『A Mother's Experience Navigating An Unexpected Diagnosis: Pompe Disease + Ways To Find Support And Community』のカバーアート

A Mother's Experience Navigating An Unexpected Diagnosis: Pompe Disease + Ways To Find Support And Community

A Mother's Experience Navigating An Unexpected Diagnosis: Pompe Disease + Ways To Find Support And Community

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In this week’s episode, Molly opens up and allows herself to be vulnerable about her recent struggles. She shares how she’s been feeling and her efforts to find support and relief.

Of course, it wouldn’t be a Momsense episode without a quick chat about the books they’re currently reading. Tune in to hear their thoughts on recent picks (some popular titles are mentioned!).

Then, Molly and Megan dive into the episode’s main topic: navigating an unexpected diagnosis. Megan discusses her daughters’ diagnosis of Late-Onset Pompe Disease—a rare condition she had never even heard of before. She explains what the disease involves, how it was diagnosed, and shares helpful tips and resources for other parents who may find themselves in a similar position.

Please visit bio.site/momsensepod for the resources link referenced in the video.

Thanks for spending part of your day with the Momsense ladies—and don’t forget to quarter your kids’ grapes!


TOPICS:

Maternal Mental Health, Support for moms, the Libby App, bath time struggles, Pompe Disease, Rare Disease Diagnosis, Newborn Screening, support and tips for parents of a newly diagnosed child


*Disclaimer: This episode was recorded in July of 2025. The information shared was Megan's personal experience and understanding at the time of recording.

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