『Talk Fragile X』のカバーアート

Talk Fragile X

Talk Fragile X

著者： Talk Fragile X
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 Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don’t know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.Talk Fragile X マネジメント マネジメント・リーダーシップ 経済学
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  • Q&A Part 1: Fragile X Treatments, Anxiety and more!

    Q&A Part 1: Fragile X Treatments, Anxiety and more!
    2025/05/08

    Tune in for our first ever Q&A episode! We’re excited to answer your questions about all things Fragile X!
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    16 分
  • Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!

    Rare Patient Voice’s Stacey joins Talk FX Host Nicole Smith!
    2025/03/23

    I’m so excited about this collab with Rare Patient Voice! Stacey and her heart for this organization is incredible. Please tune in and hear how you can get involved in rare disease studies, including Fragile X Syndrome!
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    21 分
  • The Raw Realities of Grief & More!

    The Raw Realities of Grief & More!
    2025/03/14

    Tune into a new episode of Talk Fragile X as we discuss Developmental Disabilities Awareness Month, the raw realities of grief, and so much more!
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    20 分

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