In this deeply moving conversation, Glenda shares her 11-year-old son’s journey with two brain cysts—a pineal gland cyst (~1.3 cm) and a cavum septum pellucidum (CSP) cyst (~6.2 cm)—and the uphill battle to be heard. Despite multiple MRIs and escalating neurological symptoms (vision loss/“upside-down” vision, severe headaches, anisocoria, behavioral episodes, leg tremors, learning and auditory processing challenges), several providers dismissed a cyst-symptom connection. Michael and Kelly reflect on their own experience, discuss hope, advocacy, and options, and encourage next steps with specialists who take symptomatic pineal cysts seriously.

Content note: pediatric medical distress, dismissal by providers.

If this episode resonates, share it with another family, leave a review, and visit pinealstories.com to submit your storyand find resources. Your voice helps shift the medical conversation.

💡 Resources & Links:

• Visit our website: pinealstories.com
• Learn more about pineal cyst symptoms and advocacy
• Share your story or contact us: pineal.stories@gmail.com

🎵 Credits:

Music: "What I Waited For" by Kikoru – Licensed via Epidemic Sound

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