• The Missing Piece in Radiated Dysphagia Care.
    2025/07/08

    This post is not for eveyone, it’s for the Speechies, Dietitians and those wanting a pathway to transition off their PEG back to oral eating (and beyond) - it is the system I created that enabled me to hike internationally from unfamiliar menus in foreign countries.

    It’s how I did it and what I did to reduce the overwhelm of the process.

    House Keeping: I have been having quite a few one on one SLP meetings and Podcast interviews of late.

    It prompted this more “organised” process, aka - Book a call with me (see calendar link below) ☎️

    Ever felt like you're doing all the right things clinically, but your dysphagia patients are still stuck in limbo between recommendations and reality?

    You're not alone.

    That gap, the one between clinical advice and actual eating is exactly why I created the Mind Food Body program.

    It’s a clear, flexible, five-module framework to help your patients move from PEG tubes to oral eating safely, confidently, and realistically.

    (And yes, caregivers love it too.)

    In this week’s YouTube video, I break down:

    * Why this program needed to exist

    * How it blends clinical knowledge with lived experience

    * How you can use it to bridge the gap between hospital discharge and actual mealtimes

    Whether you’re a speechie, dietitian, or just tired of handing out plans that never stick, this might be the resource you've been looking for.

    Watch video

    If it resonates and you want to know how it could fit your clinical work, let’s chat.

    Book a free 30-min call with me here →

    Book a Chat

    Let’s rebuild eating confidence, together.

    Eat Well.



    This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit yvonnemcclaren.substack.com/subscribe
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    15 分
  • Welcome to GAG.| eating life
    2025/02/04

    If cancer gave me anything it was a hot cup of tea and a good talking to.

    I wanted to read stories from people who had a clue.

    I wanted to get some sort of idea about what it was I was going through and what others had experienced.

    I didn’t want to get unsolicited advice from a thousand people on social media about the dodgy looking ulcer on their tongue.

    Not helpful, non of it.

    …and so GAG.| eating life was born.

    This is a documented life journal told in story format of my setbacks and comebacks after surviving head and neck cancer.

    Now I am a writer and international hiker.

    A story teller and still, after everything a foodie at heart.

    May it provide the inspiration and clarity you need.

    Eat Well.



    This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit yvonnemcclaren.substack.com/subscribe
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    5 分
  • Survivorship is a big battle too.
    2025/01/22

    Wow survivorship. The second battle - I didn’t see it coming.

    There are people who actually do their PhD’s in this so I’ll leave the details to them.

    I guess the nuance of what I write is now based on “survivorship” and as I have documented my journey from day 1 - it’s becomes a useful resource, for not only me but those that unfortunately are coming up the rear of which there are many.

    This next stage is where I need your help. Your thoughts, comments and ideas publicly written if possible, that way it doesn’t just become because “I said”.

    You know what I mean, so if you can make a comment here on Substack, Linkedin, social media or even just send me an email - and being comfortable with me using your words in the public arena is all super helpful.

    Please share this publication - it helps get the message out there …

    Becoming a paid subscriber also super helpful. 😉

    GAG.| eating life is a reader-supported publication. To receive new posts and support my work, consider becoming a free or paid subscriber.

    Eat Well.



