『Marrow Masters』のカバーアート

Marrow Masters

Marrow Masters

著者： The National Bone Marrow Transplant Link
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This podcast series educates patients, caregivers, and health care professionals regarding important topics as they relate to bone marrow/stem cell transplant and CAR-T Cellular Therapy. Season 21 will focus on Chronic Graft Versus Host Disease: Best Tips and Practices. Season 20 highlights survivorship issues, including GVHD, isolation and more. Season 19 focuses on thriving despite Chronic Graft vs Host Disease, or cGVHD. Season 18 focuses on the incredible know how needed for caregivers, who make transplantation possible. Season 17 covers AYAs and the unique ways they navigate transplantation and survivorship. Season 16 focuses on GVHD and best tips from health care professionals. Season 15 covers CAR T-Cellular Therapy while Season 14 focuses on the parts of GVHD we don’t often talk about. Season 13, takes a deep dive into many of the side effects survivors and caregivers handle post-transplant. Season 12 answers the critical question of "I'm Home, Now What?" Season 11 covers survivors who are thriving. Season 10 covers Graft Versus Host Disease (GVHD) focusing on hope and inspiration. Season 9 covers incredible tips before, during and after transplant--things folks wish they had known. Season 8 covers All Things Related to Clinical Trials. Seasons 7 and 6 focus on important topics related to Graft Versus Host Disease (GVHD). In earlier seasons, we covered all things survivorship (Season 5), the caregiver perspective (Season 4), the patient perspective (Season 3), busting marrow myths (Season 2), and chronic GVHD (Season 1). With more than 37,000 downloads today, we are so thrilled to offer these podcasts.2019-2026 nbmtLINK 衛生・健康的な生活 身体的病い・疾患
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  • Understanding Chronic GVHD After Transplant with Dr. Yazan Migdady

    Understanding Chronic GVHD After Transplant with Dr. Yazan Migdady
    2026/09/02
    We talk with Dr. Yazan Migdady about chronic Graft Versus Host Disease, post transplant cytopenias, and what patients and caregivers should understand about recovery after a blood or marrow transplant. Chronic GVHD develops when the donated immune system begins reacting against the patient's own cells. Dr. Migdady explains that it occurs in roughly half of transplant patients, although severe cases are much less common. When GVHD affects the bone marrow, it can interfere with the body's ability to produce healthy red blood cells, white blood cells, and platelets. Low blood counts after transplant can have several causes. GVHD itself may interfere with blood production or cause the immune system to attack blood cells. Medications used to control GVHD can also lower blood counts. Infections, poor graft function, and other transplant related complications can contribute as well. This is why regular monitoring and a thorough evaluation are so important. Dr. Migdady also explains when transfusions may be needed. Decisions are based not only on laboratory numbers but also on symptoms, bleeding risk, medications, and the patient's overall condition. Transfusions provide temporary support while the body is unable to produce enough blood cells on its own. Treatment options continue to improve. In recent years, several therapies for chronic GVHD have become available, giving clinicians more ways to individualize care. Clinical trials remain an important part of that progress and can sometimes give patients access to promising treatments years before they become widely available. Researchers are also investigating more targeted approaches for immune mediated cytopenias. The goal is to target the specific immune cells or pathways responsible rather than broadly suppressing the immune system. We also address the common idea that chronic GVHD eventually "burns out." For many patients, symptoms do improve as the immune system gradually settles down, and some can eventually stop treatment. However, this process varies considerably. GVHD can last months or years and can flare again, so patients need continued monitoring. Finally, we focus on the emotional side of recovery. Isolation is intended to protect patients while their immune systems are vulnerable, but staying connected with family and friends remains important. Caregivers should prepare for a marathon rather than a sprint, build their own support network, and take care of their own physical and emotional needs. Dr. Migdady closes by sharing several memorable patient stories that remind us that advances in transplantation are ultimately about the people behind the science. Thank you to our Season 21 Sponsors: Incyte: https://incyte.com/ Sanofi: https://www.sanofi.com/ (00:00) Intro (01:52) What Is Chronic Graft Versus Host Disease? (03:53) Can a Little GvHD Be Beneficial? (05:25) Why Blood Counts Can Stay Low After Transplant (07:50) Finding the Right GvHD Treatment (08:43) Why Clinical Trials Matter (09:58) When Are Blood Transfusions Needed? (11:58) New Therapies for Post Transplant Cytopenias (14:20) Does Chronic GvHD Eventually Burn Out? (15:56) Coping With Isolation During GvHD (17:36) Advice for Caregivers (19:43) Patient Stories That Made a Lasting Impact (22:36) Closing Thoughts National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com/ Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
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    24 分
  • Julia Oppman: Advocacy, Motherhood, and Life With Chronic GVHD

