Samira and guest Chris Schuler delve into the emotional and practical challenges faced during the cancer diagnosis and treatment process. Chris shares his personal experiences as a caregiver for his father diagnosed with glioblastoma, highlighting the confusion and fear that accompany such news. The conversation explores the importance of understanding treatment options, the role of family in caregiving, and the complex emotions of grief that arise during this journey. Chris emphasizes the need for clear communication and advocacy in healthcare, as well as the disconnect between the information provided and the emotional realities faced by families.

About our Guest:

Chris is a staunch brain cancer awareness advocate. He was the primary caregiver to his late Dad, Donald Schuler, who was diagnosed with GBM in July 2021. He works closely with organizations across the globe, amplifying their critical work and building key relationships to further improve outcomes for patients.

His career has spanned almost two decades through philanthropic roles in a variety of industries including non-profit, public and private higher education, and healthcare.

He's currently working with Cure Brain Cancer Foundation, an Australian non-profit dedicated to improving outcomes in brain cancer. He's a Venture Partner with Varia Ventures, working to raise awareness for emerging venture funds dedicated to uncovering and funding innovative discoveries to improve brain health. He also works closely with SageMedic, a precision oncology start-up supporting patients looking for the most effective treatment for cancer.

Takeaways

Chris felt a sense of responsibility to support his parents after the diagnosis.

The emotional impact of a terminal diagnosis can be overwhelming.

Understanding treatment options is crucial for caregivers.

Grief can manifest differently in family members during a health crisis.

Clear communication from healthcare providers is essential.

Many caregivers feel lost in the healthcare system.

The binder provided by the hospital was not helpful for Chris or his mom.

Caregiving involves navigating complex emotions and responsibilities.

Patients and families need to advocate for themselves in medical settings.

The experience of receiving a terminal diagnosis is traumatic and disorienting.

The feeling of helplessness is a common struggle for caregivers.

Chris's mother chose not to Google her husband's condition, living in the moment instead.

Chris believes there are hidden joys in caregiving, despite the challenges.

Chapters

00:00 Introduction and Context of Caregiving

02:54 Navigating the Diagnosis Process

05:54 The Emotional Impact of a Terminal Diagnosis

08:50 Understanding Treatment Options and Next Steps

11:53 The Role of Family in Caregiving

15:07 Grief and Its Manifestations in Caregiving

17:56 The Disconnect Between Information and Understanding

25:00 Navigating Cancer: A Personal Journey

31:48 The Search for Answers: Clinical Trials and Second Opinions

39:51 The Emotional Toll: Grief, Faith, and Resilience

46:49 The Caregiver's Perspective: Finding Joy Amidst Sorrow

Connect with Us:

Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @MantaCares and visit our website at MantaCares.com for more episodes and updates.

Disclaimer:

All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Vicki McGrath, an exercise physiologist specializing in breast cancer recovery. They discuss Vicki's journey into creating exercise programs for breast cancer patients, the importance of movement and setting achievable goals during recovery, and personal stories of patients who have benefited from her programs. The conversation also covers the challenges of lymphedema, advice for newly diagnosed and metastatic patients, and the significance of functional fitness in enhancing quality of life post-treatment.

About Our Guest:

Vicki McGrath's career is a testament to her dedication to both fitness and cancer care, as well as her unwavering commitment to improving the lives of those affected by health challenges. With over 30 years of experience in fitness and wellness, Vicki has developed a deep expertise that spans a variety of populations, from individuals with special health needs to those recovering from cancer. Her extensive qualifications, including certifications from the American College of Sports Medicine (Certified Cancer Exercise Trainer, Health Fitness Director, Exercise Physiologist, and Exercise is Medicine) and her specialization in cancer exercise, position her as a highly skilled professional in the wellness community.

In 2024, Vicki's passion for cancer advocacy deepened when she joined the Board of Directors at Bay Area Cancer Connections, solidifying her leadership in the cancer support community. Her recent graduation from the Project Lead Institute through the National Breast Cancer Coalition further highlights her commitment to health promotion and cancer advocacy. This combination of experience and education allows Vicki to make a lasting impact, advocating for both cancer prevention and support while empowering individuals through her work and leadership.

Vicki's dedication to bridging fitness and cancer care continues to make a significant difference in the lives of countless individuals, demonstrating her as both a health expert and a passionate advocate for cancer support and prevention.