    This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit yvonnemcclaren.substack.com/subscribe
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    5 分
  • For the love of all things spicy.
    2024/12/23
    I still, very occasionally, get gifts from unsuspecting givers. Two such items arrived this past week via a flustered delivery driver.I know both givers, one quite well the other I have spoken only via the telephone and only ever on a professional footing. The trouble I face is I look as though not much has happened to me, although if you peer closely you can see the tell tale signs of radiotherapy, the neck dissection, that ever so slightly drawn look only head and neck cancer patients have, that sort of landed fish look. Crooked teeth (my once prized possession unbanded) so unless you listen oh so carefully to my speech, or happen to be in the sneeze zone of sharing a meal, you’d likely not know what I have been through. So you can forgive the uninitiated when they send you a full box of Charlesworth mixed nuts as a Christmas thank you gift. I know, I know it’s the thought that counts, but I am (and say this with hand on heart) really surprised anyone gifts food of any description in this day and age when every second person seems to have allergies to gluten, peanuts, avocado, fruit, vegetables, Mariah Carey you name it. Don’t get me started on school canteens and the fact that one is allergic to peanuts we all are allergic to peanuts rhetoric. I think the giving of food to anyone in the head and neck space is a very bold move. I recall back when I was still navigating my PEG and trying to work out how to actually eat real food when someone (who absolutely should have known better) presented me with a bottle of sweet dessert sauce. My guess in their thinking was “it’s a sauce” “it has no bits” - “it’s … add in the reasoning and the seasoning”. I opened it with trepidation and sure enough, whatever was in it made my sinuses swell up and burn my mouth and throat to within an inch of its life. That bottle stayed open in my fridge for the next 18 months and only then I could manage to consume it. Anything that lasts that long (I don’t do expiration dates - Brie, Camembert, Mariah Carey point in case, are always better after their due date) I am always dubious about, but when you can’t eat or swallow a thing you tend to ignore the obvious red flags.Here’s a list of what I think is pretty safe in the head and neck cancer gift giving space. * A cotton Japanese Handkerchief (male or female) those things are big beautiful and soft and make excellent stylish wipes.* Vitamin E Laden moisturiser / cream with aloe vera - I use Tri -Natural Products * An enriched lip moisturiser with SPF 50 - great for those small spots in the corner of your mouth (angular cheilitis) * A Spotify / Audible audio subscription * A meditation app like - WAKE UP/Head Space * Scented Candle* A linen tea towel - a nice one that grown ups have* Buff (head cover - for sensitive ears) * An experience - insert zoo / museum / game to attend / race track / lap around a circuit * A travel gift card (that might be a me thing 😉)* Warm gloves (again male / female) * A tray of mangoes if you feel the need to do food or insert “avocado “ pending the point above * A good water bottle or drinking vessel with the correct opening for drinkingAnyway you get my drift. A quick list off the top of my head to get you thinking.I arrived home after 6 weeks walking to two very fat cats, but otherwise a very dishevelled house. My favourite Japanese lacquered spoon (gone), my Nutrifleur toothpaste (all used), pots, pans and lids just shoved wherever and not in sets. Mouldy towels, unwashed dishes, a dead garden - shall I go on? Still, the cats were happy.The one thing that they did leave for me was a huge (and likely very expensive) food hamper, the contents of which I could not eat… none of it - I could just manage the Pukka caffeine free tea bags. It contained the following items :- * Bag of mixed nuts - No* Tin of Cadbury Favourites (Chocolates for my non Aussie readers) - No ( FYI - cheap chocolate burns like the all get out and is in no way pleasant to consume) if you are a Chocolate person I do eat dark Haighs at 70% cocoa but that’s taken me years to get to that point and even then it is hit and miss. * Some slab of indescribable salted Caramel Rocky Road - No * Chocolate dipped Almonds - Double No * Trail Mix - for the love of all things spicy - NoI would have prefered they put the money toward a house cleaner, there you go, what an idea, maybe a gift certificate of a clean house.My point is - know thy market, dont think because its soft, runny, smooth it will work - it likely won’t unless you know the person really really well. Because a gift received that completely alienates you as a human is not fulfilling its intended purpose. You can forgive those that simply don’t know, but when something is explained in agonising detail and still ignored, you have to question the sincerity of the trail mix. Eat Well.Enjoy this post ? You can share it and help more people and caregivers … thanks 💜 This is a public ...
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    7 分
  • Adapting to Spain's culinary landscape with dysphagia.
    2024/09/12
    My Google Translated Elevator Pitch … Side effects of head and neck cancer treatment means I have trouble swallowing food & drink.It’s happening.I am about to navigate 6 weeks of eating on the hoof, away from my kitchen and most importantly, away from my country of origin. I am travelling half way around the world to walk across the Pyrenees and Spain. The Camino Frances I have experience of course, two previous Caminos under my belt, my very first Camino hand selected based on the food alone. The Portuguese Coastal way, think soft fleshed fish, BBQ vegetables and soup instead of crusty bread, cheese and meat, like ham & bacon. The perfect bacon I had all but given up on, presented itself on the buffet at the hotel I first stayed in Porto. Unlike failed attempts to eat “bacon” in Australia, it was soft, flavourful and seem to disintegrate on impact. I put it down to the pig, the way it was raised, my attempts in Australia was akin to chewing shards of glass, little joy in any of that. That was the plan, it worked well and I ate fish soup, a lot of garlic bread and plenty of beautiful fresh fish with steamed potato and sometimes mayonnaise. I had a lot of stunning coffee (cafe branco) and pastries filled with sweet custards dusted with icing sugar. I consumed tuna and fish pastries and quite unexpectedly I did not choke, sneeze or gag much, if at all. The pastries had enough fat to slide and if and when they caught, I had coffee and or water on hand. Stunning pocket sized morsels that kept me going kilometre after gruelling kilometre.I chose the Portuguese coastal way as my first Camino for no other reason than my expectation of the food on offer. It turned out that I could manage quite a variety of food, including some breads, some cold meats and definitely the beer and the Portuguese wine - mental note to self, don’t talk yourself into not being able to eat something. I talk about the food here to some length in takes you to my You Tube channel.Eating in Portugal go to time stamp 3 mins where I speak directly to thoughts as to why I could manage something like bacon in Portugal but as to why it varied between establishments. I also love the ocean and the two combined made an ideal active holiday for me. The first one since head and neck cancer treatment and my first in Europe. I spent the majority and most of my adult life in Australia and South East Asia, so to experience Europe in Portugal whilst walking a spiritual path was the perfect introduction for me. In Portugal I noticed olive oil was served with most things, little acoutrement packages of oil, mayonnaise, mustard, sauce - every where I went that meant I could add a little moisture to food that I sampled. I was surprised with what I could manage and as my confidence grew walking, so did my food repertoire. The only meal I had which caused me some problems was smoked salmon and avocado in Lisbon. I carefully selected what I thought I could manage off the menu but it came smothered in a seeds and the avocado was too unripe for me to manage. I couldn’t chew it, break it down nor swallow it easily, it also came with lettuce and we all know how that turns out.I went hungry that night and there was no kettle in my room so I couldn’t prepare a cup of soup or a cup of tea. Be aware, Spain and Portugal don’t as a rule have kettles in rooms so preparing soup in a cup or noodles when desperate was not possible. Spain - what’s next. I am excited and filled with anticipation as to how Spain will unfold. I am only in France for a few days and I suspect that will be a different culinary experience again. My first two Caminos gave me an enormous amount of food confidence, food confidence I had not realised had been eroded from many months of Peg tube feeding, my relationship with food had changed dramatically and the process of walking and eating became symbiotic and the process to which my new life began.I don’t panic about what I can eat, I know that there will always be something I can manage even if I can’t communicate internal radiated fibroids in Portuguese or Spanish but what I can say is this …Los efectos secundarios del tratamiento del cáncer de cabeza y cuello significan que tengo problemas para tragar alimentos y bebidas. Translated means Side effects of head and neck cancer treatment means I have trouble swallowing food & drink.What Spain will provide is part of my food learning journey, I will not pack any additional preconceived food fears, I will pack healthy optimism and the knowledge that I must try to eat at least 3000 calories a day to compensate the 25-30 kms of walking. I know there is considerable amounts of meat available and often selecting any vegetarian options are just easier from a dental hygiene (ORN) and time perspective (eating with others). I have lost weight on previous Caminos and chocolate, Portuguese custard tarts (Pastel de nata) and wine became a staple in my daily eating and main calories (...
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    1分未満
  • Grace.
    2024/08/10



