Finding Light in the Shadows: Living with Solar Urticaria and Self-Compassion
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Finding Light in the Shadows: Living with Solar Urticaria and Self-Compassion
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In this episode of Beyond My Diagnosis, I sit down with Jeannie Taylor, an educator and artist living with a rare condition called solar urticaria—a severe allergic reaction to sunlight. Jeane opens up about her years-long journey to diagnosis, the emotional and physical toll of living in partial darkness, and the creative ways she continues to find joy and meaning.
We talk about identity, self-advocacy, and how art became both a refuge and a form of resistance. Jeane reminds us that healing isn’t always about “fixing” what’s broken—it’s about embracing what still shines.
You’ll learn how to:
• Understand the emotional weight of invisible illness
• Navigate medical systems when answers are hard to find
• Build a support network rooted in empathy and shared experience
• Reclaim joy and self-expression even in the face of limitations
• Transform adversity into art, advocacy, and acceptance