In this episode of the Build a Better Nonprofit Podcast, Jamie Bearse interviews Mary Wheatley, CEO of the National Scleroderma Foundation. Mary shares her background in the rheumatology space, having previously worked with the Rheumatology Research Foundation and the American College of Rheumatology. They discuss the rare autoimmune disease scleroderma and the work of the National Scleroderma Foundation to increase awareness and promote early diagnosis.

Mary emphasizes the importance of building relationships between care teams and patients in the chronic disease space, particularly in rheumatology. She shares her insights on balancing accountability to both the board and staff as a CEO, highlighting the need for a work-life balance.

They also delve into the process of uniting different affiliates and chapters of the foundation into one cohesive national community. Mary discusses the challenges and emotional considerations involved in merging different organizations while maintaining the identity of individual chapters. She advises other organizations going through similar processes to provide space for discussing emotional and identity-related concerns.

The importance of effective communication and being clear about the continuity of local leadership and autonomy in chapters during mergers is also discussed. Mary stresses the significance of transparency and vulnerability in leadership, creating a bridge with the team by openly sharing her own shortcomings.

Mary brings transparency to the National Scleroderma Foundation by regularly sharing information on strategic initiatives and financial health publicly. This transparency helps foster a sense of closeness and shared understanding within the community.

Mary's advice for aspiring nonprofit professionals includes asking for help and advice, relying on a network of experts, and letting go of the expectation of having all the answers.

Challenges faced by nonprofit leaders, such as staff turnover and increased competition for talent, are discussed. Mary shares her experience of strategizing and adapting to overcome challenges, including declines in donations and the impact of the economy on individual giving.

Overall, this episode emphasizes the importance of transparency, vulnerability, and seeking support in nonprofit leadership. It provides insights and advice for aspiring leaders in the sector while shedding light on the ongoing challenges faced by nonprofit organizations.