『EP 22 Janet Vasquez』のカバーアート

EP 22 Janet Vasquez

EP 22 Janet Vasquez

無料で聴く

ポッドキャストの詳細を見る

このコンテンツについて

 Janet Vasquez on FAM177A1, Resilience, and Finding Strength Through Motherhood Description: In this heartfelt episode of Rare Awareness Radio, we sit down with Janet Vasquez, a devoted mother of two daughters diagnosed with FAM177A1, a rare neurodevelopmental disorder. Janet opens up about her family's journey—from the early signs and missed diagnoses to navigating daily life, advocacy, and the emotional toll of feeling isolated. She shares powerful insights on the importance of trusting your instincts as a parent, fighting for answers, and finding community through rare disease networks. We talk about raising awareness, embracing small victories, and the deeply personal hopes she carries for her daughters’ futures. Through stories of Halloween costumes, bedtime seizures, inaccessible beaches, and moments of pure joy, Janet reminds us that while the rare disease world is full of unknowns, it’s also full of love, courage, and an unbreakable will to keep going. 🔗 Learn more about the FAM177A1 Research Fund and how you can help at: https://www.fam177a1.org/ 📣 Share this episode to raise awareness and let families like Janet’s know they are not alone. #RareDisease #FAM177A1 #Motherhood #DisabilityAwareness #GeneticDisorder #SeizureAwareness #Parenting #RareAwarenessRadio
まだレビューはありません