『Hydro Heroes Unite』のカバーアート

Hydro Heroes Unite

Hydro Heroes Unite

著者: Taisha Cameron
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【Amazonプライム会員限定】今ならプレミアムプランが4か月 月額99円。

10月19日まで。※適用条件あり

Hydro Heroes Unite is a podcast for parents and caregivers of children with hydrocephalus. Hosted by Taisha Cameron, Season One shares stories from families navigating pediatric hydrocephalus and insights from medical professionals. New episodes every other Wednesday.



Created in partnership with the Hydrocephalus Association.

© 2026 Hydro Heroes Unite
人間関係 子育て 衛生・健康的な生活 身体的病い・疾患
エピソード
  • Brotherhood & Bravery: Josh and Jake's Hydrocephalus Story
    2026/09/02

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    Today I share parts of my conversation with twin brothers, Josh and Jake. Josh has hydrocephalus and Jake doesn't. We talk about what can be challenging, what brings them joy and being brave. I also got the opportunity to speak with their mom, Emily, about things she's learned caring for a loved one with hydrocephalus.


    Resources connected to today's episode:

    Hydrocephalus Awareness Month

    Shunt System

    Complications of Shunt Systems

    Shunt Revision Surgery: What to Expect During Surgery and Recovery

    Shunt Malfunction: Frequently Asked Questions School and Hydrocephalus

    Newly Diagnosed

    Hydrocephalus Resource Library

    RAISE Resilience Program

    Community Networks (Support Groups)

    HydrocephalusCONNECT (Peer Support Program)

    WALK to End Hydrocephalus

    Learn more about hydrocephalus: https://www.hydroassoc.org
    Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform

    Follow on Instagram: @taishaycameron, @hydroassoc


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    16 分
  • Navigating IEP and 504 Plans with Education Law Attorney Ashley VanCleef
    2026/08/19

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    Not sure what an IEP or 504 plan is or if your child needs one? Today on Hydro Heroes Unite education law attorney Ashley VanCleef joins me to break down IEP's and 504 plans for adolescents living with hydrocephalus. We talk about what the plans are, how to start the process, and what to be mindful of along the way. Ashley also shares the legal steps to take when things aren’t working and how to help teens begin advocating for themselves during their own IEP meetings.


    HA Resource Links:

    Request a Hydro Hero shoutout on the show (If we're including again)

    School and Hydrocephalus

    IEP Strategies and Dealing with the School System Session with Dr. Zabel and Ashley VanCleef

    Downloadable Teachers’ Guides

    Individualized Education Program (IEP): Communication Skills for Parents

    Learning Disabilities in Children with Hydrocephalus

    Middle School with Hydrocephalus: Smart Preparation

    Mastering the High School Transition with Hydrocephalus

    COPAA

    National Conference on Hydrocephalus, HA CONNECT

    Search HA's Hydrocephalus Resource Library

    Hydrocephalus Resources

    Learn more about hydrocephalus: https://www.hydroassoc.org
    Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform

    Follow on Instagram: @taishaycameron, @hydroassoc


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    45 分
  • Mental Health and Hydrocephalus with Pediatric Psychologist Dr. Elizabeth McRae
    2026/08/05
    Send us Fan MailPediatric psychologist Dr. Elizabeth McRae returns to the show after her Season 1 conversation on caregiver resilience and advocacy. Today I'll be sharing parts of our conversation about mental health in adolescents living with hydrocephalus. We explore how anxiety, depression, school stress, and chronic symptoms shape daily life for teens, and how families can support emotional well‑being and self‑advocacy. I'm grateful to have her back to share her knowledge and heart with the community. Start Here: Mental Health & Emotional Well-BeingEmotional Well-Beinghttps://www.hydroassoc.org/emotional-well-being/Understanding Anxiety, Depression, and Mental Health in Hydrocephalushttps://www.hydroassoc.org/understanding-anxiety-depression-and-mental-health-in-hydrocephalus/Overcoming Emotional Struggles and Building Resiliencehttps://www.hydroassoc.org/emotional-struggles-and-resilience/Mindfulness for Hydrocephalus: Tools to Manage Stresshttps://www.hydroassoc.org/mindfulness-for-hydrocephalus/For Teens and Young AdultsResources for Teens and Young Adultshttps://www.hydroassoc.org/teen-young-adult-hydrocephalus-resources/Helping Teens Navigate Social Dynamics and Build Confidencehttps://www.hydroassoc.org/teens-navigate-social-dynamics/How to Explain Hydrocephalus to Your Teachers and Friendshttps://www.hydroassoc.org/explaining-hydrocephalus-to-teachers-friends/Monthly Teen Online HangoutWhen: 1st Sunday of the monthhttps://www.hydroassoc.org/find-a-community-network/For Parents and CaregiversSelf-Care is Not a Luxury, it's a Responsibility: Advocacy & Resilience with Pediatric Psychologist Dr. Elizabeth McRae Resources for Parentshttps://www.hydroassoc.org/parent-hydrocephalus-resources/Empowering Your Child to Be Their Own Advocate: Navigating Healthcare with Confidencehttps://www.hydroassoc.org/empowering-your-child/Our Shared Journey: Parent Support GroupWhen: 2nd Monday, Quarterlyhttps://www.hydroassoc.org/find-a-community-network/Daily Life, Balance, and Self-CareWellness & Self-Carehttps://www.hydroassoc.org/wellness-self-care/Balancing Life with Hydrocephalus: Key Strategies for Successhttps://www.hydroassoc.org/balancing-life-with-hydrocephalus/Understanding Symptoms and Related Health ConditionsComplications of Shunt Systemshttps://www.hydroassoc.org/complications-of-shunt-systems/Headaches and Hydrocephalushttps://www.hydroassoc.org/headaches-and-hydrocephalus/Precocious Puberty and Hydrocephalus: Helpful Insightshttps://www.hydroassoc.org/precocious-puberty-and-hydrocephalus/Related Health Conditionshttps://www.hydroassoc.org/related-health-conditions/Community and ConnectionPeer Support Program: HydrocephalusCONNECThttps://www.hydroassoc.org/hydrocephalusconnect-peer-support/19th National Conference on Hydrocephalus, HA CONNECT (July 23–25, Indianapolis, IN)https://hydrocephalusconference.org/WALK to End Hydrocephalushttps://www.hydroassoc.org/find-a-walk-near-you/Explore All ResourcesHydrocephalus Resourceshttps://www.hydroassoc.org/resources/Hydrocephalus Resource Libraryhttps://www.hydroassoc.org/hydrocephalus-library/Support Tools for Younger AudiencesA Helpful Companion for Learning at Home: Order My Hydro Bearhttps://www.hydroassoc.org/my-hydro-bear/Learn more about hydrocephalus: https://www.hydroassoc.orgRequest a Hydro Hero shoutout on the show: https://bit.ly/hydroheroformFollow on Instagram: @taishaycameron, @hydroassoc
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    38 分
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