As many governments shutter and defund their Long COVID programs, Minnesota is ramping up.

In this episode of Still Here, co-host Betsy Ladyzhets talks to Kate Murray (Minnesota Dept. of Health) and Terri Wilder (#MEAction) about Minnesota’s recently launched Roadmap to address Long COVID and other post-viral conditions, and how their broad coalition led to a human-centric plan forward.

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Links Mentioned:

• Minnesota’s Statewide Roadmap to Address Long COVID and Post-Viral Chronic Conditions

• Long COVID Funding Opportunities - MN Dept. of Health

• More Resources from Minnesota: Long COVID A Post-COVID Condition - MN Dept. of Health

• www.meaction.net

• Past stories from The Sick Times on Minnesota’s Long COVID program:

• • Minnesota’s unique Long COVID program retains funding following advocacy - The Sick Times

  • Minnesota House budget proposes eliminating state Long COVID program - The Sick Times

  • $11 billion CDC funding cuts may decimate Long COVID response in several states - The Sick Times

  • Millions of Americans have Long COVID. Will Kamala Harris acknowledge them? - The Sick Times

When you’re sick, eating can be pretty miserable.

In this episode, Miles Griffis talks to writer and artist Aisha Mirza, founder of misery collective and author of misery meals: a crip community anti-cookbook for when eating and cooking is hard. Miles and Aisha discuss the book, how Aisha went from an anti-foodie to a cookbook author, and what it looks like to be in community even from the solitude of your own home.

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Links mentioned in this episode:

• Buy misery meals (worldwide shipping): https://ko-fi.com/miseryparty
• Sign up for misery's newsletter: https://miseryparty.substack.com/subscribe
• Follow misery on Instagram: https://www.instagram.com/miseryparty/
• Follow nutritionist Kaysha Thomas on Instagram: https://www.instagram.com/kayshathomas/
• Cooking is terrible by Misha Fletcher
• Depression Cooking by Sonali Menezes
• Cookbooks by Ruby Tandoh
• Research Updates
• Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug.

The U.S.'s flagship Long COVID research program has received over a billion dollars in funding and had years of input from people with the disease. But its first round of clinical trials are failing, at least in the results out so far.

In this episode of Still Here, producer Melanie Marich talks to co-host and Sick Times co-founder Betsy Ladyzhets about the initial results from the NIH’s RECOVER trials, and why those results have left many patients and advocates in the Long COVID community disappointed.

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What happens when your body and the climate break down at the same time?
In this episode, Still Here co-host Miles Griffis talks to Lorraine Boissoneault, science journalist and Sick Times contributor, about her new book, Body Weather: Notes on Chronic Illness in the Anthropocene. Lorraine shares how she came to see the links between her own chronic illness and the broader climate crisis, from barometric pressure and wildfire smoke to mold and flooding, and why she believes the crises facing chronically ill people and the planet are two sides of the same coin.
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As one of the last newsrooms still reporting on the ongoing COVID-19 pandemic, we get a lot of questions about how we track the SARS-CoV-2 virus, from whether or not to trust CDC data to how wastewater data monitoring works.

To answer those questions and assist in finding and interpreting data on COVID-19 and other pathogens, The Sick Times hosted a webinar on April 28, 2026. This episode is an abridged version of that webinar.

Still Here co-hosts Miles Griffis and Betsy Ladyzhets were joined by Caitlin Rivers, an infectious disease epidemiologist who directs the Center for Outbreak Response Innovation at Johns Hopkins and runs the popular newsletter Force of Infection; and Tea Burns, a disabled trans nurse and first aid instructor with Action Readiness Collective of NYC (ARC-NYC).

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Links Mentioned:

• Full webinar video on Youtube
• COVID-19 spreads year round. Here's how to track it.

Why is Long COVID so underreported worldwide?

Hosts Miles Griffis and Betsy Ladyzhets speak with health journalist Jamie Ducharme about why Long COVID is dramatically underreported globally, and hear from South African advocate Mlindeni Gabela about fighting for diagnosis and breaking stigma in his community.

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What can love look like when you’re disabled — and how do you write about grief when the crisis is still ongoing? In this episode of Still Here, hosts Miles Griffis and Betsy Ladyzhets sit down with poet, author, and disability justice organizer Leah Lakshmi Piepzna-Samarsinha to discuss their new poetry collection, The Way Disabled People Love Each Other.
Leah shares how the book came to be, what it means to document pandemic grief in a pandemic that never ended, and the beauty, pain, and joy of disabled love.

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In this episode of Still Here, hosts Betsy Ladyzhets and Miles Griffis talk about the latest updates from the US Department of Health and Human Services and their efforts on Long COVID, as well as the criticisms they face from members of the community.
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