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  • The Fight For What Is Possible: For Nolan. For Thomas. For What Comes Next.
    2025/12/17

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    Hope is here, but time is critical.
    Nolan is eligible for a groundbreaking, individualized treatment, and the final barrier is funding. Your donation today directly supports access to care that could change Nolan's life and ease the daily reality for his family and others.
    Give now. Every moment counts. --> https://give.rarevillage.org/campaign/733811/donate

    We move from Nolan’s early journey into the present. We talk plainly about hypervigilance, sibling grief, community support, and the funding gap for N-of-one trials.

    • What ASO is and how it targets RNA to silence a bad copy
    • Why Nolan’s KCNQ2 variant is ultra-rare and high risk
    • Trial gains from a potassium channel opener and current limits
    • Daily caregiving realities, suctioning, feeding and dystonia
    • Hypervigilance as a permanent state for caregivers
    • The emotional load on siblings and lost moments
    • Goals that matter most, vision, purposeful movement, connection
    • How n-Lorem provides the drug and why delivery still needs funds
    • NP Believe via Rare Village as the donation pathway
    • Building awareness to help other nano-rare families

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    21 分
  • No Manual, No Map: The Start of a Rare Disease Journey
    2025/12/16

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    Nolan’s future depends on what we do right now.
    Kara has fought relentlessly to get her son to this moment. Your support, whether large or small, helps turn scientific hope into real treatment for Nolan and stability for his family.
    Please donate today --> https://give.rarevillage.org/campaign/733811/donate

    We break hiatus to share Kara’s story of Nolan’s birth, crisis, and the fight to turn rare disease from a verdict into a plan. From induced coma and surgical hurdles to N-Lorem, we trace how a parent can move science toward real impact.

    • Nolan’s traumatic birth, seizures, and NICU coma care
    • Genetic diagnosis and first-line seizure strategies
    • G tube placement, hip reconstruction, and line infections
    • Ketogenic diet benefits and a rare, severe complication
    • PICU admission with anemia, scurvy, rickets, and recovery
    • ACTH trials, status seizures, and EEG realities
    • Family resilience, sibling empathy, and community support
    • The turn to ASO and CRISPR for KCNQ2
    • N-Lorem acceptance and current progress
    • Reflection pause and preview of part two airing Wednesday

    Take care and thank you for joining us


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    26 分
  • You Cannot Do Everything, So Choose What Matters Today
    2025/12/15

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    We talk about why “doing it all” breaks us and how to build grace into busy seasons. We then share Nolan’s story, a child with KCNQ2, and the urgent campaign to fund personalized therapy that could change his life.

    • myth of having it all and why it harms
    • using grace as a daily practice
    • setting priorities across family, job, and podcast
    • planning hard weeks and asking for help
    • Shonda Rhimes’ truth about trade-offs
    • Nolan’s diagnosis and what KCNQ2 means
    • personalized ASO therapy and quality of life
    • why funding is needed and how to support
    • sharing the donor link and spreading awareness

    Please message me if you know an organization that’d be willing to donate. I’m going to link the donor page in the description—even a small amount helps.

    https://give.rarevillage.org/campaign/733811/donate

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    13 分
  • You must look inward first before you can look outward
    2025/11/21

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    If dating feels like déjà vu, you’re not cursed—you’re unaligned. We open up about the inner work that makes healthy love possible, from naming your nonnegotiables to stepping off the hamster wheel of “fast and easy” connections. Instead of explaining away mixed signals, we walk through simple, honest ways to read priorities, set boundaries that stick, and protect your energy for people who show up with consistency.

    We get personal about the tug-of-war between a traditional home life and a driven career, and how to integrate those desires without shrinking either one. You’ll hear why taking a year-long pause from dating can be a powerful reset, not a setback—freeing up attention for journaling, meditation, affirmations, and visualization that sharpen your vision of partnership. We talk practical frameworks for clarity: defining the daily life you want, mapping how you handle conflict and money, and choosing routines that reflect your values.

    This conversation is a gentle push to trade intensity for steadiness and potential for proof. When your standards and your actions finally match, mismatched options fall away and the right person recognizes you faster. If you’re ready to stop settling, realign your choices, and build love that lasts, press play and join us. If a line here hits home, share it with a friend, subscribe for more grounded conversations, and leave a review with the one boundary you’re committing to next.

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    10 分
  • If you’re ready to lead without fear, grow on purpose, and find rooms that value your talent, press play
    2025/11/20

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    Forget the myth that leadership means being the loudest voice in the room. We share a raw, funny, and practical journey from crash-and-burn manager to a leader who lifts, protects, and empowers. If you’ve ever had a boss who dumped everything on your desk at 5 p.m., you’ll recognize the old model—and you’ll get a blueprint for doing the opposite.

    We start with early missteps: mistaking a title for freedom, delegating without accountability, and learning what happens when you disappear on your team. Then we pivot to a new model built on service with standards: learning your team’s jobs well enough to backfill them, defending quality under pressure, and turning skepticism into trust with consistent action. Expect concrete examples of covering vacations, safeguarding clients, and translating values into daily behaviors that actually scale.

