エピソード

  • A Conversation with Dr Gish - A Global Leader in Liver Health
    2026/08/31

    In this special PBC Awareness Month episode of *Living My Best Liver Life*, Livie welcomes Dr. Robert G. Gish, a leading expert in liver disease, transplant medicine, research, and global liver health policy, for an honest and informative conversation about primary biliary cholangitis, or PBC.


    Together, they break down what PBC is, why it can be difficult to diagnose, and what patients and families should know about liver enzymes, AMA testing, biopsies, risk factors, symptoms, and disease progression. Dr. Gish also shares insight into associated conditions such as thyroid disease, dry eyes and dry mouth, osteoporosis, celiac disease, vitamin deficiencies, fatty liver disease, and the importance of regular follow-up care.


    This episode also explores the real-life challenges many patients face, including fatigue, itching, sleep disruption, brain fog, lifestyle changes, vaccines, nutrition, movement, and the emotional side of living with a chronic autoimmune liver disease. Livie and Dr. Gish discuss the importance of patient advocacy, knowing your body, asking questions, and partnering with healthcare providers to create an individualized care plan.


    Whether you are newly diagnosed, still searching for answers, supporting someone you love, or simply wanting to better understand PBC, this conversation offers education, encouragement, and hope. You are not alone on this liver life journey.

    LivingMyBestLiverLifewithLivieWells.com for PBC Merch PoP up shop. Mentioned during the conversation - Global PBC Foundation based in Edinburgh .


    Friends of the PBC Foundation


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    46 分
  • From Ventilators to Viral Awareness: A Respiratory Therapist’s PBC Journey
    2026/08/23

    Season 1, Episode 3 features Danielle, a respiratory therapist and PBC patient who shares her diagnosis journey, challenges managing multiple autoimmune conditions (including Sjogren's and MCAS), and the impact of working through the COVID pandemic. She discusses treatments, symptom management, lifestyle adjustments, and the emotional effects of chronic illness.

    Danielle also highlights her advocacy work as president of Friends of the PBC Foundation, the importance of patient communities, and practical strategies for navigating care and preserving mental health while living with PBC.

    * I would like to make a correction, please note that DAnielle has one very sweet, smart and talented cat named Juniper Peaches (JP) Yes, I did say that JP plays video games!

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    39 分
  • From Misdiagnosis to Strength- Jackie’s Story of Living with PBC and Fibromyalgia
    2026/08/12

    In this episode of Living My Best Liver Life, host and guest Jackie discuss her diagnosis with primary biliary cholangitis (PBC), the long road to correct diagnosis, and the added challenge of fibromyalgia. Jackie shares how she manages fatigue, treatment struggles, lifestyle changes, and caring for her family— including her daughter’s recent health issues and gluten sensitivity. The conversation focuses on resilience, practical strategies, and the importance of support and self-compassion. I am not a medical doctor. My guest is not a medical doctor. We are sharing our stories, experiences and advice. Please seek medical advice, testing and treatments from your medical doctor or specialist. If you are experiencing a medical emergency please dial 911 on your phone. 
If you are experiencing a mental health emergency please dial 988 on your phone. You can also text HOME to 741741 for the crisis text line in the US which is a free confidential service. 

 Please know you are loved, you are not alone, and I am here with you.

    
Xo Livie

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    52 分
  • Advocacy for PBC- A Rare Autoimmune Liver Disease
    2026/08/12

    I’m excited and a little nervous to share this episode one of “Living My Best Liver Life”. In this first episode, I share the story behind the podcast, my journey through chronic illness and liver disease. I also share why advocacy matters so much to me.

    My hope is that this podcast becomes a supportive space for patients, caregivers, advocates, anyone looking for encouragement.

    I’d love for you to listen, subscribe and send me your

    “Itch or Bliss” for future episodes.

    What’s a “Itch or Bliss” you say?

    Tune in now and you’ll find out!

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    16 分