    Julia Oppman: Advocacy, Motherhood, and Life With Chronic GVHD
    2026/09/02
    Today hear from Julia Oppman, a two time acute myeloid leukemia survivor (AML)and patient advocate from Northeast Ohio. Julia shares how her cancer journey began in 2018 when she was 36 years-old and raising two young children. She initially blamed her extreme exhaustion on motherhood and work. After months of illness and repeated infections, she was diagnosed with AML. The diagnosis came unexpectedly by phone and was followed almost immediately by a 30 day hospital stay for induction chemotherapy. Julia later underwent minimal residual disease (MRD) testing. Eventually, the numbers increased and she relapsed in 2020. She was told that a bone marrow transplant was now necessary to save her life. The transplant took place during the COVID pandemic, creating additional challenges for Julia and her family. Hospital visitor restrictions led them to relocate so she could receive treatment at a hospital that allowed support people. Her husband, mother, and children became an essential part of her care during the transplant and the critical first 100 days afterward. Following transplant, Julia developed chronic Graft Versus Host Disease. She describes it as one of the most challenging parts of her experience because it can affect multiple areas of the body at different times. Her symptoms have required visits with many specialists, and she has struggled to find treatments that work for her. Insurance denials have created another barrier, especially when doctors want to consider medications that are not specifically labeled for Graft Versus Host Disease. Julia has become a strong advocate for herself and others. She sought evaluation at the National Institutes of Health (NIH) and plans to pursue additional expertise at Memorial Sloan Kettering Cancer Center in New York. She encourages patients to look for support groups, connect with others who have similar experiences, and continue searching for medical resources when existing options are not enough. One of Julia's biggest sources of purpose is her 'Share the Love' initiative. What began as Valentine's Day gifts for patients on her hospital floor has grown into an annual effort serving several hospitals, including a children's hospital. Her children now help create handmade Valentines for the packages. Julia also shares the unexpected birth of her youngest child after being told she would not be able to have more children. Through cancer, transplant, chronic GVHD, advocacy, motherhood, and giving back, she continues looking for what she calls the silver lining. Her message is clear. Life after transplant is not always simple or easy. Support often means showing up, listening, helping with every day tasks, and allowing patients to be honest about what they are experiencing. If you want to help Julia's Share The Love initiative, you can reach her at: jewelsjean@hotmail.com Thank you to our Season 21 Sponsors: Incyte: https://incyte.com/ Sanofi: https://www.sanofi.com/ Additional Resources: National Institutes of Health (NIH): https://www.nih.gov/ GVHD Alliance: https://www.gvhdalliance.org/ NeedyMeds: https://www.needymeds.org (00:00) Introduction (01:03) How Julia's cancer journey began (06:04) Relapsing during the COVID pandemic (07:18) Facing a bone marrow transplant in 2020 (08:09) Relocating the family and finding caregiver support (11:03) Creating the Share the Love Valentine's initiative (13:31) Living with chronic graft versus host disease (15:51) Resources for medication assistance (16:08) Seeking answers at NIH and Memorial Sloan Kettering (19:58) Support groups and learning from other patients (21:14) An unexpected pregnancy after transplant (23:31) Insurance barriers and financial toxicity (24:37) Putting the broken pieces of life back together (27:05) How friends can truly support patients National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not necessarily reflect the official policy or position of the nbmtLINK. Unless otherwise stated in an official policy, the nbmtLINK does not endorse any specific treatments, products, or services mentioned by the speakers. Reliance on any information provided is solely at your own risk.The Marrow Masters Podcast is produced by JAG Podcast Productions: https://jagpodcastproductions.com...
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    30 分
  • Dental Planning & Care Through the BMT Journey with Dr. Ryan Lee

