In this episode of OVIDcast, Rachel Stewart, OVID Health Deputy Head of Patient Partnerships, continues the conversation with John James, Chief Executive Officer of the Sickle Cell Society.

Listen as they discuss the benefits of adopting an innovative approach in partnerships, the importance of involving patients and families in the measurement of partnership impact from the early stage and the significance of long-term partnerships in achieving lasting impact.

(0:04) Introduction
(0:45) Innovation in partnerships
(1:42) Measuring impact
(3:13) The value of long-term partnerships
(6:49) Patient centricity
(8:05) Key tips for establishing a partnership

About the guest:
John James is the Chief Executive of the Sickle Cell Society. The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life and has been working alongside healthcare professionals, parents, and people living with sickle cell to raise awareness of the disorder.

Find out more about the Sickle Cell Society

OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

Find out more about OVID Health
Follow OVID Health on LinkedIn

In this episode of OVIDcast, Rachel Stewart, OVID Health Deputy Head of Patient Partnerships, interviews John James, Chief Executive Officer of the Sickle Cell Society. In this episode John shares his insights on the progress he has seen in healthcare partnerships throughout his career, from his work with the Sickle Cell Society and his role as a judge on OVID Health's Patient Partnership Index.

(0:04) Introduction
(1:01) Understanding Sickle Cell Disease
(4:01) The Sickle Cell Society
(8:06) The impact of successful partnerships
(10:46) The evolution and future of partnerships

About the guest:
John James is the Chief Executive of the Sickle Cell Society. The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by a sickle cell disorder to improve their overall quality of life and has been working alongside healthcare professionals, parents, and people living with sickle cell to raise awareness of the disorder.

Find out more about the Sickle Cell Society

OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

Find out more about OVID Health
Follow OVID Health on LinkedIn

In this episode of OVIDcast, Rachel Gonzaga, Head of Patient Partnerships at OVID Health, continues the conversation with Mary Pavlou, President of the Fabry International Network and a trained nurse who lives with Fabry disease. Listen as Mary highlights the importance of transparency in successful partnerships and the challenge of measuring the success of collaborations with industry.

(0:48) Measuring success
(3:05) Initiating partnerships with patient organisations
(4:18) The questions pharma should be asking
(5:04) The need for educational material

About the guest:
Mary Pavlou is the President and Head of Patient Partnerships at Fabry International Network. She is a trained nurse and Fabry disease patient herself.

Fabry International Network is an independent and vibrant network of Fabry patient associations whose purpose is to collaborate, communicate and promote best practice to support those affected by Fabry disease, connecting health professionals and allying with industry partners, with the mission to empower Fabry patients all over the world.

Find out more about the Fabry International Network

OVID Health is an award-winning, independent agency with expertise in healthcare public affairs, patient advocacy, and communications. Their team builds bridges between the worlds of industry, healthcare, and the public sector to help clients achieve change in the health and life sciences sectors.

Find out more about OVID Health
Follow OVID Health on LinkedIn