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  • Episode 434: Ritual, Routine, and Chronic Conditions

    Episode 434: Ritual, Routine, and Chronic Conditions
    2025/03/11
    Ritual, routine and chronic conditions. https://www.instagram.com/theannetteleonard or my website https://www.annetteleonard.com This is the Chronic Wellness Podcast. I'm Annette Leonard, speaker, coach, and sick person who believes that my illnesses do not define me. If health is the absence of disease and wellness is the presence of wholeness, then no matter what your disease status, we can work toward your wellness, your wholeness. Whether or not you are ever "healthy" on paper, you can be well. Join me and others on the path back to wholeness at AnnetteLeonard.com. Whether you are a person experiencing chronic illness or are someone who loves or serves people with chronic illness I have great resources here on this channel or on my website for you.
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    8 分
  • Episode 234: Immunosuppressing Drugs - Rituxan Part 1

    Episode 234: Immunosuppressing Drugs - Rituxan Part 1
    2020/05/21
    Autoimmune disease is our body fighting our self. Without Ig products I needed other meds online. My doctors decided on Rituxan/Rituximab. During the 2.5 years of IVIg/SCIg I didn't catch colds and flus. However, since being off IVIg, I catch any and every virus that's circulating. That was a tremendous benefit. The difference is remarkable. Our bodies cannot rally a defense on immunosuppressing drugs. This is so that our bodies are kept in a state that lessens the attack we are mounting on ourselves. Rituxan keeps my B cells from maturing. Have you taken an infusing med or been on a biologic? Leave me a comment and tell me how that's gone.
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    7 分
  • Episode 433: Scamanda and Apple Cider Vinegar - Scams that Damage Us with Chronic Conditions

    Episode 433: Scamanda and Apple Cider Vinegar - Scams that Damage Us with Chronic Conditions
    2025/02/19
    Scamanda and Apple Cider Vinegar - Scams that Damage Us with Chronic Conditions. https://www.instagram.com/theannetteleonard or my website https://www.annetteleonard.com I tuned in to the podcast and now the TV versions of "Scamanda" and now the Netflix show "Apple Cider Vinegar." Here are examples of two young white women who lied about having terminal cancer and scammed people out of tens of thousands of dollars. In both cases they were discovered and prosecuted. I'm not here to relitigate Riley and Gibson. How do these kinds of scams harm the rest of us who do have chronic and/or terminal conditions? Since Watergate, have we ever trusted a president as much? What that means for those of us who are trying to get medical expenses covered by friends and family or getting meals donated, how much less likely are people to do that kind of thing because of people like Riley and Gibson? While we can't calculate that amount, it certainly factors in. There are different seeds of doubt now that people have been duped. Gibson said she overcame a glioblastoma with nutrition. She touted those changes in her app and book. That begs the question why are we willing to give our health decisions over to people who are not educated in medicine, health, nutrition? Because we are desperate. We're desperate for change, answers, and alternatives. When you see how corrupt big pharma is you wonder whether there's another way. And so we turn to these "experts" and their alluring Instagram photos. The more Riley's and Gibson's there are we all suffer when liars have a bigger platform. Check your sources. Find out what's actually true, not just what's buzzworthy. Have you watched these shows? What did you see or think when you watched? Do you have a sense of why their (and others like their) platforms are so popular? What do we do about the erosion of public trust? How do you decide who you trust in the health space? This is the Chronic Wellness Podcast. I'm Annette Leonard, speaker, coach, and sick person who believes that my illnesses do not define me. If health is the absence of disease and wellness is the presence of wholeness, then no matter what your disease status, we can work toward your wellness, your wholeness. Whether or not you are ever "healthy" on paper, you can be well. Join me and others on the path back to wholeness at AnnetteLeonard.com. Whether you are a person experiencing chronic illness or are someone who loves or serves people with chronic illness I have great resources here on this channel or on my website for you.
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    11 分
  • Episode 233: Trusting Myself About Treatment

    Episode 233: Trusting Myself About Treatment
    2020/05/20
    What happens when we don't agree with our doctor's recommendations? Do you know your body well enough that you can make decision about the best course of treatment? My doc in Seattle was frustrated that I couldn't/wouldn't continue with Ig products for treatment of my autoimmune cluster and pulmonary fibrosis. Lung transplant was going to be unlikely or at least a long shot, his job was to preserve and protect my life and I think he was afraid. I'm Annette Leonard, speaker, coach, and sick person who believes that my illnesses do not define me. If health is the absence of disease and wellness is the presence of wholeness, then no matter what your disease status, we can work toward your wellness, your wholeness. Big pharma isn't testing drugs for my autoimmune cluster. I had learned some things about how to make decisions about what was best for me, whether or not they worked for my doctor or anyone else. Have you had to make these hard decisions when it comes to your care?
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    7 分
  • Episode 431: PROPER Maintenance Can SAVE Your Inogen Portable Oxygen Concentrator!

