I started eating again in 2024. After 11 years not eating a crumb of food or even drinking a drop of water. I got all fluids and nutrition from tubes inserted into my body. For 11 years.

In 2025 I have another big improvement to announce.

I have started ‼️ TALKING ‼️ again after 12 years of not saying a word to anyone!

What will 2026 bring❓

✏️ My ME/CFS Blog

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…every single researcher at Ron’s recent Working Group Meeting - every researcher there said they don’t care if they are the ones to discover the cure for ME/CFS, they just want a cure to be found to end our suffering. That is unheard of in scientific research or in any field of study - even in the arts…one thing to be grateful for today…

✏️ My ME/CFS Blog

❓What is ME/CFS?

👤 My Story

📄 ME/CFS Resources

🙏 Donate to ME/CFS Research

🖼️ My Print Store

My Jtube broke finally and I have to go to the hospital tomorrow and I’m feeling stressed...It is so hard seeing the real world and really feeling it and then coming back to my room and closing all the doors…The spontaneity that healthy people show so clearly is at once a refreshing reminder of what life is supposed to be like, but also a shocking and profoundly sad reminder of what my life is like…

✏️ My ME/CFS Blog

❓What is ME/CFS?

👤 My Story

📄 ME/CFS Resources

🙏 Donate to ME/CFS Research

🖼️ My Print Store