『MDA Quest Podcast』のカバーアート

MDA Quest Podcast

MDA Quest Podcast

著者： Muscular Dystrophy Association
無料で聴く

このコンテンツについて

 The official podcast for the Muscular Dystrophy Association2021 Muscular Dystrophy Association 個人的成功 社会科学 自己啓発 衛生・健康的な生活 身体的病い・疾患
エピソード
  • 56: Episode 55 - Unpacking Disability Pride: Voices from the MDA Community

    56: Episode 55 - Unpacking Disability Pride: Voices from the MDA Community
    2025/07/08
    In this Quest Podcast episode, we chat with MDA Ambassadors, Payton Rule, Fred Graves and former MDA National Ambassador Amy Shinneman. Payton shares a journey of transformation from self-doubt to pride, emphasizing how important community has been in helping her feel seen and valued. While Fred offers a perspective rooted in resilience and advocacy, discussing how he’s navigated life with a disability by focusing on his strengths and passions and reflecting on the daily decisions he makes to affirm his self-worth, despite encountering ableism or societal barriers. Amy also speaks about how her understanding of Disability Pride has grown over time, especially as she’s learned to embrace her disability as part of her identity rather than something to hide or overcome. These ambassadors share their experiences, expertise and advice when it comes to a celebration of identity, strength, and the ongoing journey toward empowered self-expression, disability pride and navigating life.

    Transcript

    Guests:

    Amy Shinneman is a disabled blogger, a columnist for the Hamilton County Reporter, and freelance writer living with Bethlem myopathy. She has had symptoms since birth but did not receive a diagnosis until she was 44 years old – thanks to genetic testing. She is the mom of two college-aged sons. She enjoys painting with acrylic and oils, cooking, baking, reading, and exercising. She also enjoys training for marathons with her husband, Jamie, who pushes her on her duo bike. They have competed in multiple marathons together.

    Connect with Amy:

    • Facebook – amy.l.shinneman
    • Instagram – @ashinneman
    Fred Graves lives with limb-girdle muscular dystrophy (LGMD) and has a passion for disability advocacy. He loves spending time with his son, and his interests include music production, drones, sneaker collecting, travel, and staying connected to his MD/LGMD “fam.”

    Connect with Fred:

    • Instagram: @kngfrd
    Payton Rule is a Clinical Psychology PhD student at Washington University in St. Louis, where her research focuses on wellbeing among individuals with disabilities. She was diagnosed with Charcot-Marie-Tooth disease (CMT) at the age of five. In her free time, Payton enjoys playing wheelchair pickleball, spending time with friends and family, and exploring local parks with her dog.

    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment & Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2, when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
    続きを読む 一部表示
    54 分
  • 55: Episode 54 - Service Dogs, Inc. - Paws with a Purpose

    55: Episode 54 - Service Dogs, Inc. - Paws with a Purpose
    2025/06/27
    In this Quest Podcast episode, we chat with a former attorney who left her law practice to devote her time to building Service Dogs, Inc. Sheri Soltes founded Service Dogs, Inc. in 1988 on the concept of using dogs rescued from animal shelters. Under her guidance, Service Dogs, Inc. has led the industry in combining the use of all rescue dogs with positive reinforcement training methodology. While offering her clients more independence and a new leash on life, she joins us to share her experiences, expertise and advice when it comes to service dogs and navigating life.

    Transcript

    Guests:

    Sheri Soltes founded Service Dogs, Inc. in 1988 on the concept of using dogs rescued from animal shelters. An honors graduate from both the University of Texas School of Law and the University of Texas Plan II Honors undergraduate program, she left her law practice to devote her time to building Service Dogs, Inc. Under her guidance, Service Dogs, Inc. has led the industry in combining the use of all rescue dogs with positive reinforcement training methodology.

    ​In 2023, Sheri served as the new Chair of Assistance Dogs International North America (ADI NA). She chaired the ADI NA Legislative and Advocacy Committee from 2018 - 2022. Her work contributed to the revisions of the Air Carrier Access Act making air travel safer for passengers traveling with legitimate Service Dogs.

    In 2022, she helped negotiate with Walmart and Etsy to stop selling Service Dog vests and other equipment to the general public.