    Episode 431: PROPER Maintenance Can SAVE Your Inogen Portable Oxygen Concentrator!
    2025/02/14
    PROPER Maintenance Can SAVE Your Inogen Portable Oxygen Concentrator! Instagram https://www.instagram.com/theannetteleonard or website https://www.annetteleonard.com I recently traveled by plane which means using oxygen. The last time I used my Inogen, portable concentrator I got a message that said, "oxygen low." When I contacted companies to service my Inogen I learned that I could pay a lot to send in my model to be repaired, or I could pay a WHOLE lot to have lifetime service for my machine. These costs were too much for me. I continued to research what I as the user could do to maintain my machine -- from cleaning the filters to changing the columns. In so doing, I learned that my "oxygen low" message likely meant that I needed to change the columns. I purchased these online for about $100. Once they arrived I looked up a video on YouTube about how to change out the columns. Then, critically, you have to fiddle with the computer so the machine *knows* the columns have been replaced. Upon use, my machine worked great and the battery life was increased by more than four times! It was clear I needed new columns. These machines need routine maintenance (just like home oxygen concentrators) if they're being used regularly. **I have a new mini-course I'm finishing about how to unlock the power of your next doctor appointment*** the first 50 people get FREE enrollment. Sign up here https://www.annetteleonard.com/waitlist This is the Chronic Wellness Podcast. I'm Annette Leonard, speaker, coach, and sick person who believes that my illnesses do not define me. If health is the absence of disease and wellness is the presence of wholeness, then no matter what your disease status, we can work toward your wellness, your wholeness. Whether or not you are ever "healthy" on paper, you can be well. Join me and others on the path back to wholeness at AnnetteLeonard.com. Whether you are a person experiencing chronic illness or are someone who loves or serves people with chronic illness I have great resources here on this channel or on my website for you.
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    7 分
  • Episode 232: The Adventures Of SCIg Part 2

    Episode 232: The Adventures Of SCIg Part 2
    2020/05/19
    Would I get meningitis with SCIg? With weekly infusions of SCIg and my lap dog as my companion, I began the process. After 6 weeks bam, meningitis. So, I called it off. When is the treatment worse than the disease itself? How do you discern quality of life over quantity of life? Have you had to go against a doctor's recommendations? The cost was too high to pay. If I only had a few months left to live, I was not going to spend them with meningitis.
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    8 分
  • Episode 432: What to do When Chronic Illness Takes a Turn for the Worse

    Episode 432: What to do When Chronic Illness Takes a Turn for the Worse
    2025/02/13
    When chronic illness takes a turn for the worse how do we not borrow trouble? Instagram https://www.instagram.com/theannetteleonard or my website https://www.annetteleonard.com It's already February of 2025 and this is my first broadcast of the year! I had a death in my family at the end of last year and then I got very sick. My life has ground to a halt over the last 6 weeks. When things get worse, it's so tough to stay connected and not go down the rabbit holes of, "what if it stays this bad?" "What if I don't get better?" Managing my fears and frustrations about new symptoms is real. Here is another place where a contemplative practice has served me. Usually, if I've been totally down for 6 weeks, I'm emotionally desperate. This time was different, I maintained a small bubble of possibility in my heart which kept it from sinking. The thing that I know has made the difference is my contemplative practice -- years and years of meditation. This allowed me to stay connected to WHAT IS not WHAT IF. I worked on not focusing on my fears but focusing on what was true at the moment. It wasn't easy but it was different. Your contemplative practice could be different: music, prayer, nature, whatever allows you to focus on yourself in the present moment, is the way forward. By exercising this way when things are not at their worst allows you to develop the muscle so you can continue the practice when things are falling apart. How do you stay present when things are worse in your illnesses? What would you like to have me focus on in 2025? Who are the experts or thought leaders you like to have me interview in Chronic Wellness Conversations? This is the Chronic Wellness Podcast. I'm Annette Leonard, speaker, coach, and sick person who believes that my illnesses do not define me. If health is the absence of disease and wellness is the presence of wholeness, then no matter what your disease status, we can work toward your wellness, your wholeness. Whether or not you are ever "healthy" on paper, you can be well. Join me and others on the path back to wholeness at AnnetteLeonard.com. Whether you are a person experiencing chronic illness or are someone who loves or serves people with chronic illness I have great resources here on this channel or on my website for you.
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    10 分
  • Episode 231: The Adventures Of SCIg Part 1

    Episode 231: The Adventures Of SCIg Part 1
    2020/05/18
    What happened when I failed IVIg? My doctor wanted me to try SCIg. Using a giant syringe with a craning pump at home, I was trained to administer SCIg to myself at home. Each of the five lengths of tubing I had to attach to myself with a small needle, injecting the medicine under my skin into fat tissue. Why do we pay so much for people to donate plasma? Because we are making pharmaceutical products like IVIg and SCIg and selling them for top dollar! Viscous like honey, the welts where I injected did not resolve or absorb quickly, making it rapidly difficult to find places to find five new points to insert my needles the following week. Have you tried an Ig product? How has that gone for you?
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    6 分