『A Rare Purpose』のカバーアート

A Rare Purpose

著者: Jemma Caprioli
  • サマリー

  • In rarity we unite, connect and find our way to purpose.
    © 2024 Jemma Caprioli
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エピソード
  • A Cancer Discovery with Professor Parry Guilford: Clinical Trials, Research Funding and a Candid Chat about Hereditary Cancers
    2024/05/30

    Professor Parry Guilford is known for successfully in identifying the first known genetic mutations in the CDH1 gene, leading to the description of a new cancer syndrome Hereditary Diffuse Gastric Cancer (HDGC). This discovery has conservatively saved 27,000 people from developing a severe form of stomach cancer. Parry is determined to continue to change the course of HDGC stomach cancer patients outcomes, he is invested in the CDH1 mutation families and feels their trials as if they were his own. We discuss genetic counselling, the age at which we test our children for hereditary cancers, his work on lobular breast cancer, bowel cancer and funding research.

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    59 分
  • GI Cancers and Genetics with Professor Alex Boussioutas
    2024/05/21

    Professor Alex Boussioutas is one of Australia's most prominent and accomplished Gastroenterologists. We dive right into a conversation about the latest innovations in cancer surveillance and precision medicine. As a GI Cancer specialist Alex talks about the prevalence of bowel cancer in Australia and we chat about screening challenges and the need for further education in the community. Alex is also the Director of Genetics and Genomics at The Alfred, so we touch on genetics in respect of rare cancers, and finally Alex shares his perspective on patient experience.

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    48 分
  • Life without a stomach with endurance athlete Julian Grennell
    2024/05/07

    'What do you mean you don't have a stomach?' This is a question our very first podcast guest Julian Grennell often encounters, and a reality he shared with many other members of his family after discovering they all carry the rare genetic mutation of CDH1 Hereditary Diffuse Gastric Cancer. We dive into life post total gastrectomy and how Julian was inspired by his diagnosis to challenge himself by pursuing endurance events. Through his journey he has questioned the support available for cancer patients and their families, and as such launched himself into advocating for the Not for Profit sector, recently becoming the president of NZ Cancer Society.

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    39 分

あらすじ・解説

In rarity we unite, connect and find our way to purpose.
© 2024 Jemma Caprioli

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