What does it take to prevent a tragedy that many don’t even know could happen? How do we empower families and caregivers to better support those living with epilepsy? And why is awareness around SUDEP—Sudden Unexpected Death in Epilepsy—so urgently needed?

This episode of Seizure Diaries tackles these essential questions and more in a powerful and informative conversation. Hosts Kent Leyde and Doug Sheffield of Cadence Neuroscience welcome their very first guest, Tom Stanton, President of The Danny Did Foundation.

Tom shares the heartbreaking story of his nephew Danny’s passing from SUDEP—a turning point that led to the foundation’s mission to increase awareness, support families, and advocate for real change in epilepsy care.

Listeners will hear:

• Danny’s story, told by his uncle, Tom
• challenges and improvements in SUDEP awareness
• technological advances in seizure detection
• support systems for the caregiver burden
• ways to get involved and support the cause
• the importance of patient awareness
• how the Foundation is addressing critical gaps in education and communication around epilepsy, while championing both innovation and compassion

This episode sheds light on how knowledge and collaboration can save lives. Tom discusses the importance of empowering families with resources, building stronger bridges between clinicians and advocates, and ensuring that no family facing epilepsy has to navigate it alone.

More about Cadence Neuroscience:

Cadence Neuroscience is currently developing an investigational BTS [Biomarker Targeting Stimulation] device therapy for the treatment of drug-resistant focal epilepsy, based on pioneering work performed by researchers at Mayo Clinic. Learn more at cadenceneuro.com.

The Danny Did Foundation:

Learn more about The Danny Did Foundation and how to support the organization at their website: https://www.dannydid.org/about-danny-did/.

Mentioned in this episode:

AES - American Epilepsy Society

AAN - American Academy of Neurology

Dravet syndrome - Dravet Syndrome Foundation

Welcome to the very first episode of Seizure Diaries, where science meets hope in the fight against epilepsy. In this premiere conversation, listeners are introduced to the urgent and evolving world of epilepsy treatment, particularly for those who live with drug-resistant seizures.

This episode sets the stage for what’s to come—groundbreaking ideas, expert voices, and a deep commitment to changing lives through advanced neurological care.

Listeners will hear:

• the science behind neuromodulation

• real-world needs in current epilepsy treatment

• how Cadence is working to bridge gaps in treatment with new therapies

This episode provides a foundational understanding of how collaborative research and cutting-edge technology are opening new possibilities for seizure control—and why this work matters now more than ever.

More about Cadence Neuroscience:

Cadence Neuroscience is currently developing an investigational BTS [Biomarker Targeting Stimulation] device therapy for the treatment of drug-resistant focal epilepsy, based on pioneering work performed by researchers at Mayo Clinic. Learn more at cadenceneuro.com.

For those living with epilepsy, a life without seizures truly is freedom.

In this podcast, hosts Cadence Neuroscience CEO Kent Leyde and Chief Scientific Officer Doug Sheffield discuss their work toward ending epileptic seizures.

From their own innovative medical technology to other advances in the field, Kent and Doug’s conversations with guests investigate the impact epilepsy has and the work being done locally and globally to ensure every person lives a seizure-free life.