In the fifty first episode of HC&U, we interview Zamira Castaneda.

Zamira is the mother of Luciano who has Cobalamin G. She shares her family's medical journey along with some struggles and triumphs of living with Cobalamin G.

During Lindsey's Low Pro Bitesss, we discuss Mom's fried sweet potatoes.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

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HC&U on Twitter

HCU Network America on Twitter

Luciano's Story

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.

In the second installment of HC&U Bite Sized, we talk to Nicolo Betoni about his presentation at the American Academy of Neurology conference.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.

In the first installment of HC&U Bite Sized, we talk to Kristen Skvorak about her presentation at ACMG.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

In the fiftieth episode of HC&U, we interview Ruby.

Ruby is a patient with classical HCU living in Australia. She shares her journey with homocystinuria and goes into detail about her experience with clinical trials.

During Lindsey's Low Pro Bitesss, we discuss chili cheese tots.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

Ruby's Story

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

In the forty ninth episode of HC&U, we interview Avery Volz.

Avery is a PhD student at Cincinnati Children's Hospital Medical Center (CCHMC)/University of Cincinnati (UC) in Development, Stem Cell, and Regenerative Medicine (DSRM). She is also a patient with classical HCU. She shares her unique medical journey and the impact of being diagnosed with homocystinuria.

During Lindsey's Low Pro Bitesss, we go back to basics and discuss a classic veggie sandwich.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

In the forty eighth episode of HC&U, we interview Amy Flanagan.

Amy is the mom of Classical HCU patient, Carson. Carson was originally misdiagnosed with Marfan syndrome. Amy shares Carson's and his family's journey to diagnosis with classical homocystinuria including the challenges and struggles they have faced while navigating the transition of care between two rare diseases.

During Lindsey's Low Pro Bitesss, we talk about vegetarian curry.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Carson's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

In the forty seventh episode of HC&U, we interview Melanie Colter.

Melanie is the mom of Classical HCU patient, Masen. Listen along as Melanie gives us an update on Masen's and his family's journey with a late diagnosis of HCU.

During Lindsey's Low Pro Bitesss, we talk about vegetarian Irish stew.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Masen's Story

Vegetarian Irish Stew

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

In the forty sixth episode of HC&U, we interview Alicia and Miguel Gonzalez.

Alicia and Miguel are the parents of cobalamin C patient, Andrea. Hear their story about their family's journey to diagnoses and the challenges and successes of living with cobalamin C.

During Lindsey's Low Pro Bitesss, we talk about kung pao chick peas.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Andrea's Story

Kung Pao Chick Peas

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u