Every year, the AiArthritis team returns from EULAR with new research, expert interviews, and important conversations. This year, they also gathered lived experience data from the community to better understand how the topics discussed at the conference compare with what patients experience every day.

In this episode, host Leila P.L. Valete is joined by patient representative James Hollen to revisit the biggest themes from EULAR 2026, including fatigue, pain, mental health, and the impact of disease on work and daily life. They share what the community told us through lived experience surveys, reflect on James' first EULAR conference as a patient representative, and explore why patient voices are becoming an essential part of research conversations.

Whether you followed our Go With Us! coverage or are hearing about EULAR for the first time, this episode highlights how lived experiences help shape better research, more meaningful conversations, and a stronger future for patient care.

Episode Highlights:

• What lived experience surveys revealed about fatigue, pain, mental health, and quality of life
• How patient perspectives aligned with key research presented at EULAR 2026
• James' reflections from attending his first EULAR conference as a patient representative
• Why patient voices are becoming an essential part of research and healthcare innovation
• How community feedback will help shape future AiArthritis Voices 360 conversations

• Fatigue Survey: https://bit.ly/fatigueLED
  • Fatigue EULAR: https://youtu.be/0e57fykYImc
• Mental Health & Exercise Survey: https://bit.ly/mentalhealthLED
  • Mental Health & Exercise EULAR: https://youtu.be/Akc5So6ePd0
• Pain Survey: https://bit.ly/painLED
  • Pain EULAR: https://youtu.be/Y7vFImtSfBw
• Work & School Survey: https://bit.ly/workandschoolLED
  • Work & School EULAR: https://youtu.be/fzygxv1CewU
• Cell Therapy (CAR-T) Survey: https://bit.ly/celltherapyLED
  • Cell Therapy (CAR-T) EULAR: https://youtu.be/f7fkAK_u94o
• AiArthritis Talk Show Community Response Form: https://bit.ly/AiArthritisVoices360Response
• Playlist to All Videos: https://youtube.com/playlist?list=PLZW5ZyvNnYl1_ZCVQQCw2ucGik3rrICMP&si=pkUFTjGGA29RjbSU
• Have questions about this episode or topics you want to hear us bring to the table? Email us at podcast@aiarthritis.org
• Donate to Support the Show: www.aiarthritis.org/donate

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Connect with our Co-Hosts:

Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them.

Connect with Leila:

Tiktok: @Lupuslifestyle.lei