『Marrow Masters』のカバーアート

Marrow Masters

Marrow Masters

著者： The National Bone Marrow Transplant Link
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 This podcast series educates patients, caregivers, and health care professionals regarding important topics as they relate to bone marrow/stem cell transplant and CAR-T Cellular Therapy. Season 17 covers AYAs and the unique ways they navigate transplantation and survivorship. Season 16 focuses on GVHD and best tips from health care professionals. Season 15 covers CAR T-Cellular Therapy while Season 14 focuses on the parts of GVHD we don’t often talk about. Season 13, takes a deep dive into many of the side effects survivors and caregivers handle post-transplant. Season 12 answers the critical question of "I'm Home, Now What?" Season 11 covers survivors who are thriving. Season 10 covers Graft Versus Host Disease (GVHD) focusing on hope and inspiration. Season 9 covers incredible tips before, during and after transplant--things folks wish they had known. Season 8 covers All Things Related to Clinical Trials. Seasons 7 and 6 focus on important topics related to Graft Versus Host Disease (GVHD). In earlier seasons, we covered all things survivorship (Season 5), the caregiver perspective (Season 4), the patient perspective (Season 3), busting marrow myths (Season 2), and chronic GVHD (Season 1). With more than 37,000 downloads today, we are so thrilled to offer these podcasts.2025 nbmtLINK 衛生・健康的な生活 身体的病い・疾患
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  • An Empathy Exercise (Bonus Episode with nbmtLINK's Jennifer Gillette)

    An Empathy Exercise (Bonus Episode with nbmtLINK's Jennifer Gillette)
    2025/09/16

    Given that Season 18 of Marrow Masters focuses on caregiving, we wanted to share an empathy exercise that the LINK's licensed staff social worker, Jennifer Gillette, performed in a recent webinar. It's impossible to know exactly what a cancer patient is going through, but through this exercise, you may get a bit of understanding. And it may help you garner some empathy for the person you are caring for.

    This season of Marrow Masters is Sponsored by Sanofi and Jazz Pharmaceuticals.

    National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.

    nbmtLINK Website: https://www.nbmtlink.org/

    nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINK

    Follow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/

    The nbmtLINK YouTube Page can be found by clicking here.

    To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd


    Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
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    12 分
  • Cancer Caregiving Close to Home: A CEO’s Story

    Cancer Caregiving Close to Home: A CEO’s Story
    2025/09/16
    In this episode, we sit down with Sally Werner, CEO of Cancer Support Community, to explore her dual perspective as a longtime oncology professional and as a caregiver to her mother-in-law. We begin with Sally’s background—first as an oncology nurse, then a healthcare administrator, and now a nonprofit leader. She calls this her “passion job,” driven by a deep commitment to support patients and caregivers alike.Sally opens up about her personal journey as a caregiver. Her mother-in-law, Patty Jo, was diagnosed with a rare renal cancer, and Sally became an essential part of her care team, despite living in a different city. As a seasoned professional, she brought clinical experience to the table, but she quickly learned that when the patient is someone you love, emotions can cloud objectivity. To manage this, she utilized Cancer Support Community’s own navigation resources to bring a neutral party into the conversation—someone who could help guide medical decisions without the weight of family emotions.Second opinions played a crucial role in Patty Jo’s care. Sally emphasized how vital they are, especially with rare cancers. In Patty Jo’s case, an aggressive surgical recommendation was replaced with immunotherapy after a second opinion—an option that ultimately preserved her quality of life and kept her active. The family’s concerns were met with clarity and reassurance, thanks to a coordinated, compassionate care approach.Caregiver support was another focal point. Sally discusses the emotional and physical toll on her father-in-law, who was the primary at-home caregiver. She stresses the importance of helping caregivers maintain their own wellbeing. Sally even moved in for a time to assist with daily tasks and give him a break, showing how essential family coordination and self-care are during intense medical periods.We also explore how to activate and manage support systems. Sally used Cancer Support Community’s My Lifeline tool to keep extended family informed and to schedule help in ways that respected Patty Jo’s wishes. This helped avoid overwhelming her while still allowing others to contribute meaningfully.Throughout the conversation, Sally returns to the theme of shared decision-making. She emphasizes that while friends and family often mean well, it’s the patient who should drive treatment choices. Tools like Open to Options allow patients to articulate values and priorities, helping align treatment with what matters most to them.We end with a look into survivorship—what it means to live well after diagnosis. For Patty Jo, this means gardening, walking, spending time with family, and learning to manage fatigue. It also means embracing life differently and more deliberately. As Sally reminds us, cancer changes everyone. But with support, compassion, and the right tools, families can find strength and even joy on the other side of diagnosis.This season is sponsored by Sanofi: https://www.sanofi.com/And Jazz Pharmaceuticals: https://www.jazzpharma.com/More:Cancer Support Community: https://www.cancersupportcommunity.orgMy Lifeline Tool: https://www.mylifeline.orgTriage Cancer Financial Resources: https://triagecancer.orgnbmtLINK Finance Guide (English): https://www.nbmtlink.org/product/finance-guide-for-bone-marrow-stem-cell-transplant/nbmtLINK Finance Guide (Spanish): https://www.nbmtlink.org/product/guia-de-financiacion-para-trasplantes-de-medula-osea-celulas-madre/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
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    25 分
  • Choosing Hope: Deb Brandt's Cancer Caregiving Journey