    Sheri has mentored assistance dog programs around the world including Australia, Japan, Spain and Chile and has been a featured speaker at many conferences and institutions.

    ​Sheri’s articles on the legal rights of Assistance Dog users have been published by Assistance Dogs International, the International Association of Assistance Dog Partners and Leader Dogs for the Blind. She drafted the 1995 revisions for Texas’ Assistance Dog accessibility statute.

    ​In 2023, Austin Business Journal selected Sheri as a finalist in their Women in Business Awards and their CEO Awards. In 2022 she won an Austin American-Statesman Extraordinary Woman Award.

    Connect with Sheri:

    • Facebook: https://www.facebook.com/servicedogsinc
    • Instagram: https://www.instagram.com/servicedogsinc/
    • LinkedIn: https://www.linkedin.com/company/servicedogs/
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment & Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2, when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
    続きを読む 一部表示
    42 分
  • 54: Episode 53 - Invisible People: Making the Rare Seen

    54: Episode 53 - Invisible People: Making the Rare Seen
    2025/06/05
    In this Quest Podcast episode, we chat with a former pharmacist turned singer/songwriter who lives with Generalized Myasthenia Gravis. Dania Quill has devoted her time and expertise to create inclusive spaces for those with disabilities and deliver advice, inspire action, and make us feel closer through song while sharing stories of resilience and positivity. While offering her followers a voice and a new perspective, she joins us to share her experiences, expertise and advice when it comes to navigating life and following your dreams.

    Listen to her song “Invisible People” that MG Holistic has chosen for the 5 year Anniversary video and official MG Conference Song: https://daniaquill.com/track/4291421/invisible-people

    Transcript

    Guests:

    Daniä Quill fell in love with the guitar when she was just six years old, but coming from a family of medical practitioners she chose pharmacy as her profession. She was enjoying a successful career as a hospital pharmacist, reserving music for weekend hobby time when it all came to a screeching halt. One Halloween evening Quill fell, then fell again and couldn’t keep to her feet. “I didn’t hurt,” she recalls. “I could feel everything normally, I just couldn’t move.”

    For the next two years she saw neurologist after neurologist, some who even accused her of lying, before she was finally diagnosed with Myasthenia gravis. MG is an autoimmune neuromuscular disease that results in intermittent periods of weakness or partial paralysis of the body’s voluntary muscles. Quill’s case turned out to be refractory to standard treatment, leaving her vulnerable to exacerbations and crisis - the loss of the use of breathing muscles. And along with her MG came the rather rare complication of dysautonomia that causes episodic loss of her ability to digest food. Ironically, this resulted in the necessity for IV feeding for the IV feeding specialist pharmacist. Through all this, Quill lost her job. But more devastating to her was the weakness in her muscles that made her believe she could no longer play or sing.

    But she became determined to share her music with the world. Lacking the stamina to play long sessions she taught herself to record her songs, coaxing her muscles and voice to sustain long enough to lay down one sound bite at a time. A recent video got over 16K views on TikTok, but the proudest moment for Quill was knowing it resulted in the search for “Happy things to cheer you up.”

    Connect with Dania:

    • Website: beacons.ai/daniaquill
    • Instagram: https://www.instagram.com/dania_quill/
    • YouTube: https://www.youtube.com/@DaniaQuill
    • TikTok: https://www.tiktok.com/@daniaquill
    • Facebook: https://www.facebook.com/profile.php?id=100082825453336
    • Spotify: https://open.spotify.com/playlist/37i9dQZF1E4wquf9Gi2WL9?si=NOMIQZkGQYC0S-ndsOrt4g
    Host:

    Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment & Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, and author of the book, The Truth About Things That Suck.

    Connect with Mindy:

    • LinkedIn: https://www.linkedin.com/in/hendersonmindy/
    • Instagram: https://www.instagram.com/mindyhendersonspeaks/
    続きを読む 一部表示
    44 分

MDA Quest Podcastに寄せられたリスナーの声

カスタマーレビュー：以下のタブを選択することで、他のサイトのレビューをご覧になれます。

Audible.co.jp

Amazon.co.jp
レビューはまだありません。