『On the tip of my tongue - talking about Aphasia』のカバーアート

On the tip of my tongue - talking about Aphasia

On the tip of my tongue - talking about Aphasia

著者: Jonathan Hirons and Rob Edwards
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概要


Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:

Jonathan's Experience with Aphasia


1. Initial Incident:


In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.


2. Medical Emergency:

He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.



3. Impact on Daily Life:


- Jonathan struggled with basic tasks such as speaking, reading, and writing.
- He had memory issues, recalling only his postcode but not his full address or other personal information.
- He faced challenges in understanding spoken language but could still sign his name.


4. Support from Family:

His wife, Ann, played a crucial role in his recovery:
- She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.
- This early intervention was vital for his rehabilitation.



5. Progress Through Therapy:

With the help of speech therapy, Jonathan made significant improvements:
- He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.



6. Advocacy and Awareness:


- Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.
- He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.



Understanding Aphasia


Aphasia is a language disorder that affects communication abilities, including:
- Speaking: Difficulty in forming words or sentences.
- Understanding: Challenges in comprehending spoken or written language.
- Reading and Writing: Problems with reading text or writing coherently.



Key Takeaways


- Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life.
- Early intervention and support are crucial for recovery.
- Awareness and education about aphasia can help reduce stigma and improve support for those affected.

Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.


Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.


This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.


For permissions or inquiries, please contact hello@buffalolounge.co.uk

© 2026 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. For permissions or inquiries, please contact hello@buffalolounge.co.uk
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  • United by Words: Discovering the Living with Aphasia Conference April 18-19 2027
    2026/10/27

    Send us Fan Mail

    On the Tip of My Tongue: Living With Aphasia Conference 2027 Preview

    Guests Abi Roper and Rosemary Townsend (speech and language therapists and researchers), alongside committee members Suzie Cope and Andy Hopkins (both living with aphasia), discuss the UK “Living with Aphasia” conference, first held in 2017 and supported by the Tavistock Trust for Aphasia. The 2027 in-person conference (18–19 April, University of Warwick) is designed to be aphasia-friendly and focused on people with aphasia, with optional partner/carer guests, featuring talks by people with aphasia, practical workshops (including technology), creative and music sessions, quiet spaces, shared meals, and on-site accommodation; details and booking are at ukaphasia.org.

    00:00 Why Community Matters
    00:30 Podcast Intro and Aphasia Basics
    01:24 Meet the Conference Team
    02:50 How the Conference Began
    03:44 Living With Aphasia 2027 Overview
    04:01 Who the Conference Is For
    06:02 What Happens at the Event
    07:17 Susie on the Social Side
    08:17 Beyond Speech Numbers and Reading
    09:38 Workshops Tech Tips and Tools
    11:29 Aphasia Friendly Design and Creative Sessions
    14:06 Two Day Schedule and What to Expect
    15:02 Website Tickets and Travel Info
    16:43 Advice for First Timers
    20:07 In Person Focus and Event Highlights
    21:46 How to Contact and Book
    23:11 Final Call to Join and Resources

    For booking details

    This conference is supported financially by The Tavistock Trust for Aphasia and the British Aphasiology Society

    British Aphasiology Society
    Fostering the study of aphasia and enhancing clinical services for those affected

    Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    YouTube: https://www.youtube.com/@tipofmytonguefilm

    Linkedin: https://www.linkedin.com/in/jonathanhirons/

    Instagram: https://www.instagram.com/tipofmytonguepodcast/

    X: http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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    25 分
  • Empowering Voices: Dyscovering Aphasia Journeys
    2026/07/23

    Send us Fan Mail

    Long-Term Aphasia Support with Dyscover: Conversation Groups, Recovery, and Awareness

