Lupus Does not Define Us, It Refines our Strength
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Lupus Does not Define Us, It Refines our Strength
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Lupus presents unique challenges across different healthcare systems, with financial barriers in Nigeria contrasting sharply with workplace stigma issues in the UK. This powerful conversation reveals the physical, emotional and social impacts of living with an invisible illness.
• Lupus mimics other conditions with symptoms including sunlight sensitivity, joint pain, hair loss and the characteristic butterfly rash
• Different types of lupus exist, including discoid lupus, systemic lupus, and forms affecting children
• Diagnosis in Nigeria can cost upwards of 400,000 naira with severe shortage of rheumatologists
• Workplace accommodations in the UK like hybrid working and flexible schedules can make significant difference
• Invisible nature of lupus leads to harmful misconceptions with people often hearing "you don't look sick"
• Cultural and religious attitudes create additional barriers to seeking proper treatment
• Family support plays crucial role in managing lupus, with relatives' understanding significantly impacting wellbeing
• Finding joy through activities like dancing, photography, and laughter helps with mental resilience
• Mindset and acceptance of the condition allows adaptation and finding new ways to contribute despite limitations
If you're struggling with lupus or another chronic condition, connect with support communities like Mebuvi Lupus Foundation in Nigeria or Lupus UK. Visit www.asebconsultancy.com for mental health support or to book a free 15-minute consultation.
For more information about Lupus Foundation, use th link below
https://www.instagram.com/mablevilupusfoundation/profilecard/?igsh=dmc1aTB3MjVwM2dm
https://www.facebook.com/share/1AcjXzGHQW/?mibextid=wwXIfr
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https://www.linkedin.com/in/mablevi-lupus-foundation-4b7408365?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=ios_app
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