As many governments shutter and defund their Long COVID programs, Minnesota is ramping up.

In this episode of Still Here, co-host Betsy Ladyzhets talks to Kate Murray (Minnesota Dept. of Health) and Terri Wilder (#MEAction) about Minnesota’s recently launched Roadmap to address Long COVID and other post-viral conditions, and how their broad coalition led to a human-centric plan forward.

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Links Mentioned:

• Minnesota’s Statewide Roadmap to Address Long COVID and Post-Viral Chronic Conditions

• Long COVID Funding Opportunities - MN Dept. of Health

• More Resources from Minnesota: Long COVID A Post-COVID Condition - MN Dept. of Health

• www.meaction.net

• Past stories from The Sick Times on Minnesota’s Long COVID program:

• • Minnesota’s unique Long COVID program retains funding following advocacy - The Sick Times

  • Minnesota House budget proposes eliminating state Long COVID program - The Sick Times

  • $11 billion CDC funding cuts may decimate Long COVID response in several states - The Sick Times

  • Millions of Americans have Long COVID. Will Kamala Harris acknowledge them? - The Sick Times

When you’re sick, eating can be pretty miserable.

In this episode, Miles Griffis talks to writer and artist Aisha Mirza, founder of misery collective and author of misery meals: a crip community anti-cookbook for when eating and cooking is hard. Miles and Aisha discuss the book, how Aisha went from an anti-foodie to a cookbook author, and what it looks like to be in community even from the solitude of your own home.

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Links mentioned in this episode:

• Buy misery meals (worldwide shipping): https://ko-fi.com/miseryparty
• Sign up for misery's newsletter: https://miseryparty.substack.com/subscribe
• Follow misery on Instagram: https://www.instagram.com/miseryparty/
• Follow nutritionist Kaysha Thomas on Instagram: https://www.instagram.com/kayshathomas/
• Cooking is terrible by Misha Fletcher
• Depression Cooking by Sonali Menezes
• Cookbooks by Ruby Tandoh
• Research Updates
• Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug.

The U.S.'s flagship Long COVID research program has received over a billion dollars in funding and had years of input from people with the disease. But its first round of clinical trials are failing, at least in the results out so far.

In this episode of Still Here, producer Melanie Marich talks to co-host and Sick Times co-founder Betsy Ladyzhets about the initial results from the NIH’s RECOVER trials, and why those results have left many patients and advocates in the Long COVID community disappointed.

Subscribe to Still Here wherever you get your podcasts, and leave us a review telling us what you think of this episode.