In this final episode of Season One, I bring it home (literally) and share parts of my conversation with my husband Scott as he opens up about his perspective through Angelica’s hydrocephalus and Dandy-Walker diagnosis.

Scott opens up about:

• The shock of receiving a diagnosis during pregnancy
• Navigating NICU life, Hurricane Maria and unexpected PICU transfers
• Finding humor in hard places
• Advocating as a caregiver and trusting your gut (and your partners)
• How resilience forms slowly, moment by moment

This episode is funny, heartfelt, and deeply hopeful. Sometimes, the most powerful form of resilience is learning to smile, laugh, and eventually dance in the rain.

It's a tribute to caregivers, partners, and every family who has ever weathered a storm together.

If this season moved you, please share the episode or leave a review to help more hydro families feel seen and supported.

Resources:

Hydrocephalus Association RAISE Resilience Program: https://www.hydroassoc.org/raise-resilience-program/

Caring for the Caregiver: How to Recognize, Prevent, and Manage Burnout: https://www.hydroassoc.org/caring-for-the-caregiver/

Support Groups: https://www.hydroassoc.org/find-a-community-network/

Mindfulness for Hydrocephalus: Tools to Manage Stress: https://www.hydroassoc.org/mindfulness-for-hydrocephalus/

Resource for Parents: https://www.hydroassoc.org/parent-hydrocephalus-resources/

Hydrocephalus CONNECT Peer Support: https://www.hydroassoc.org/hydrocephalusconnect-peer-support/

Congenital Hydrocephalus: https://www.hydroassoc.org/congenital-hydrocephalus/

Easily Explain Hydrocephalus to a Child with Confidence: https://www.hydroassoc.org/how-to-explain-hydrocephalus-to-a-child/

Complications of a shunt system: https://www.hydroassoc.org/complications-of-shunt-systems/

Shunt Malfunction: Frequently Asked Questions: https://www.hydroassoc.org/shunt-malfunctions-frequently-asked-questions/

Your Healthcare Team: https://www.hydroassoc.org/your-healthcare-team-2/

Hydrocephalus Resources: https://www.hydroassoc.org/parent-hydrocephalus-resources/

WALK to End Hydrocephalus: https://www.hydroassoc.org/find-a-walk-near-you/

Learn more about hydrocephalus: https://www.hydroassoc.org
Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform

Follow on Instagram: @taishaycameron, @hydroassoc