    Choosing Hope: Deb Brandt's Cancer Caregiving Journey
    2025/09/16
    In this episode, we talk with Deb Brandt, caregiver to her husband, JR, a survivor of Philadelphia-positive acute lymphoblastic leukemia (ALL). Deb shares the journey that began in September 2016 when JR noticed unusual symptoms that led to an urgent diagnosis. Within days, he began an aggressive chemotherapy regimen, with the hope of a bone marrow transplant as the only cure. The search for a match took seven months, eventually expanding internationally until a 10/10 donor was found, leading them to relocate to Stanford University for the procedure.We discuss the practical realities of caregiving, especially the financial side. Deb emphasizes connecting early with medical teams, social workers, nurse navigators, and financial departments. She details how they tapped into resources from organizations like the Leukemia & Lymphoma Society, utilized a GoFundMe campaign, applied for Social Security disability benefits through its "blue book" criteria, and discovered that many medical bills are negotiable. Deb highlights pharmaceutical assistance programs, including the Medicine Assistance Tool (MAT), NeedyMeds, and Triage Cancer, which help patients access affordable medication.Deb also shares the importance of proactive communication with insurance providers, especially when facing financial hardship, and leveraging housing support networks such as Ronald McDonald House and Hope Lodge when treatment requires relocation. Don't be afraid to use your personal network, too!On the emotional side, Deb describes how caregiving is deeply personal, with strategies unique to each person. She and JR found joy in music, storytelling, birdwatching, and creating comforting hospital environments. She underscores the need for caregivers to take their own breaks — whether walks, massages, or naps — and the value of long-term follow-up care, especially when complications like chronic graft-versus-host disease arise.We explore life after transplant, the strengthening of family bonds, and Deb’s practical lesson of “learning the job” by taking over JR’s household roles. Professionally, Deb works in Montana’s vocational rehabilitation department, helping people with disabilities — including those recovering from cancer — re-enter or adapt to the workforce. She shares that similar resources are available in every U.S. state.Deb’s closing message is about consciously choosing hope. She encourages caregivers and patients to find daily glimmers of light, allow space for tears, but always return to gratitude and positivity. JR is now eight years post-transplant, living with ongoing health challenges but embodying resilience and determination.This season is sponsored by Sanofi: https://www.sanofi.com/And Jazz Pharmaceuticals: https://www.jazzpharma.com/Check out JR's Survivor Story from Season 14 here: https://marrowmasters.simplecast.com/episodes/jr-brandtAdditional Resources:Leukemia & Lymphoma Society (LLS) is now Blood Cancer United: https://bloodcancerunited.org/Be The Match – https://bethematch.orgMedicine Assistance Tool (MAT) – https://medicineassistancetool.orgNeedyMeds – https://www.needymeds.orgTriage Cancer – https://triagecancer.orgRonald McDonald House Charities – https://rmhc.orgHope Lodge – https://www.cancer.org/support-programs-and-services/patient-lodging/hope-lodge.htmlVocational Rehabilitation Services Directory – Search “[Your State] vocational rehabilitation” National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
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    24 分
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