In this episode of OVIDcast, Rachel Stewart, OVID Health Deputy Head of Patient Partnerships, continues the conversation with John James, Chief Executive Officer of the Sickle Cell Society.

Listen as they discuss the benefits of adopting an innovative approach in partnerships, the importance of involving patients and families in the measurement of partnership impact from the early stage and the significance of long-term partnerships in achieving lasting impact.

(0:04) Introduction
(0:45) Innovation in partnerships
(1:42) Measuring impact
(3:13) The value of long-term partnerships
(6:49) Patient centricity
(8:05) Key tips for establishing a partnership

About the guest:
John James is the Chief Executive of the Sickle Cell Society. The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life and has been working alongside healthcare professionals, parents, and people living with sickle cell to raise awareness of the disorder.

Find out more about the Sickle Cell Society

OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

Find out more about OVID Health
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In this episode of OVIDcast, Rachel Stewart, OVID Health Deputy Head of Patient Partnerships, interviews John James, Chief Executive Officer of the Sickle Cell Society. In this episode John shares his insights on the progress he has seen in healthcare partnerships throughout his career, from his work with the Sickle Cell Society and his role as a judge on OVID Health's Patient Partnership Index.

(0:04) Introduction
(1:01) Understanding Sickle Cell Disease
(4:01) The Sickle Cell Society
(8:06) The impact of successful partnerships
(10:46) The evolution and future of partnerships

About the guest:
John James is the Chief Executive of the Sickle Cell Society. The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life and has been working alongside healthcare professionals, parents, and people living with sickle cell to raise awareness of the disorder.

Find out more about the Sickle Cell Society

OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

Find out more about OVID Health
Follow OVID Health on LinkedIn

In this episode of OVIDcast, Rachel Gonzaga, Head of Patient Partnerships at OVID Health, continues the conversation with Mary Pavlou, President of the Fabry International Network and a trained nurse who lives with Fabry disease. Listen as Mary highlights the importance of transparency in successful partnerships and the challenge of measuring the success of collaborations with industry.

(0:48) Measuring success
(3:05) Initiating partnerships with patient organisations
(4:18) The questions pharma should be asking
(5:04) The need for educational material

About the guest:
Mary Pavlou is the President and Head of Patient Partnerships at Fabry International Network. She is a trained nurse and Fabry disease patient herself.

Fabry International Network is an independent and vibrant network of Fabry patient associations whose purpose is to collaborate, communicate and promote best practice to support those affected by Fabry disease, connecting health professionals and allying with industry partners, with the mission to empower Fabry patients all over the world.

Find out more about the Fabry International Network

OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

Find out more about OVID Health
Follow OVID Health on LinkedIn

In this episode of OVIDcast, Rachel Gonzaga, Head of Patient Partnerships at OVID Health, interviews Mary Pavlou, President of the Fabry International Network as they discuss the organisation's accomplishments and the importance of transparent partnerships with the pharmaceutical industry.

The Fabry International Network aims to raise awareness about Fabry disease, provide a platform for doctors and patient representatives to exchange experiences and best practices, and support the global Fabry community.

(0:50) Living with Fabry Disease
(2:46) Fabry International Network
(5:40) Acquiring funding for neglected needs

About the guest:
Mary Pavlou is the President and Head of Patient Partnerships at Fabry International Network. She is a trained nurse and Fabry disease patient herself.

Fabry International Network is an independent and vibrant network of Fabry patient associations whose purpose is to collaborate, communicate and promote best practice to support those affected by Fabry disease, connecting health professionals and allying with industry partners, with the mission to empower Fabry patients all over the world.

Find out more about the Fabry International Network

OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

Find out more about OVID Health
Follow OVID Health on LinkedIn

In this episode of OVIDcast, Rachael Gonzaga, OVID Health Head of Patient Partnerships, continues the conversation with Victoria Clare, Chief Executive of Ovacome, the National Ovarian Cancer Support Charity.

Listen as they focus on trust and the need for a long-term view and clear communication in order to build lasting relationships, as well as how to measure success within partnerships.

(0:50) Starting a partnership
(2:10) Partnerships in Oncology
(3:53) Measuring success
(6:20) Trends in Pharma

About the guest:
Victoria Clare is the CEO of Ovacome, the national UK ovarian cancer charity focused on providing support and information to anyone affected by ovarian cancer. This includes people who have either been diagnosed with the disease or think that they might be at risk, as well as their friends and family and healthcare professionals.

Ovacome aims to reduce isolation, share information, promote knowledge and support anyone affected by ovarian cancer. They provide direct support to over 6,200 people through their support line and events, with nearly 80,000 people accessing their expert information materials each year.

Find out more about Ovacome

OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

Find out more about OVID Health
Follow OVID Health on LinkedIn

In this episode of OVIDcast, Rachael Gonzaga, OVID Health Head of Patient Partnerships, interviews Victoria Clare, Chief Executive of Ovacome, the National Ovarian Cancer Support Charity as they discuss how Ovacome provides support and information to individuals affected by ovarian cancer and their families, while also working closely with the clinical community to ensure patient views are included in research and resources.

(0:39) About Ovacome
(3:16) Proud partnerships
(5:15) Innovation within projects
(7:44) Internal perceptions of partnerships

About the guest:
Victoria Clare is the CEO of Ovacome, the national UK ovarian cancer charity focused on providing support and information to anyone affected by ovarian cancer. This includes people who have either been diagnosed with the disease or think that they might be at risk, as well as their friends and family and healthcare professionals.

Ovacome aims to reduce isolation, share information, promote knowledge and support anyone affected by ovarian cancer. They provide direct support to over 6,200 people through their support line and events, with nearly 80,000 people accessing their expert information materials each year.

Find out more about Ovacome

OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

Find out more about OVID Health
Follow OVID Health on LinkedIn

In this episode of OVIDcast, Rachael Stewart, Deputy Head of Patient Partnerships at OVID Health continues the conversation with Rachel Power, Chief Executive of the Patients Association as they explore the role of patients in partnerships with both healthcare professionals and life science companies as well as how two award-winning projects focused on working directly with patients to improve shared decision-making.

(0:27) Achieving a gold standard
(2:26) Life science collaborations
(3:49) Regulatory involvement
(6:01) Engaging hard-to-reach communities

About the guest:
Rachel became Chief Executive of the Patients Association in 2017, with over 20 years' experience working in health and social care within the voluntary sector.

Since joining the Patients Association, Rachel has overseen a significant period of change, establishing a new senior leadership team and a new three-year strategy to help drive the organisation forward.

Find out more about The Patients Association

OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

Find out more about OVID Health
Follow OVID Health on LinkedIn

In this episode of OVIDcast, Rachael Stewart, Deputy Head of Patient Partnerships at OVID Health is joined by Rachel Power, Chief Executive of the Patients Association as they discuss how the Patients Association supports patients in influencing healthcare decisions and share insights on their latest strategies, including true patient partnerships and actively seeking and valuing patient input.

(0:27) Introduction
(2:16) True patient partnerships
(6:13) Looking to the future

About the guest:
Rachel became Chief Executive of the Patients Association in 2017, with over 20 years' experience working in health and social care within the voluntary sector.

Since joining the Patients Association, Rachel has overseen a significant period of change, establishing a new senior leadership team and a new three-year strategy to help drive the organisation forward.

Find out more about The Patients Association

OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

Find out more about OVID Health
Follow OVID Health on LinkedIn