エピソード

  • BC Millions Missing protest May 10th 2025

    BC Millions Missing protest May 10th 2025
    2025/05/10
    In today's episode I talk about despair. But also by its very nature I also talk about hope. Because that's how I navigate it I also talk about today's ME awareness month protest that happened in downtown Vancouver both in person and virtually hosted by BC millions missing. I sent along a speech that somebody else read out for me. Which was a brilliant accessibility option Millions missing BC Facebook where they will have the live feed of today's protest that includes my speech. I'll also include a transcript below. Not that it's as good as I would have liked it to have been but it was all that my brain could pull together. When I was listening to it I thought oh poop I should have explained more about how deterioration always cost the system more. But brain fog is brain fog https://www.facebook.com/share/14GyEqX6Ucy/ The petition https://bit.ly/Marcia_petition The GoFundMe where I'll put the pictures I talk about in the episode https://gofund.me/6d981312 May 10th 2025 millions missing speech transcript was too long. The description section of the Spotify for podcasters wouldn't let me include it. here's a link to a Google doc https://docs.google.com/document/d/1LturGCnDTnfB_Ah7Ic-sxxp0jz6A3w1U-czWk6vkGBE/edit?usp=drivesdk
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    14 分
  • BLOSSOM HUNT to cheer me (and hopefully you) after residential tenancy board hearing

    BLOSSOM HUNT to cheer me (and hopefully you) after residential tenancy board hearing
    2025/04/04
    Air quality/residential tenancy board hearing today update. Blossoms are helping me stay positive so I thought you might like to see some as well. I'm too tired to really have gone out to seen them but I'm too stressed to have not gone out to find some blossoms to cheer me up 1,203 worldwide petition signatures now! Every share helps! https://bit.ly/Marcia_petition GfM$only for sure last until April https://gofund.me/6d981312 If you know of any news sources at local in Canada or international journalists or of any larger bloggers or vloggers or social media *influencers*(whatever that means lol. basically folks with a larger amount of people paying attention to what they're talking about) anywhere in the world as the petition is signable worldwide, who you think would be interested in my story and in sharing the petition please let me know various ways to reach me Twitter @IamMadelinePOD https://x.com/IamMADELINEpod?t=N1PxUmXwOMf_3ccRl44Z6g&s=09 Instagram @Madelinenerdfighter https://www.instagram.com/madelinenerdfighter?igsh=MW91aXY0MHRtaHprNg== Facebook @Madelinenerdfighter https://www.facebook.com/share/1AVQA39L9m/ Blue sky https://bsky.app/profile/madelinenerd.bsky.social YouTube @IamMadelinePOD https://youtube.com/@iammadelinepod?si=2Ls-cozjNfkurCFD Gofundme link above (You can send messages and leave comments) And obviously you can leave comments here on the podcast episodes #canpoli #disability #MyalgicE #MECFS #MEAction #Canada #bcpoli
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    25 分
  • Cherry Blossoms Vs Torture Feels

    Cherry Blossoms Vs Torture Feels
    2025/03/30
    Prospect of running out of #GoFundMe $ soon is freaking me out. Esp as bad air situation in my apt has been devouring energy so I can't focus on petition or gfm properly. Residential tenancy board hearing Thurs(1:00 p.m. PST if you want to send positive energy), but even if they rule in my favor how long does it take to fix the bad air? I feel tortured Petition definitely still open for signers and definitely international signatures welcome https://bit.ly/Marcia_petition If you can share or donate to the gfm That would be amazing https://gofund.me/6d981312 Hard pressed to find a way to cheer myself up. But I'm still trying. Latest cherry blossoms seen coming home from treatment #MyalgicEncephalomyelitis #longcovid #nerdfighters #britishcolumbia #canpoli #MyalgicE #pwME #MECFS #pots #fibromyalgia #MEAction #disability #pwd #pwdassistance #derb #immunedeficiency #Canada #Canadian #genderbias #medicalbias #healthcare #humanrights #epsteinbarrvirus #bcpoli
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    10 分
  • Double Rainbow

