• Episode 58: Kelly Kearley - PTEN Hamartoma Tumour Syndrome

  • 2025/03/12
  • 再生時間： 39 分
  • ポッドキャスト

Episode 58: Kelly Kearley - PTEN Hamartoma Tumour Syndrome

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  • サマリー

  • Kelly is the mother of Austin, a teenager with PTEN-Hamartoma Tumor Syndrome. She shares her profound journey of navigating life as a parent of a child with a rare disease, battling the healthcare system, and finding joy in small, everyday moments. Kelly’s story highlights both the struggles and triumphs of caregiving, offering insights into navigating the medical system, managing mental health, and finding a new normal. Through resilience, advocacy, and self-discovery, she has turned her challenges into a mission to support others in the PTEN community.

    The song that Kelly chose is Stronger by Kelly Clarkson.
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あらすじ・解説

Kelly is the mother of Austin, a teenager with PTEN-Hamartoma Tumor Syndrome. She shares her profound journey of navigating life as a parent of a child with a rare disease, battling the healthcare system, and finding joy in small, everyday moments. Kelly’s story highlights both the struggles and triumphs of caregiving, offering insights into navigating the medical system, managing mental health, and finding a new normal. Through resilience, advocacy, and self-discovery, she has turned her challenges into a mission to support others in the PTEN community.

The song that Kelly chose is Stronger by Kelly Clarkson.
続きを読む 一部表示

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