    Career growth is a thread throughout. We lay out a simple three-year cadence: master your role in year one, expand your impact in year two, and advocate for title and pay in year three. You’ll hear how to build receipts—revenue influenced, projects delivered, risk mitigated—and how to spot red flags like goalposts that move, gaslighting, or surveillance disguised as feedback. When the answer is always “not now,” we explain how to exit with clarity and momentum. This is a playbook for women navigating agencies and beyond, blending candid stories with tactics you can use tomorrow.

    If you’re ready to lead without fear, grow on purpose, and find rooms that value your talent, press play. Subscribe, share this with a friend who needs a push, and leave a review with the best leadership lesson you’ve learned. Your story might help someone else step up.

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    12 分
  • Rethinking Three Meals A Day
    2025/11/17

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    What if the rule of breakfast, lunch, and dinner was built for the clock, not your body? We take a hard look at the cultural origins of three meals a day, why that script became so dominant, and how a smarter approach to meal timing can improve energy, mood, and long-term health. Along the way, we unpack research on meal frequency, fasting windows, and the surprising backstory behind the 2,000-calorie “standard” that shaped nutrition labels more than it shaped wellbeing.

    We share personal results with intermittent fasting, from weight stability and better focus to improved blood sugar and fewer afternoon crashes. Then we zoom out to the science: conflicting studies on high-frequency eating, new perspectives linking more frequent meals to higher disease risk, and the pivotal role of fasting duration between meals. Rather than a one-size-fits-all rule, we walk through variables that actually matter—food quality, circadian timing, and the sequence of what you eat—plus why a protein-forward first meal after a fast often beats a carb-heavy start.

    If you’ve ever felt trapped by food rules, this conversation gives you permission and tools to experiment. You’ll hear practical guidance on building a 14–16 hour fasting window, testing different first meals, and listening to data from your own body: energy, satiety, mood, and simple health markers. We also tackle myths around meat, processed foods, and the marketing that shapes our habits more than our hunger. Question the norms, keep what works, and rewrite the parts that don’t.

    Enjoy the episode, then tell us how you structure your day: How many meals serve you best, and what’s your ideal first bite after a fast? If this resonated, follow the show, share it with a friend, and leave a quick review so more listeners can find it.

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    14 分
  • Find Your Center and Find Your Excellence
    2025/11/11

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    Ever feel your mornings run you instead of the other way around? We’ve been there—work piling up, kids home, routines slipping—until the day we chose a gentler restart. Today we share a candid update on parenting getting easier as kids grow more independent and how that small shift opened the door to rebuilding our inner calm with a practical morning ritual you can actually keep.

    We walk through The Miracle Morning by Hal Elrod—found through the always-inspiring Kathy Heller—and break down the SAVERS method: Silence, Affirmations, Visualization, Exercise, Reading, and Scribing. No perfection required. We show you how to scale it to five-minute blocks, how to shrink the routine on hard days without breaking it, and why momentum matters more than motivation. You’ll hear how simple practices like a minute of breathing, a single empowering statement, or one page of reading can steady your focus, mood, and confidence.

    Along the way, we talk about the people who shape our ceilings—why you truly are the average of your closest five—and how to audit your inputs across friends, feeds, and self-talk. We take aim at self-fulfilling prophecies, fear, and imposter syndrome with practical language shifts and tiny actions that restore agency. If you’ve been waiting for a clean slate or a New Year to start fresh, consider this your nudge: ritual beats resolution, and the best day to begin is the next morning you wake up.

    Press play, pick one micro-step, and start tomorrow. If this spoke to you, subscribe, share with a friend who loves a good reset, and leave a quick review to help more women find their voice and their morning.

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    22 分
  • A Struggling Rose Taught Me To Breathe, Cut Back, And Live Fully
    2025/11/07

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    Unleash Her: The Next Chapter Begins

    A single rose stem fought through shade, found the light, and bloomed anyway—and that small miracle became our guide for how women can cut back, take space, and grow stronger roots. We read the final excerpt from Unleash Her: The Next Chapter Begins and turn a backyard discovery into a vivid blueprint for choosing yourself without apology.

    We start with the moment everyone said to rip out the “ugly” stem and replace it with something neat. Instead, we trimmed the overgrowth, waited, and watched the stem push new branches until it needed a bigger stake to hold the weight of its own success. That journey mirrors so many lives: suffocated by roles, starving for sunlight, still producing a bloom or two to prove we’re fine. We explore why pruning obligations is not loss but leverage, how boundaries invite breath, and where practical support—mentors, partners, better systems—turns fragile progress into lasting change.

    From there, we go deeper on voice. If your calendar is choking your spirit, clarity is oxygen: ask for what you need at work, at home, and within yourself. We share language for clean requests, discuss how to anchor growth as opportunities expand, and talk about the moment when your branches lean with the weight of new wins. Finally, we widen the lens to sisterhood. The chorus of me too grows louder each year, and that solidarity is the trellis that keeps us upright while we bloom. If you’re ready to stop shrinking and start thriving, this conversation is your stake in the ground.

    Want a signed copy of Unleash Her? We’re gifting five to listeners who message mailing details on LinkedIn or Instagram. If this story resonates, follow, share with a friend who needs it, and leave a quick review—your words help more women find the light.

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    6 分