『Zebra Butter: Spreading Awareness for Rare Medical Conditions』のカバーアート

Zebra Butter: Spreading Awareness for Rare Medical Conditions

Zebra Butter: Spreading Awareness for Rare Medical Conditions

著者： Sree Nidhi Bethanapalli
無料で聴く

Across the world, 400 million people suffer with rare medical conditions. Every diagnosis impacts each person differently. In this podcast, I interview people with these conditions, exploring the impact on their daily lives. This is an initiative to spread both awareness and comfort to the millions out there that live with these conditions.

Episodes will be posted monthly.

Cover Art by Vanessa Hasty

Sree Nidhi Bethanapalli 2026 心理学 心理学・心の健康 衛生・健康的な生活 身体的病い・疾患
エピソード
  • Living Flexible - The Ups and Downs of Ehlers-Danlos Syndrome

    Living Flexible - The Ups and Downs of Ehlers-Danlos Syndrome
    2026/07/23

    In this episode, I interviewed Lucy, who was diagnosed with Ehlers-Danlos Syndrome in 6th grade. She talks about living with her condition, and the struggles she faces in athletics and with other people.

    You'll hear about:

    • The diagnostic process
    • Navigating athletics with accommodations
    • How people react to hearing about her EDS
    • Invisible symptoms and struggles

    You can find online support for EDS below:

    • The Ehlers-Danlos Society - https://www.ehlers-danlos.com/
    • EDS Awareness - https://www.chronicpainpartners.com/
    • Connective Strength - https://www.connectivestrength.org/

    Please subscribe, rate, and leave a review on your favorite podcast platform and share this episode with someone who needs to hear Lucy's story.

    You can find the episode transcript in this Google Doc:

    https://docs.google.com/document/d/1aadh8lRaW_cLh1JeWdTxn_DEGWbjVJls4KpCFk2z1fQ/edit?usp=sharing
    続きを読む 一部表示
    12 分
adbl_web_anon_alc_button_suppression_t1
まだレビューはありません