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When caregiving for someone with dementia, the most powerful support might not be what you expect. Dr. Beth Fouts, director of Utah State University's Alzheimer's Disease and Dementia Research Center, reveals transformative approaches to dementia care that benefit both caregivers and their loved ones.

What began as an unexpected passion during her college studies has evolved into groundbreaking research on caregiver support. Dr. Fouts shares how her multidisciplinary approach—drawing from psychology, healthcare, family studies, and even architecture—creates a more comprehensive understanding of dementia caregiving challenges. "Understanding the mechanism of how something works is valuable," she explains, "but what I really want to do is find ways to help this population."

The conversation dives deep into practical interventions that meet caregivers where they are. Traditional support often requires caregivers to attend in-person sessions—adding another burden to their already overwhelming responsibilities. Dr. Fouts's innovative online, self-guided therapeutic programs allow caregivers to access evidence-based support at any hour, without leaving home. These digital interventions apply Acceptance and Commitment Therapy principles, teaching caregivers to acknowledge difficult emotions while acting in alignment with their personal values.

Perhaps most moving is Dr. Fouts's perspective on finding joy amid dementia's challenges. Rather than constantly correcting a loved one with dementia, she suggests embracing their reality—much like improvisational theater. This simple shift creates genuine moments of connection and reduces unnecessary conflict. "We can't bring them back to where we are in the present moment," she notes. "Our only option is to jump in, join their reality, and go with it."

From emerging medical treatments to growing collaboration between researchers and service providers, Dr. Fouts offers hope for the future of dementia care. Whether you're caring for someone with dementia or working in healthcare, this conversation provides essential insights for navigating the dementia journey with compassion, resilience, and even moments of unexpected joy.

• Started in dementia care through work in assisted living and discovered her passion during an adult development class in college
• Transitioned from studying caregiver stress mechanisms to developing practical interventions that reach people who need support
• Founded Utah's Alzheimer's Disease and Dementia Research Center in 2022 to bridge research and community service
• Developed online self-guided Acceptance and Commitment Therapy (ACT) interventions for caregivers
• Found that the care environment significantly impacts the progression of dementia
• Emphasizes the importance of acknowledging difficult emotions while still acting in alignment with personal values
• Advocates for "joining" the reality of the person with dementia rather than correcting them
• Excited about emerging trends in Alzheimer's treatments targeting amyloid, tau, and inflammation
• Highlights growing collaboration between researchers, service providers, and policymakers

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Kristy Russell takes us on a deeply personal and professional journey through the world of Alzheimer's disease and related dementias (ADRD). As Utah's sole specialist covering the entire state, Kristy shares how her grandmother's Lewy body dementia diagnosis transformed her perspective on memory care after initially swearing off working with dementia patients due to challenging experiences.

The conversation tackles misconceptions head-on. Memory loss is just one symptom — thinking, behavior, and problem-solving abilities are equally affected. Kristy reveals a startling reality: only half of people with Alzheimer's are diagnosed, and of those, merely 30% share their diagnosis with loved ones, often fearing loss of independence.

Communication emerges as the cornerstone challenge for caregivers. Through vivid examples, Kristy explains why arguing with someone with dementia about recent events is futile. Her "filing cabinet" metaphor brilliantly illustrates how memory works — newest files disappear first — helping caregivers understand why their loved ones can't simply "try harder" to remember.

For overwhelmed caregivers, Kristy offers practical wisdom about delegation and self-care. "The energy you put out is the energy you're going to get back from the person with dementia," she notes, emphasizing that seeking help isn't failure but excellence in caregiving. She explains respite options and encourages caregivers to maintain their own health appointments and activities.

Looking forward, Kristy shares hope about new medications like aducanumab that can remove brain plaques in early stages, signaling a positive trajectory in treatment development. Her powerful closing message resonates deeply: "You're doing a good job and you're not alone."

Whether you're caring for someone with dementia, working in healthcare, or simply seeking to understand these conditions better, this episode provides invaluable insights, practical strategies, and heartfelt encouragement for the journey ahead.

• Kristy's journey from swearing off dementia care to becoming Utah's statewide ADRD specialist
• Only about half of people with Alzheimer's disease are diagnosed, and of those, only 30% share their diagnosis with family and friends
• Early diagnosis allows for better planning and less crisis management as the disease progresses
• Communication challenges require meeting people with dementia in their reality rather than constantly correcting them
• The "filing cabinet" memory metaphor explains why recent memories disappear first
• Self-care for caregivers includes delegating tasks and utilizing respite services
• New medications like aducanumab can help in early stages by removing brain plaques
• The Utah government's WISE initiative focuses on helping seniors age in place independently

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What happens when a doctor of physical therapy who swore he'd never work with older adults discovers his true calling in senior care? Matt Hansen, Executive Director of the Home Care and Hospice Association of Utah, takes us on his remarkable journey from pediatric specialist to passionate advocate for quality home-based care.

Matt reveals how his perspective dramatically shifted when he recognized the profound similarities between life's bookends—young children and seniors often share the clearest understanding of what truly matters in life. Through candid storytelling, he challenges some of our most deeply held assumptions about caring for aging loved ones, particularly the belief that families should handle everything themselves.

The conversation tackles head-on the uncomfortable reality that well-intentioned family caregiving often fundamentally changes relationships. When adult children become caregivers, they frequently stop being daughters or sons in the same way. Professional support can preserve these precious family dynamics while ensuring comprehensive care.

Perhaps most provocatively, Matt questions the inheritance mindset that prevents seniors from utilizing their life savings for quality care. "The money my parents saved is there to take care of them," he emphasizes. "The greatest inheritance they've given me isn't financial—it's values, work ethic, and love."

Looking toward the future, Matt shares his optimism about emerging technologies that promise to transform home care. From non-wearable sensors that monitor vital signs through mattresses to AI systems that streamline documentation, these innovations may help address the serious staffing and reimbursement challenges facing the industry.

For anyone considering home care for a loved one—or as a career path—this episode offers invaluable perspective. As Matt beautifully states, entering someone's home to provide care isn't just a job; it's stepping onto "sacred ground" where you might be their only advocate for maintaining independence and dignity.

• Moving from pediatrics to geriatrics after initially being reluctant to work with older adults
• The misconception that families can handle senior care alone without professional support
• How family relationships change when relatives become caregivers instead of maintaining their primary roles
• Challenging the mindset that saved money should be preserved as inheritance rather than used for quality care
• The funding challenges facing home care with Medicare Advantage plans paying significantly less than traditional Medicare
• Technology innovations making aging in place safer, including non-invasive monitoring systems and AI-assisted documentation
• Utah's surprising statistic of over 450,000 family caregivers, many who don't identify as caregivers
• The sacred responsibility of working in someone's home and serving as their advocate

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