『Rare Care Podcast』のカバーアート

Rare Care Podcast

Rare Care Podcast

著者： Rare Care Podcast
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概要

 Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.Copyright © 2022 Haymarket Media, Inc. All Rights Reserved 科学 衛生・健康的な生活
エピソード
  • 211: An Interview With Yen Chen, PhD, on Brain Fog Among People With Scleroderma

    211: An Interview With Yen Chen, PhD, on Brain Fog Among People With Scleroderma
    2026/02/11

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Yen Chen, PhD, of the University of Michigan, on the subject of cognitive dysfunction or "brain fog" among people with scleroderma.
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    12 分
  • 210: An Interview With Dr. Aleksander Krag on Diagnosing and Treating Alpha-1 Disease

    210: An Interview With Dr. Aleksander Krag on Diagnosing and Treating Alpha-1 Disease
    2026/02/02

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Danish hepatologist Aleksander Krag, MD, PhD, on the diagnosis and treatment of alpha-1 antitrypsin deficiency (AATD).
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    12 分
  • 209: An Interview With Vesna Aleksovska, a Rare Disease Patient Advocate in North Macedonia

    209: An Interview With Vesna Aleksovska, a Rare Disease Patient Advocate in North Macedonia
    2026/01/28

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Vesna Aleksovska, chair of the nonprofit organization Life With Challenges. Aleksovska, who has Gaucher disease, advocates for all rare disease patients in North Macedonia, a former Yugoslav republic.
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    20 分
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