Every year, the AiArthritis team returns from EULAR with new research, expert interviews, and important conversations. This year, they also gathered lived experience data from the community to better understand how the topics discussed at the conference compare with what patients experience every day.

In this episode, host Leila P.L. Valete is joined by patient representative James Hollen to revisit the biggest themes from EULAR 2026, including fatigue, pain, mental health, and the impact of disease on work and daily life. They share what the community told us through lived experience surveys, reflect on James' first EULAR conference as a patient representative, and explore why patient voices are becoming an essential part of research conversations.

Whether you followed our Go With Us! coverage or are hearing about EULAR for the first time, this episode highlights how lived experiences help shape better research, more meaningful conversations, and a stronger future for patient care.

Episode Highlights:

• What lived experience surveys revealed about fatigue, pain, mental health, and quality of life
• How patient perspectives aligned with key research presented at EULAR 2026
• James' reflections from attending his first EULAR conference as a patient representative
• Why patient voices are becoming an essential part of research and healthcare innovation
• How community feedback will help shape future AiArthritis Voices 360 conversations

• Fatigue Survey: https://bit.ly/fatigueLED
  • Fatigue EULAR: https://youtu.be/0e57fykYImc
• Mental Health & Exercise Survey: https://bit.ly/mentalhealthLED
  • Mental Health & Exercise EULAR: https://youtu.be/Akc5So6ePd0
• Pain Survey: https://bit.ly/painLED
  • Pain EULAR: https://youtu.be/Y7vFImtSfBw
• Work & School Survey: https://bit.ly/workandschoolLED
  • Work & School EULAR: https://youtu.be/fzygxv1CewU
• Cell Therapy (CAR-T) Survey: https://bit.ly/celltherapyLED
  • Cell Therapy (CAR-T) EULAR: https://youtu.be/f7fkAK_u94o
• AiArthritis Talk Show Community Response Form: https://bit.ly/AiArthritisVoices360Response
• Playlist to All Videos: https://youtube.com/playlist?list=PLZW5ZyvNnYl1_ZCVQQCw2ucGik3rrICMP&si=pkUFTjGGA29RjbSU
• Have questions about this episode or topics you want to hear us bring to the table? Email us at podcast@aiarthritis.org
• Donate to Support the Show: www.aiarthritis.org/donate

Follow AiArthritis on all social media platforms @IFAiArthritis

Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

Connect with our Co-Hosts:

Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them.

Connect with Leila:

Tiktok: @Lupuslifestyle.lei

Exercise is one of the most recommended ways to manage AiArthritis diseases, yet for many patients, staying active can feel overwhelming. Pain, fatigue, disease flares, and mental health challenges often make the advice to "just exercise more" unrealistic. In this episode, Leila P.L. Valete and Eileen Davidson explore what research and lived experience reveal about movement, physical activity, and exercise for people living with AiArthritis diseases.

Drawing from research presented at EULAR 2026, patient lived experience data, and their own personal journeys, Leila and Eileen discuss the barriers that prevent people from staying active and why movement looks different for everyone. They also explore the connection between physical activity and mental health, highlighting how anxiety, depression, and chronic pain can affect motivation while sharing practical strategies that make movement more accessible.

Whether you're just getting started or adapting your routine during a flare, this episode offers realistic guidance, trusted resources, and encouragement to help you find movement that works for your body.

Episode Highlights:

• What EULAR 2026 research revealed about exercise and non-pharmacological care
• Common barriers that make physical activity difficult for people living with AiArthritis diseases
• The connection between movement, mental health, and long-term disease management
• Patient experiences with adapting exercise during flares and changing symptoms
• Practical movement ideas and trusted resources to help you stay active safely

• Just One Move - https://justonemove.ca/
• Arthritis Research Canada Education Series - https://www.arthritisresearch.ca/education-series/strong-with-arthritis/
• Arthritis Foundation - https://www.arthritis.org/health-wellness/healthy-living/physical-activity/getting-started/your-exercise-solution
• Have questions about this episode or topics you want to hear us bring to the table? Email us at podcast@aiarthritis.org
• Donate to Support the Show: www.aiarthritis.org/donate

Follow AiArthritis on all social media platforms @IFAiArthritis

Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

Connect with our Co-Hosts:

Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them.

Connect with Leila:

Tiktok: @Lupuslifestyle.lei

Eileen Davidson is a rheumatoid arthritis patient advocate from Vancouver Canada. She volunteers with the Arthritis Research Canada patient advisory board and the Canadian Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient engagement research ambassador, among others. When not advocating she is writing about her experience with arthritis through Creaky Joints, Healthline, Chronic Eileen or can be found being a mom to her son Jacob.

Connect with Eileen:

Twitter: @ChronicEileen

AiArthritis was built by listening to patients. For more than 15 years, conversations within the community have shaped programs, resources, research initiatives, and advocacy efforts designed to improve the patient journey. In this episode, Leila and Tiffany discuss AiArthritis' next chapter and how the organization is expanding its commitment to collecting, analyzing, and acting on lived experience data.

The conversation explores what lived experience data is and why it matters. Patient stories can help identify unmet needs, improve healthcare conversations, influence research priorities, and drive meaningful change. Leila and Tiffany also share how AiArthritis is creating new opportunities for patients, care partners, and advocates to contribute their experiences and ensure every voice is counted.

Whether you have participated in an AiArthritis program before or are just discovering the organization, this episode offers a behind the scenes look at how patient experiences become real world impact. It also highlights new ways to get involved and help shape future programs, resources, and advocacy efforts.

Episode Highlights:

• How sharing your experience can help improve care for future patients
• Why AiArthritis is expanding its focus on lived experience data
• Real examples of patient feedback leading to new resources and solutions
• New ways to participate in research and community driven initiatives
• What's coming next for AiArthritis Voices and patient engagement

• Mystery Patient Guide: https://www.aiarthritis.org/undiagnosed
• JHA/HCP Communication Toolkit: https://www.aiarthritis.org/JIACommunication
• Submit Your Rant: https://www.aiarthritis.org/rant
• WTHellth Website: https://wthellth.org/
• Have questions about this episode or topics you want to hear us bring to the table? Email us at podcast@aiarthritis.org
• Donate to Support the Show: www.aiarthritis.org/donate

Follow AiArthritis on all social media platforms @IFAiArthritis

Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

Connect with our Co-Hosts:

Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues.

Connect with Tiffany:

• Facebook: @tiffanyAiArthritis
• Twitter: @TiffWRobertson
• LinkedIn: @TiffanyWestrichRobertson

Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them.

Connect with Leila:

Tiktok: @Lupuslifestyle.lei