When Mary Marslender's daughter was born with cystic fibrosis, she had no idea it would launch her into a decade of advocacy — from stalking the FDA website for a breakthrough drug to serving on the National Council on Disability under President Trump and the Virginia Board for People with Disabilities under Governor Youngkin.
In this episode of Able Voices, Mary opens up about:
🔹 How a "miracle" drug, Trikafta, transformed her daughter's life — and why so many families overseas can't access the same treatment
🔹 What QALY (Quality-Adjusted Life Years) is, and how this hidden metric is used by government-run health systems to ration care for the sick, elderly, and disabled
🔹 Why free markets and innovation — not centralized bureaucracy — are what actually save lives
🔹 Her message to every parent and advocate: your voice matters, even when you're the only one in the room willing to use it
This is a conversation about courage, faith, and the fight to make sure every life — no matter its "quality adjusted" score — is treated as worthy.
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