Officially Launching in October 2025!

Welcome to The Voices of MED13L

The Voices of MED13L Podcast is brought to you by The MED13L Foundation and co-hosted by Katie Boychuck, Chair, and Vanessa Dias, Vice Chair. Both are parents of children with MED13L, and their personal journeys have set them on a path to push for research, create change for a better future, foster connection within the community, and continue the search for treatments and ultimately a cure.

In this podcast, you’ll hear:

• Updates on the latest research and therapeutic discovery
• Stories from families living with MED13L around the world
• Insights from clinicians and researchers working to unlock new possibilities

Together, Katie and Vanessa bring the voices of science, family, and community into one space — helping fuel hope for tomorrow while strengthening the bonds of today.

✨ Subscribe today and join us for The Voices of MED13L — where connection, discovery, and hope meet.

This trailer episode is hosted by Rowan Dias, a student at Deerfield Academy in the Class of 2027 and sibling of a child with MED13L Syndrome, who, with the help of a generous grant from Deerfield Academy's Center for Service and Global Citizenship, helped set up the podcast during a summer internship to expand the Foundation’s reach to families, researchers, and supporters.

Visit our website at www.med13l.org & follow us on social media @med13lfoundation

Support the show