エピソード

  • 170: An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation
    2025/05/08

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Joyce Kullman, executive director of the Vasculitis Foundation, duirng Vasculitis Awareness Month.

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    12 分
  • 169: An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis
    2025/05/08

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy.

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    14 分
  • 170: An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis
    2025/05/08

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Chris Lewis, whose father, Jerry Lewis, was not only among the most famous comedians of the 20th century but also a tireless advocate for people with muscular dystrophy.

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    14 分
  • 168: An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation
    2025/04/30

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Butler, CEO of the GBS-CIDP Foundation, on what her organization is doing for patients with chronic inflammatory demyelinating polyneuropathy (CIDP).

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    13 分
  • 167: An Interview With MDA Patient Advocate Donavon Decker, WInner of the 2025 MDA Legacy Award for Community Impact in Research
    2025/04/28

    Larry Luxner, senior correspondent for Rare Disease Advisor, talks to Donavon Decker, who has limb-girdle muscular dystrophy. Decker is the winner of the 2025 MDA Legacy Award for Community Impact in Research.

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    13 分
  • 166: An Interview With MDA 2025 Patient Ambassador Lily Sander
    2025/04/15

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Patient Ambassador.

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    15 分
  • 165: An Interview With Duchenne Expert Katherine Mathews, MD, of the University of Iowa
    2025/04/11

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Katherine Mathews, MD, winner of the Muscular Dystrophy Association's 2025 Legacy Award for Achievement in Clinical Research for her contributions to understanding and treating genetic disorders affecting the neuromuscular system.

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    11 分
  • 164: An Interview With Generalized Pustular Psoriasis Expert Arash Mostaghimi, MD
    2025/04/07

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Arash Mostaghimi, MD, an associate professor of dermatology and a practicing physician at Boston's Brigham and Women's Hospital. Dr. Mostaghimi is a recognized expert on generalized pustular psoriasis (GPP).

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    9 分