In this episode, I interviewed Lucy, who was diagnosed with Ehlers-Danlos Syndrome in 6th grade. She talks about living with her condition, and the struggles she faces in athletics and with other people.
You'll hear about:
- The diagnostic process
- Navigating athletics with accommodations
- How people react to hearing about her EDS
- Invisible symptoms and struggles
You can find online support for EDS below:
- The Ehlers-Danlos Society - https://www.ehlers-danlos.com/
- EDS Awareness - https://www.chronicpainpartners.com/
- Connective Strength - https://www.connectivestrength.org/
Please subscribe, rate, and leave a review on your favorite podcast platform and share this episode with someone who needs to hear Lucy's story.
You can find the episode transcript in this Google Doc:
https://docs.google.com/document/d/1aadh8lRaW_cLh1JeWdTxn_DEGWbjVJls4KpCFk2z1fQ/edit?usp=sharing
12 分