S2, E5 Show Notes

EPISODE 5 SUMMARY: On this edition of Before Birth & Beyond we’re joined by Clayton Andrews, LAPC, a sickle cell warrior and mental health clinician and owner of Andrews Counseling and Family Resource Center. We’re also joined by special guest co-host, Jaschia Hall, one of NICHQ’s summer 2024 interns, who talks with Kirsten Klatka, MSW, Associate Project Director at NICHQ,

Main Story: Advancing Mental Health Support, Access to Treatment, and Care for People Living with Sickle Cell Disease

SEGMENT SUMMARY: Clayton Andrews highlights the mental health support needed for people living with SCD and shares strategies for coping with the physical and psychological challenges that impact people living with chronic conditions. Kirsten Klatka also joins us to share strategies for increasing provider knowledge around treating SCD and addressing and eliminating disparities in access to quality care and treatment.

RELATED LINKS:

• Andrews Counseling and Family Resource Center
• A Guide to College Transition for Sickle Cell Warriors
• Enhanced Support During and After Transition from Pediatric to Adult Care Needed for People Living with Sickle Cell Disease
• Preparing Children with Special Healthcare Needs for Transition of Care
• Improving Transitions in Care Saves Lives
• GOT Transition

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S2, E3 Show Notes

EPISODE 3 SUMMARY: On this edition of Before Birth and Beyond, we discuss Care mapping and other strategies and tools to support the transition from pediatric to adult care for children and youth with special healthcare needs. Care mapping is a process that guides and supports the ability of families and care professionals to work together to achieve the best possible health outcomes. Tune in as we explore the benefits of care mapping for improving communication with providers, patients, and caregivers.

Main Story: Benefits of Care Mapping for Providers, Children and Youth with Special Healthcare Needs, and Caregivers

SEGMENT SUMMARY: Care mapping is one of a variety of tools and strategies health professionals, can recommend to improve the process of transition from pediatric to adult care for children and youth with special health care needs. The Florida Children’s Medical Services Learning and Action Network (FL CMS LAN), led by NICHQ in partnership with the Florida Department of Health, recently focused quality improvement efforts on various areas of transition from pediatric to adult care. On this episode, we're joined by Sandra Widland, NICHQ project director, Linda Starnes, Florida Children's Medical Services Title V Statewide Family Leader, and Elsie Garcia, FL CMS LAN Craniofacial Statewide Networks for Access and Quality Family Partner.

RELATED LINKS:

• Care Mapping: A How-To Guide for Patients and Families
• Care maps: De-medicalizing children with medical complexity
• Enhanced Support During and After Transition from Pediatric to Adult Care Needed for People Living with Sickle Cell Disease
• Preparing Children with Special Healthcare Needs for Transition of Care
• Improving Transitions in Care Saves Lives
• GOT Transition

Why I Work in MCH

Gabe Soto has served as NICHQ’s Accounts Payable Coordinator since 2022. Gabe, who recently expanded his family, shares how working at NCHQ has impacted his parenting experience and offers advice to MCH organizations seeking to create more initiatives dedicated to supporting fathers and partners in honor of Men's Health Month.

Learn more about Ana and the rest of NICHQ’s team at https://www.nichq.org/about/team.

S2, E3 Show Notes

EPISODE 3 SUMMARY: Recognize National Minority Health Month with NICHQ! This year's theme is: Be the Source for Better Health: Improving Health Outcomes Through Our Cultures, Communities, and Connections. Tune in to our latest episode to hear from Kimberly Seals Allers, creator of the IRTH app who shares how IRTH works with communities and hospitals to improve health care quality for Black and brown women and birthing people.

Main Story: Empowering Black and Brown Women to Share their Experiences of Care

SEGMENT SUMMARY: In this episode of Before Birth & Beyond, we sit down with Kimberly Seals Allers, creator of the IRTH app, to discuss the importance of collecting and sharing data to transform the health system and mprove the experience of care for women and birthing people in Black and brown communities.

TAKE ACTION: Download the IRTH app – Apple | Google Play

RELATED LINKS:

• Learn more about the IRTH app
• Explore resources from IRTH

Why I Work in MCH
This month, we’re joined by Dana West, Ph.D., Associate Project Director of Equity, who shares how her upbringing and research in sexual and gender minorities led her to a focus on health equity and maternal and child health.

Learn more about Ana and the rest of NICHQ’s team at https://www.nichq.org/about/team.