    Double Rainbow
    2025/03/05
    I was originally going to call this episode hell, cuz it woke up this morning thinking maybe I'm actually in hell. But then things took a bit of a turn as I was recording which you will hear. an update on air quality issues, speaking to my MLA's office, running out of money in April, and trying to navigate getting the bad air in my apartment situation dealt with and the ongoing a horror of surviving on a GoFundMe and I'm back to month to month again. No donations for 2 months so if you can share or donate to the GoFundMe that will be amazing https://gofund.me/6d981312 and the petition is the ongoing need in regards to signatures. worldwide signatories greatfully accepted. I don't think anything changes until international pressure forces Canada and British Columbia to do so. https://bit.ly/Marcia_petition
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    6 分
  • Air Quality Saga worsens (directly relates to previous episode)

    Air Quality Saga worsens (directly relates to previous episode)
    2025/02/20
    a continuation of the previous episode with an unexpected need to update that arrived at 8:30 in this evening in the forum of a wildly inappropriate timed visit by my property portfolio manager dropping off a document that should have been sent to my advocate. so bizarre. bad just keeps getting worse
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    8 分
  • Paradox

    Paradox
    2025/02/20
    where I talk about the paradox of needing my story to be told by legacy Media and the health compromise that that will represent which is worsened by the air quality issues in my BC housing apartment. also the paradox with the air quality in my apt where I needed the air quality be bad but the paradox of that it makes me super sick and could fatally capsize me especially as I had to close the windows and doors turn off the air purifiers and the kitchen and bathroom fans to try to let the air get bad. do have a listen for the episode right after this one which is a direct follow-up the air quality issues becoming a worse crazy train than they were. but I didn't have brain power to try to connect the two pieces of audio. that's a surprisingly complicated production number to do now that Spotify for podcasters has removed its own internal recording
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    20 分
  • Over 1,000 Signatures On Petition!

    Over 1,000 Signatures On Petition!
    2025/02/01
    1,154 signatures now! Every share helps! https://bit.ly/Marcia_petition every signature helps! International and across Canada signatures definitely welcome! if you want to help me you directly can find me on FB and Instagram @Madelinenerdfighter, on YouTube and Twitter @iammadelinepod Video I did for journalists relating to the petition (Link in petition) https://youtu.be/KIT1S7sTl4A?si=21WjZwpW6uF0yyhv Did detailed update about #petition, bad apt air & how I am physically & emotionally navigating & not navigating these things in the update section (link in bio) https://gofund.me/6d981312 Medical articles I reference in this episode MS multiple sclerosis Epstein-Barr inside b cells https://www.nature.com/articles/s41564-024-01699-6 Long covid paxlovid effects https://www.nature.com/articles/s43856-024-00668-8?fbclid=PAY2xjawH2PH9leHRuA2FlbQIxMAABpow7bc4B3V5dxqcn7ftyw1Fk7PXKK18cueta2TsV2YhO4Dv5vst3ixiLxw_aem_5KBX8dXR1tMid_bS0aNM8Q#Ack1 New York times article about it as well https://www.nytimes.com/2025/01/06/health/paxlovid-long-covid.html?unlocked_article_code=1.nE4.m48T.vJbrmhSp77Wi&smid=nytcore-ios-share&referringSource=articleShare I think this is the spironolactone(tired brain is tired) Epstein-Barr study https://onlinelibrary.wiley.com/doi/10.1111/imj.23_15766 #MyalgicEncephalomyelitis #healthcare #canpoli #disability #MyalgicE #pwME #MECFS #MEAction #Canada #bcpoli
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    23 分
  • petition related pain/energy crash (YouTube audio)

    petition related pain/energy crash (YouTube audio)
    2025/01/06
    this is the audio from a Recent YouTube I made https://youtu.be/NNjcNI9y2l8?si=Yf9V3G-o2SHRYy5C Important links you can share: Petition(International and across Canada signatures encouraged and welcomed!) https://bit.ly/Marcia_petition Canary UK article https://x.com/TheCanaryUK/status/1870202754200940686?t=kEDZ1y5rkulir29j8zdlEg&s=19 https://www.thecanary.co/global/world-analysis/2024/12/20/marcia-mecfs-canada/ Petition YouTube https://youtu.be/KIT1S7sTl4A?si=hBdcaHGUCi6Vu1zl Journalist YouTube related to petition goes with press release https://youtu.be/KIT1S7sTl4A?si=21WjZwpW6uF0yyhv Meactionnet Twitter post of petition https://x.com/MEActNet/status/1869092831513673850?t=6500TLTtNYiH5QopmdJJZw&s=19 #CANpoli #disability #MyalgicE #pwME #MECFS #bcpoli #longviral
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    7 分