    Dental Planning & Care Through the BMT Journey with Dr. Ryan Lee
    2026/09/02
    We speak with Dr. Ryan Lee of Memorial Sloan-Kettering Cancer Center about dental care before, during, and after a bone marrow or stem cell transplant. Dr. Lee is a chief dental officer, lieutenant colonel, oral oncologist, and implantologist. He explains why dental planning must consider more than the immediate transplant period. As treatments improve, many survivors are living for decades. Their teeth and gums need to support them throughout long term survivorship. Patients undergoing transplant may face weakened immunity, infection, bleeding, mouth sores, dry mouth, pain, taste changes, and difficulty chewing or swallowing. These problems can occur together and make each other worse. A mild dental issue can become a serious infection when blood counts are low. Poor oral health can also interfere with eating and maintaining proper nutrition. Dental clearance should identify teeth that must be treated before transplant and problems that can safely wait. Dr. Lee stresses that this decision is different for every patient. Dentists need to understand the type of transplant, the likelihood of Graft Versus Host Disease, current medications, and the expected long term condition of each tooth. Communication between the dental team and the hematology and oncology team is essential. A strong daily oral care routine should begin before treatment. Patients should use a medium or soft toothbrush, clean between the teeth, and consider a water flosser when regular flossing causes bleeding. Dentures, partials, crowns, bridges, and implants require careful cleaning because they can collect bacteria and fungus. Patients should also know where these restorations are located so future dental providers can give specific instructions. Saliva acidity and dry mouth should also be discussed because they can greatly increase cavity risk. During treatment, mucositis may cause painful sores throughout the mouth. Frequent water intake, nutritional drinks, and prescribed mouth rinses may make eating more manageable. Some rinses contain antimicrobial medication and lidocaine to reduce infection risk and temporarily numb the mouth. Dental procedures must be planned around blood counts and medication schedules. Invasive work may be safest shortly before the next chemotherapy or immunosuppressive treatment, when blood counts have had the most time to recover. During neutropenia, elective treatment may need to stop while the dentist focuses on controlling pain and infection. During thrombocytopenia, extractions or other procedures may need to wait because bleeding may be difficult to control. Dr. Lee recommends creating a dental timeline that separates urgent pretransplant treatment from work that can wait six, twelve, eighteen, or twenty four months. Long term survivors should build a consistent relationship with dentists and hygienists who understand their medical history. Pediatric survivors require additional support because treatment can affect developing adult teeth, tooth roots, spacing, appearance, and self confidence. The central message is that dental care is part of transplant care. Early planning, daily prevention, current blood count information, and communication between providers can protect comfort, nutrition, and quality of life for many years. Thank you to our Season 21 Sponsors: Incyte: https://incyte.com/ Sanofi: https://www.sanofi.com/ (00:00) Introduction (01:12) Why dental care matters before transplant (02:23) Common oral complications (04:12) Which dental problems need treatment first (05:38) Transplant type and graft versus host disease risk (06:45) Protecting teeth for long term survivorship (10:39) Cleaning dentures, crowns, bridges, and implants (11:51) Saliva acidity and cavity risk (12:47) Mouth sores, bleeding, and trouble eating (13:57) Managing pain and maintaining nutrition (15:28) Dental care with low blood counts (17:29) Managing dentistry during neutropenia and thrombocytopenia (23:00) Long term dental survivorship (24:48) The role of dentists and hygienists (25:46) Oral graft versus host disease and limited mouth opening (27:34) Dental health decades after transplant (28:03) Dental development in pediatric survivors National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/Check out our valued nbmtLINK resource books, some for sale, some free as downloadable, https://www.nbmtlink.org/shop/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.This content is provided for informational purposes only and is not intended to substitute for professional medical advice, diagnosis, or treatment. It is crucial to consult directly with a qualified healthcare professional regarding any medical conditions, treatment options, or other health concerns.The views and opinions expressed by the speakers are their own and do not ...
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    31 分
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