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    1 分
  • Eating in public.
    2024/07/24

    I don’t often eat ice cream anymore, I find the melt point a little bit difficult to manage, back when I first had treatment for Oropharyngeal stage four cancer, the ice cream use to burn my throat, it felt gritty and as a result, unless it’s top shelf (high fat content) and expensive, I don’t enjoy it.

    I started making my own “ice cream” with just frozen bananas and that with some seeded strawberry puree is the bomb.

    You’d think this would be relatively easy to eat in public and it was, except I was sitting in my car and not having to talk to anyone. I avoid eating in public quite a bit now unless I absolutely have to. In part because I can’t tolerate having food stuck to my teeth and or gums and I get so tired trying to eat, converse, keep myself looking like an adult and managing dental hygiene. It all just has too many moving parts.

    Today, quite uncharacteristically I bought an ice cream (its dead of winter here) and ate it in the carpark whilst I waited for my meeting. Cones made of wafer are pretty good as I still can’t tolerate wooden sticks in my mouth.

    Nope, can’t stand the ‘feel’ of them any more, I often tell my surgeon when he’s giving me an endoscopy and checking my throat - please rinse that wooden tongue depressor under running water before putting it any where near my mouth.

    Wooden cutlery / bamboo cutlery I’ll have none of it thank you very much.

    Airlines and on board cutlery is my next challenge.

    Eat Well.



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    1 分
  • Training for food confidence with dysphagia after HNC treatment.
    2024/06/21

    For those of you who have been here with me for a while, know that I hike, and when I say hike, I mean hundreds of kilometres. It saved my sanity, my life whilst healing from Stage 4 Oropharyngeal Squamous Cell Carcinoma.

    This will be my third hike in Europe in as many years. This will be the longest one yet.

    The Camino Frances which will test my food confidence and my early ORN just enough to make it really annoying.

    I have a fundraiser with Head and Neck Cancer Australia so If you can afford to, please consider donating which will motivate me to continue to train and bring you updates.

    I’ll be honest I am still working out how I am going to record this trip but if you feel as though you want to know more about my hiking life - I have a You Tube channel which I created to document my hikes for my personal record and enjoyment.

    Copy eat and travel write

    Other hikes about food confidence can be found here and living in Vietnam when it all went horribly wrong here

    or my first Camino Portuguese here

    I plan on writing and sketching this hike in memory of my artist mother, Moira McClaren.

    I am taking her sketching pencils so that a little bit of her comes with me, mum loved Spain and she and dad never had a chance to go back so I am making up lost time and opportunities.

    More to follow.

    Eat Well.



    This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit yvonnemcclaren.substack.com/subscribe
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    2 分