
Navigating Hallucinations in Dementia: A Caregiver's Guide to Comfort
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What happens when someone you love starts seeing people who aren't there? For dementia caregivers, this moment can be jarring, confusing, and even frightening. But as I discovered during my mother's journey with dementia, these hallucinations can sometimes bring unexpected comfort.
When my mom first began seeing a little girl with red hair, I recognized she was connecting with her cousin who had died at age 11. Later, she spoke with her brother who had passed just a year before—someone we deliberately never told her had died to spare her from repeatedly experiencing that grief. Rather than correcting her, I asked questions and joined her reality. "What are they saying?" I'd ask, or "Isn't it nice they came to visit?" This approach preserved her dignity and the comfort these connections brought her.
Before assuming hallucinations are simply symptoms of advancing dementia, caregivers should consult healthcare providers to rule out urinary tract infections, medication side effects, or other physical causes. Once medical issues are addressed, the key challenge becomes how to respond compassionately. Rather than arguing about what's "real," successful approaches include validating feelings, offering reassurance, redirecting attention if needed, and making environmental modifications like improving lighting or covering mirrors that might trigger confusing reflections.
For many with dementia, seeing departed loved ones isn't frightening—it's comforting. My mother found peace in these connections, and that brought me peace too. By entering her world rather than demanding she enter mine, we created moments of genuine connection despite the progression of her illness. Perhaps the greatest lesson dementia teaches us is to be present in the moment, just as our loved ones are forced to be. Years later, I'm grateful for the times I set aside my need to correct and simply joined my mother where she was.
If you're navigating this complex journey of caregiving, know you're not alone. Sometimes the most profound gift we can give is simply meeting our loved ones in their reality, whatever that might be today.
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