Dylan Lombard on Living with MDP Syndrome, Advocacy and Photography

In this episode of Life With a Difference, I speak with Dylan Lombard, one of only a handful of people in the world diagnosed with MDP syndrome. Dylan opens up about life with a rare condition, his journey to diagnosis, and how photography and social media helped him find purpose and community.

We talk about everything from representation, visibility and advocacy, to living with autism, navigating school, and becoming a powerful voice online. Dylan also shares how a viral Lady Gaga TikTok changed everything and how his passion for photography helps him process isolation and tell his story in a powerful way.

This is a heartfelt, eye-opening conversation you won’t want to miss.

📸 Follow Dylan on social media: https://www.tiktok.com/@be_yourself_dylan
https://www.instagram.com/be_yourself_dylan

This was recorded before I was aware of Tom Staniford's incredible fund raising project, please see the details below:
https://www.justgiving.com/crowdfunding/goodbye-legs

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#MDPSyndrome #RareDiseaseAwareness #VisibleDifference #LifeWithADifference #DisabilityAdvocate #DylanLombard #PhotographyAsTherapy #AutismAwareness #ChangingFaces #RepresentationMatters

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Please get in touch if I can help in any way

Blog:
https://www.lifewithadifference.info/