『On the tip of my tongue - talking about Aphasia』のカバーアート

On the tip of my tongue - talking about Aphasia

On the tip of my tongue - talking about Aphasia

著者: Jonathan Hirons and Rob Edwards
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Jonathan Hirons's journey following his stroke and diagnosis of aphasia is both inspiring and informative. Here’s a summary of his experience and insights about aphasia:

Jonathan's Experience with Aphasia


1. Initial Incident:


In January 2019, while in a business meeting, Jonathan began to feel strange and soon realized he could not communicate effectively. His colleagues quickly called for medical help.


2. Medical Emergency:

He was rushed to University College Hospital, where scans revealed he had suffered a stroke due to a bleed on the brain. He spent five nights in the hospital and was diagnosed with aphasia.



3. Impact on Daily Life:


- Jonathan struggled with basic tasks such as speaking, reading, and writing.
- He had memory issues, recalling only his postcode but not his full address or other personal information.
- He faced challenges in understanding spoken language but could still sign his name.


4. Support from Family:

His wife, Ann, played a crucial role in his recovery:
- She encouraged him to read aloud daily and used flashcards to aid in word recognition and writing.
- This early intervention was vital for his rehabilitation.



5. Progress Through Therapy:

With the help of speech therapy, Jonathan made significant improvements:
- He regained much of his ability to read and write, although he still experiences difficulties, especially when tired.



6. Advocacy and Awareness:


- Jonathan has turned his experiences into a creative outlet by producing films, including "On the Tip of My Tongue" and "What is Aphasia?" These films aim to educate others about aphasia and its challenges.
- He actively shares his story to raise awareness about aphasia as a hidden disability and the ongoing need for support beyond initial rehabilitation.



Understanding Aphasia


Aphasia is a language disorder that affects communication abilities, including:
- Speaking: Difficulty in forming words or sentences.
- Understanding: Challenges in comprehending spoken or written language.
- Reading and Writing: Problems with reading text or writing coherently.



Key Takeaways


- Aphasia is often a result of brain damage, commonly from strokes, and can significantly impact daily life.
- Early intervention and support are crucial for recovery.
- Awareness and education about aphasia can help reduce stigma and improve support for those affected.

Jonathan's story highlights the resilience of individuals facing such challenges and the importance of community support in their recovery journey.


Copyright © 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved.


This film/video/podcast is protected by copyright law. Unauthorized reproduction, distribution, or transmission of this material is prohibited.


For permissions or inquiries, please contact hello@buffalolounge.co.uk

© 2025 Jonathan Hirons/Buffalo Lounge Studios All Rights Reserved. For permissions or inquiries, please contact hello@buffalolounge.co.uk
出世 就職活動 心理学 心理学・心の健康 社会科学 経済学 衛生・健康的な生活
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  • AI and Aphasia: Overcoming Communication Barriers - S3 Ep 8 with Jez Hodgkinson
    2025/10/22

    Send us a text

    AI and Aphasia: Overcoming Communication Barriers

    In this episode of 'On the Tip of My Tongue' podcast, Jez shares his personal journey with Aphasia following a severe stroke in 2016. He discusses the challenges he faced in communicating and how he overcame them by starting a local Aphasia support group during the COVID-19 pandemic. Jez also delves into his long-standing interest in AI, dating back to the 1980s, and explains how AI has significantly advanced in recent years. He introduces an AI-powered app he developed to assist Aphasia sufferers in recalling words more easily. The conversation highlights the potential of AI to support individuals with communication difficulties while noting the broader implications of AI technology in society.

    00:00 Introduction and Guest Background
    00:15 Overcoming Aphasia: Personal Journey
    01:28 Community Involvement and Support Groups
    03:17 Introduction to AI and Early Experiences
    05:14 Developing an AI App for Aphasia
    15:41 Practical Uses of AI in Daily Life
    22:27 Challenges and Future of AI
    25:17 Conclusion and Final Thoughts

    Say Aphasia Group Winchester and Southampton

    https://www.sayaphasia.org/winchester


    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    https://www.instagram.com/buffalolounge

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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    27 分
  • On the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale"
    2025/10/15

    Send us a text

    Transformative Power of Music Therapy with Elizabeth Nightingale

    In this podcast episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons are joined by Elizabeth Nightingale, a neurological music therapist. The discussion delves into the impactful role of music therapy across various fields, including stroke recovery, pediatrics, and palliative care. Elizabeth shares insights into the innovative programs at Chilton Music Therapy, which blend music with community outreach and online learning. The conversation also covers the specifics of music therapy for Aphasia patients, highlighting the cognitive and emotional benefits, the development of new neural pathways, and the creation of supportive communities. The episode emphasizes the nationwide accessibility of these services through online platforms, making therapeutic music interventions available even in remote and under-served areas.


    00:00 Introduction to the Podcast

    00:54 Meet the Hosts and the Topic of Aphasia

    01:49 Welcoming Elizabeth Nightingale

    02:23 Overview of Chiltern Music Therapy

    03:57 Impact of Music Therapy on Various Conditions

    05:22 The Science Behind Music Therapy

    07:23 Online Aphasia Music Therapy Groups

    09:13 Access and Participation Details

    18:23 Promoting the Online Groups

    21:24 Concluding Remarks and Resources

    For more info about Chiltern and Aphasia

    https://www.chilternmusictherapy.co.uk/stories/use-your-voice-aphasia


    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    https://www.instagram.com/buffalolounge

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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    22 分
  • International Aphasia Awareness Campaign with Claire Bennington
    2025/09/07

    Send us a text

    International Aphasia Awareness Campaign with Claire Bennington

    In this episode of 'Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons speak with Claire Bennington, chairperson of the Australian Aphasia Association and an experienced speech and language therapist. Claire shares her extensive experience working with adults with Aphasia, details her involvement with the Australian Aphasia Association since 2018, and discusses her PhD project, which focuses on co-designing a unified international Aphasia awareness campaign. The conversation covers the current fundraising initiatives, the challenges of raising awareness for Aphasia, and the ways listeners can get involved. Claire also highlights the importance of global collaboration and multi-language accessibility for the campaign materials aiming to make a significant impact on Aphasia awareness worldwide.

    00:00 Introduction to the Podcast and Guest
    01:24 Understanding Aphasia
    02:01 Claire Bennington's Background and Role
    03:47 Challenges and Activities of the Australian Aphasia Association
    06:19 Fundraising Efforts and Campaigns
    09:03 Global Aphasia Awareness Campaign
    17:29 Conclusion and How to Get Involved

    To donate to Claire's Just Giving page, click here:

    https://www.justgiving.com/campaign/qarc-uq-aphasia-awareness

    To contact Claire about the Match the Momentum: Unite for Aphasia Awareness campaign

    Claire Bennington - c.bennington@student.uq.edu.au>

    Support the show

    Support the show: Donate Now

    This podcast is funded by https://www.bas.org.uk


    To watch Jonathan’s film: https://tipofmytonguefilm.com

    http://x.com/buffaloloungeuk
    https://www.linkedin.com/in/jonathanhirons/

    https://www.instagram.com/buffalolounge

    The Tavistock Trust for Aphasia website

    http://aphasiatavistocktrust.org

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    25 分
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