Takeaways:

Vicki McGrath transitioned from personal training to focus on wellness for breast cancer patients. She created exercise programs due to a lack of resources for athletes recovering from breast cancer. The program has helped over 215 women since its inception in 2011. Personal stories highlight the emotional and physical impact of exercise on recovery. Setting realistic goals is crucial for patients at different stages of treatment. Functional fitness focuses on flexibility, strength, and balance for daily activities.

Movement is essential for improving energy levels during treatment. Lymphedema management includes breathing techniques and gentle exercises. Post-treatment exercise is vital for maintaining lean body mass and overall health.

Chapters

00:00 Introduction and Background

03:08 The Journey into Breast Cancer Exercise Programs

06:09 Impact on Patients: Personal Stories

08:55 Setting Goals in Recovery11:57 Functional Fitness Explained

14:57 The Importance of Movement and Exercise

17:48 Navigating Post-Treatment Fitness20:58 Lymphedema: Understanding and Management

23:50 Advice for Newly Diagnosed Patients

27:07 Advice for Metastatic Patients

30:00 Rapid Fire Questions and Closing Thoughts

Connect with Us:

Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @MantaCares and visit our website at MantaCares.com for more episodes and updates.

Disclaimer:

All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Alyssa Wachley shares her journey as a stage three breast cancer survivor and the founder of Warriors That Pray, a jewelry line that supports cancer warriors. She discusses the emotional and spiritual challenges faced during her diagnosis, the importance of community and prayer, and how her faith evolved through adversity. Alyssa emphasizes the significance of connection and support for those battling cancer, and shares inspiring stories of how her organization has made a difference in people's lives.

Warriors That Pray website: https://www.warriorsthatpray.com/

Warriors That Pray Instagram: https://www.instagram.com/warriorsthatpray/

About Our Guest:Alyssa Wakeley | Founder of Warriors That PrayAlyssa Wakeley, with a heart for serving others, founded Warriors That Pray on the belief that every person is uniquely created with a purpose to fulfill. As a wife, mother, and devoted dog-lover, she strives to make a meaningful impact in the lives of those around her, offering encouragement and hope to those facing difficult times.

In 2020, at just 27 years old, Alyssa was diagnosed with breast cancer—a life-altering moment that could have defined her. Instead, she chose to walk through the journey with unwavering faith and a positive spirit. Refusing to let cancer steal her joy, she became a source of strength and inspiration to those around her, from family and friends to her medical team. Her resilience and deep-rooted faith carried her through the toughest moments, reminding her that she was never alone.

Now cancer-free, Alyssa is living life to the fullest and using her experience to uplift others. Out of her journey, Warriors That Pray was born—a movement designed to encourage and support those navigating their own battles. Through prayer bracelets, she offers a tangible reminder that even in the valley, God is with you… and PRAYER CHANGES THINGS.

Alyssa’s mission is clear: to spread hope, faith, and love, reminding others that no matter the challenge, they are seen, valued, and never alone. Through WTP, she continues to make a lasting impact, trusting in God's plan and using her story to bring light to those in need.

Takeaways:

You're allowed to feel that way when diagnosed with cancer.

Community support was crucial during Alyssa's treatment.

Warriors That Pray was founded to give back to cancer warriors.

Jewelry serves as a tangible reminder of support and encouragement.

Prayer played a significant role in Alyssa's healing journey.

Everyone's faith journey is unique and valid.

It's important to advocate for yourself in medical settings.

Asking for help is a strength, not a weakness.

Connection is vital for those going through tough times.

Alyssa's organization aims to bless others and foster community.

Chapters

00:00 Navigating Faith and Cancer Diagnosis

03:04 The Birth of Warriors That Pray

05:55 The Role of Prayer in Healing

08:59 Personal Growth Through Adversity

11:59 Creating Community and Connection

15:03 Rapid Fire Insights and Advice

Connect with Us:

Enjoyed this episode? Make sure to subscribe, rate, and review! Follow us on Instagram, Facebook, or Linkedin @MantaCares and visit our website at MantaCares.com for more episodes and updates.

Disclaimer:

All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only. This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Tags:

faith, cancer, prayer, community, support, healing, Warriors That Pray, personal growth, adversity, connection