エピソード

  • 178: An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas
    2025/06/26

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas, on therapeutic options available to patients with Duchenne muscular dystrophy (DMD).

    続きを読む 一部表示
    15 分
  • 177: An Interview With Dr. Sithara Ramdas on Neonatal and Juvenile Myasthenia Gravis
    2025/06/20

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Sithara Ramdas, MD, of Oxford Children's Hospital in England, on neonatal and juvenile myasthenia gravis.

    続きを読む 一部表示
    12 分
  • 176: An Interview With Lyza Weisman on Living With Spinal Muscular Atrophy
    2025/06/18

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lyza Weisman, who has spinal muscular atrophy type 2, about how she copes with progressive loss of muscle function.

    続きを読む 一部表示
    15 分
  • 175: An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat Patients With Rare Seizure Disorders
    2025/06/13

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Marcus Delatte, PhD, on how the versatile cannabis plant offers innovative treatments for children with Dravet syndrome and Lennox-Gestaut syndrome.

    続きを読む 一部表示
    11 分
  • 174: An Interview With Lucy Culp, VP of State Government Affairs at the Leukemia & Lymphoma Society
    2025/06/09

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lucy Culp, vice-president of state government affairs at the Leukemia & Lymphoma Society, on top issues of importance to patients with rare blood cancers.

    続きを読む 一部表示
    11 分
  • 173: An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Group 'Somebody To Talk To'
    2025/05/26

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews amyloidosis patient and former basketball player Dan Lier, a partner with the nonprofit group Somebody To Talk To, about his new "Rare Disease Playbook."

    続きを読む 一部表示
    11 分
  • 172: An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HD
    2025/05/19

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lauren Holder, an activist and patient with Huntington disease, as well as producer and host of the podcast series Help 4 HD Live.

    続きを読む 一部表示
    12 分
  • 171: An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple Sclerosis
    2025/05/15

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Antonella Favit-Van Pelt, MD, PhD, chief medical officer at Helius Medical, on the potential of neuromodulation to treat people with multiple sclerosis.

    続きを読む 一部表示
    16 分