    続きを読む 一部表示
    1 時間 4 分
  • Coffee Talk with Lexi
    2024/10/29

    On this episode of BARE It All Coffee Talk, host Stephanie welcomes her oldest daughter, Alexis. Together, they explore the impact of biliary atresia on siblings and what has helped them cope. The entire family faces the challenges of BA, each in their own way, but, Alexis reflects on how, 11 years after her sister’s diagnosis, she has cherished memories—even amidst the difficulties.

    If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠⁠⁠contactus@bareinc.org⁠⁠⁠⁠⁠. Let's amplify our voices and foster understanding together."


    Connect with us:

    • ⁠⁠⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠⁠


    If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠⁠⁠ to learn more about how they can help.

    Music by ⁠⁠⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠⁠⁠ from ⁠⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠

    続きを読む 一部表示
    22 分
  • Coffee Talk with Brandi
    2024/09/24

    On this episode of BARE It All Coffee Talk, host Stephanie is joined by Brandi to discuss their journey with Biliary Atresia. They candidly share their experiences, including the challenges and triumphs along the way. If you've faced complications or want to understand this condition better, this is an episode you won't want to miss!

    If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠⁠contactus@bareinc.org⁠⁠⁠⁠. Let's amplify our voices and foster understanding together."


    Connect with us:

    • ⁠⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠⁠


    If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠⁠ to learn more about how they can help.

    Music by ⁠⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠⁠ from ⁠⁠⁠⁠⁠Pixabay⁠⁠⁠⁠

    続きを読む 一部表示
    53 分
  • Coffee Talk with COTA
    2024/08/27

    On this episode of BARE It All Coffee Talk, host Stephanie is joined by President Jen for an insightful discussion about COTA (Children's Organ Transplant Association). They chat with COTA President Rick and two families who have benefited from COTA’s support. Please tune in to hear their personal medical journeys and discover how COTA has made a difference in their lives.

    If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠⁠contactus@bareinc.org⁠⁠⁠. Let's amplify our voices and foster understanding together."


    Connect with us:

    • ⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠⁠


    If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠⁠ to learn more about how they can help.

    Music by ⁠⁠⁠⁠Magnetic_Trailer⁠⁠⁠⁠ from ⁠⁠⁠⁠Pixabay⁠⁠⁠⁠

    続きを読む 一部表示
    42 分
  • Coffee Talk With Maria on Advocacy
    2024/07/30

    In this episode of BARE It All Coffee Talk, Stephanie sits down with fellow board member Maria to explore the crucial role of advocacy in the biliary atresia journey. Whether you're a parent or a patient, effective advocacy can significantly impact your medical experience. Join us as we share our insights and experiences to support and guide others on their journeys.


    The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families.

    ⁠⁠Biliary Atresia - UCSF transplant surgeons⁠⁠.

    If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠⁠contactus@bareinc.org⁠⁠. Let's amplify our voices and foster understanding together."


    Music by ⁠⁠Magnetic_Trailer⁠⁠ from ⁠⁠Pixabay⁠⁠


    Connect with us:

    • ⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠


    If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠⁠ to learn more about how they can help.

    続きを読む 一部表示
    46 分
  • Coffee Talk With Aaron
    2024/06/25

    Join us in this emotional episode of BARE It All, Coffee Talk, as we sit down with Aaron to hear his poignant journey with biliary atresia and transplant. Aaron bravely shares the challenges and triumphs of living with biliary atresia as an adult, offering a candid look into his life.

    The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families.

    ⁠Biliary Atresia - UCSF transplant surgeons⁠.

    If you or someone you know has experience with biliary atresia and is willing to share your journey publicly to support our initiative, don't hesitate to get in touch with us at ⁠contactus@bareinc.org⁠. Let's amplify our voices and foster understanding together."


    Music by ⁠Magnetic_Trailer⁠ from ⁠Pixabay⁠

    Connect with us:

    • ⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠


    If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew looks forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠⁠ to learn more about how they can help.

    続きを読む 一部表示
    39 分
  • Coffee Talk With Jenna
    2024/05/21

    Join us in this episode of BARE It All, Coffee Talk, as we sit down with Jenna to delve into her son Alex’s journey with biliary atresia and transplant. Jenna bravely shares the challenges and complications Alex faced post-transplant, offering listeners a glimpse into their daily lives and resilience.


    The incidence of biliary atresia is approximately one in 10,000 children, with the disease being more common in males and in Asian and African-American newborns. Biliary atresia is not an inherited disease and does not run in families.

    Biliary Atresia - UCSF transplant surgeons.


    If you or someone you know has experience with biliary atresia and are willing to share your journey publicly to support our initiative, please reach out to us at contactus@bareinc.org. Let's amplify our voices and foster understanding together."


    Music by Magnetic_Trailer from Pixabay

    Connect with us:

    • ⁠⁠⁠⁠⁠⁠Bare Inc.⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠Instagram⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠X - Twitter⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠

    • ⁠⁠⁠⁠⁠⁠⁠YouTube⁠⁠⁠⁠⁠


    If your child is facing a life-saving liver transplant, please reach out to The Children's Organ Transplant Association or COTA. The COTA crew is looking forward to learning more about your family's Biliary Atresia journey. COTA works with families to lessen the financial burden of a life-saving transplant and support is provided at absolutely no cost. Please call COTA today at 1-800-366-2682 or go to ⁠⁠⁠⁠www.cota.org/getstarted⁠⁠⁠⁠ to learn more about how they can help.

    続きを読む 一部表示
    47 分