エピソード

  • Simply CMT Podcast Ep. 4: Laurel Richardson on life with CMT, support programs, and more!
    2025/04/01

    Living fully with CMT is both a personal journey and a professional mission for Laurel Richardson, CMTA’s Director of Community Outreach. In this episode of Simply CMT, Laurel shares how Charcot-Marie-Tooth disease (CMT) has shaped her life and how bracing helped her reclaim her quality of life.

    She also reflects on what drives her work at CMTA and how programs like Camp Footprint, local CMTA Branches, and COMPASS, CMTA’s young adult program, empower the CMT community. Laurel closes by previewing the 2025 CMTA Patient and Research Summit in Indianapolis.

    At CMTA, community is everything, and from her lived experiences with CMT to the CMTA programs she helps lead, Laurel offers a thoughtful look at how people with CMT can find support and connection through CMTA’s community programs.

    Learn more about CMT and CMTA: https://cmtausa.org/

    Follow CMTA on Social Media
    https://www.facebook.com/CMTAssociation
    https://www.instagram.com/cmtausa/
    https://www.linkedin.com/company/charcot-marie-tooth-association
    https://x.com/cmtausa

    続きを読む 一部表示
    29 分
  • Simply CMT Podcast Ep. 3: Dr. Katherine Forsey on CMT Research, CMTA-STAR, & More!
    2025/03/04

    Welcome to Episode 3 of the Simply CMT Podcast! Join us as we talk with Dr. Katherine Forsey, CMTA's Chief Research Officer. Dr. Forsey shares her journey living with CMT, the impact of CMTA’s Strategy To Accelerate Research (CMTA-STAR), CMTA's Patients as Partners in Research platform, CMTA's Patient & Research Summit, and more!

    Don't forget to like, comment, and subscribe for more empowering conversations about CMT!

    Do you have a unique story or perspective on living with or working to support those with Charcot-Marie-Tooth disease? The Simply CMT Podcast is all about simplifying CMT and amplifying voices from across the community.

    If you'd like to be a guest, contact us at marketing@cmtausa.org. We’d love to connect with you! At CMTA, Community Is Everything!

    Learn more about CMT and CMTA’s Work: https://cmtausa.org/

    Follow CMTA on Social Media
    https://www.facebook.com/CMTAssociation
    https://x.com/cmtausa
    https://www.linkedin.com/company/charcot-marie-tooth-association
    https://www.instagram.com/cmtausa/
    https://www.tiktok.com/@cmtausa

    Support CMT Research: https://www.cmtausa.org/ways-to-give/starcmta/

    続きを読む 一部表示
    40 分
  • Simply CMT Podcast Ep. 2: Jonah Berger on CMTA Youth Programs, Camp Footprint & Living with CMT
    2025/02/04

    Welcome to Episode 2 of the Simply CMT Podcast! Join us as we talk with Jonah Berger, CMTA National Youth Programs Manager and Director of Camp Footprint. Jonah shares his journey living with CMTX, the impact of CMTA’s Youth and Young Adults Programs, and how CMTA's Camp Footprint empowers kids with Charcot-Marie-Tooth disease (CMT).

    Don't forget to like, comment, and subscribe for more empowering conversations about CMT!

    Do you have a unique story or perspective on living with or working to support those with Charcot-Marie-Tooth disease? The Simply CMT Podcast is all about simplifying CMT and amplifying voices from across the community.

    If you'd like to be a guest, contact us at marketing@cmtausa.org. We’d love to connect with you!

    Learn more about CMT and CMTA’s Work: https://cmtausa.org/

    続きを読む 一部表示
    45 分
  • Episode #1: Sue Bruhn, PhD
    2025/01/03

    CMTA's Chief Executive Officer, Dr. Sue Bruhn, discusses the work of the Charcot-Marie-Tooth Association (CMTA) and the impact the organization has on the global CMT community.

    続きを読む 一部表示
    21 分