『What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]』のカバーアート

What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]

What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]

無料で聴く

ポッドキャストの詳細を見る

このコンテンツについて

Bobby Glen shares his family's journey, from getting a diagnosis to participating in a clinical trial, and the importance of early screening and community support.

This is Part 1 of a two-part series about raising a child with HNRNPH2, a rare disease that affects speech and motor skills.

Part 2 will feature his wife, Nicole, who reflects on how this experience has shaped her work as a pediatrician and her views on patient advocacy and communication differences like stuttering.

If you'd like to reach out to Bobby, you can email him at glennrw@gmail.com.



Support this podcast at — https://redcircle.com/proud-stutter/exclusive-content

Advertising Inquiries: https://redcircle.com/brands

Privacy & Opt-Out: https://redcircle.com/privacy

What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]に寄せられたリスナーの声

カスタマーレビュー：以下のタブを選択することで、他のサイトのレビューをご覧になれます。

Audible.co.jp

Amazon.co.jp
レビューはまだありません。