エピソード

  • 186: An Interview With Kfir Oved, CEO of Canopy Biotech, Which is Pursuing Novel Treatments in MG
    2025/08/18

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kfir Oved about the latest Israeli research on myasthenia gravis.

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    16 分
  • 185: An Interview With Ileen Colin del Río, President of Duchenne Mexico
    2025/08/13

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ileen Colin del Río, the mother of a boy with Duchenne muscular dystrophy and president of the Cancún-based nonprofit group Duchenne Mexico.

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    16 分
  • 184: An Interview With Aspiring DJ Yuva Gambhir
    2025/08/05

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Yuva Gambhir, 22, who doesn't let Duchenne muscular dystrophy get in the way of his aspiring career as a DJ.

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    14 分
  • 183: An Interview With Dr. Richard Nowak, Director of the Yale Myasthenia Gravis Clinic
    2025/07/28

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Richard Nowak, MD, director of the Myasthenia Gravis Clinic at Yale School of Medicine in New Haven, Connecticut.

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    14 分
  • 182: An Interview With Robert Steen of Norway on the Award-Winning Movie 'The Remarkable Life of Ibelin'
    2025/07/23

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Robert Steen of Oslo, Norway. Steen and his wife, Trude, are the parents of Mats Steen, who died of Duchenne muscular dystrophy (DMD) in 2014. An award-winning documentary, The Remarkable Life of Ibelin, is based on their son's story.

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    13 分
  • 181: An Interview With Dr. Carolina Barnett-Tapia, Associate Professor of Neurology at the University of Toronto, on MG Treatment
    2025/07/14

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Carolina Barnett-Tapia, MD PhD, an associate professor of neurology at the University of Toronto, about how myasthenia gravis is treated throughout the Western Hemisphere.

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    13 分
  • 180: An Interview With Dr. Angela Vincent, Winner of the Myasthenia Gravis Foundation of America's First Lifetime Achievement Award
    2025/07/08

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews British scientist Angela Vincent, winner of the first-ever Lifetime Achievement Award from the Myasthenia Gravis Foundation of America.

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    13 分
  • 179: An Interview With Dr. Daniel Grant, VP and Global Program Head at Novartis
    2025/07/02

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Daniel Grant, MD, vice president and global program head of neuroscience and gene therapy at Swiss pharma giant Novartis, on emerging therapies for SMA.

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    13 分