• Living with Apert Syndrome: Xavier's Story

  • 2025/04/30
  • 再生時間： 1 時間 6 分
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Living with Apert Syndrome: Xavier's Story

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  • In 2019, Katy Martins welcomed her fourth child, a son named Xavier. Shortly after his birth, Xavier was diagnosed with Apert Syndrome—a rare genetic condition that affects approximately 1 in every 65,000 to 88,000 live births. Today, Katy sits down with Tahnee to share their family’s journey. Tune in as we explore what Apert Syndrome is, how it affects those who live with it, and the strength and resilience behind their story.

    https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/apert-syndrome/
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あらすじ・解説

In 2019, Katy Martins welcomed her fourth child, a son named Xavier. Shortly after his birth, Xavier was diagnosed with Apert Syndrome—a rare genetic condition that affects approximately 1 in every 65,000 to 88,000 live births. Today, Katy sits down with Tahnee to share their family’s journey. Tune in as we explore what Apert Syndrome is, how it affects those who live with it, and the strength and resilience behind their story.

https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/apert-syndrome/
続きを読む 一部表示

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