    Hosts Rob Edwards and Jonathan Hirons introduce their podcast follow-up to Hirons’ film on aphasia, a language impairment often caused by stroke or brain injury, affecting speaking, reading, writing, and texting; they note 350,000 people in the UK have aphasia and awareness is low. After an ad inviting sponsorships, they speak with Dyscover charity staff Julie Samuel and Caroline McDonald, plus members Sarah, Neil, and Deena. Dyscover, founded over 30 years ago, provides long-term, facilitated conversation groups (in-person and online) for about 100 members and families. The members describe their strokes and varied recovery, ongoing challenges like fatigue and noise, and how Dyscover’s patience, practice, friendships, ambassador talks, research/training roles, and activities support confidence, identity, and life participation; they discuss patchy access, funding limits, and joint awareness efforts through the Aphasia Alliance.


    00:00 Podcast Welcome

    00:30 What Is Aphasia

    01:09 Sponsor Message

    02:16 Meet Dyscover Team

    03:34 What Dyscover Does

    05:48 Members Stroke Stories

    06:20 Sarah Living With Aphasia

    08:39 Neil Recovery Journey

    11:06 Deena Progress And Challenges

    13:46 Long Term Support Gaps

    18:39 How Dyscover Helps Members

    22:05 Neil As Ambassador

    23:59 Editing Skills Return

    24:40 Back at BBC Freelance

    24:48 Deena Finds Support

    26:28 Future of Discover

    28:12 Online Groups Reach

    30:36 Government Awareness Gap

    31:24 Ambassadors Long Term Support

    36:30 Deena Cycling Story

    38:09 Closing Thanks and Resources

    Dyscover webside:

    https://dyscover.org.uk

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    YouTube: https://www.youtube.com/@tipofmytonguefilm

    Linkedin: https://www.linkedin.com/in/jonathanhirons/

    Instagram: https://www.instagram.com/tipofmytonguepodcast/

    X: http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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    40 分
  • Reimagining Creativity After Stroke with Dr. Jess Johansson
    2026/06/19

    Send us Fan Mail

    Creativity, Hope, and Life After Stroke: Supporting People with Aphasia Beyond Rehab

    Hosts Rob Edwards and Jonathan Hirons introduce their “On the Tip of My Tongue” podcast, a follow-up to Jonathan’s film about aphasia, a brain-injury condition often caused by stroke that affects language in speaking, writing, reading, and texting; they note 350,000 people in the UK have aphasia yet public awareness is low compared with Parkinson’s. Guest Dr. Jess Johansson, a senior stroke researcher at the University of Leeds/Bradford Institute of Health Research, discusses her 13 years in stroke research and a planned NIHR fellowship application to integrate creative approaches into stroke care and extend support after services end. She describes using crafts like vision boards in stroke groups to promote relaxation, hope, and meaningful activity, emphasizing neuroplasticity and recovery beyond assumed plateaus. The conversation covers fragmented care, the value of groups and social connection, inclusion of people living alone or from deprived backgrounds, shifting away from deficit-focused models, engaging GPs, and raising aphasia awareness through public-facing art exhibitions.

    00:00 Creativity After Stroke
    00:25 Podcast Intro And Aphasia
    01:22 Meet Dr Jess Johansson
    02:00 Creative Care Fellowship Plan
    03:28 Why Creativity Helps
    05:04 Whole Person Recovery
    07:16 Research With Stroke Groups
    10:12 Access And Inequality
    12:01 Living Alone And Support
    13:28 Mental Health Adjustment
    15:50 Recovery Beyond Plateau
    19:43 GPs And Deficit Model
    23:01 Raising Aphasia Awareness
    25:47 Closing Thoughts And Thanks
    26:42 Resources And Community

    http://www.linkedin.com/in/dr-jess-johansson-091923383/


    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    YouTube: https://www.youtube.com/@tipofmytonguefilm

    Linkedin: https://www.linkedin.com/in/jonathanhirons/

    Instagram: https://www.instagram.com/tipofmytonguepodcast/

    X: http://x.com/buffaloloungeuk

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

    続きを読む 一部表示
    29 分
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