『Flying Through Fog: A Podcast for PANS/PANDAS Caregivers』のカバーアート

Flying Through Fog: A Podcast for PANS/PANDAS Caregivers

Flying Through Fog: A Podcast for PANS/PANDAS Caregivers

著者: Podcasts By Federated Media
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このコンテンツについて

When infections or other factors trigger autoimmune responses that attack your child's brain, families find themselves navigating an invisible storm. They seek out care, but often even clinicians wanting to help may not know how. Flying Through Fog brings clarity to the complex world of PANS/PANDAS through real stories, expert insights, and practical guidance.

Tune in weekly for conversations with families who've walked this path, medical professionals who understand the science, and advocates fighting for better awareness and treatment access. You'll hear from parents sharing their diagnostic journeys, experts helping families overcome insurance coverage denials, and clinicians who are in the trenches advancing our understanding of these neuroimmune conditions.

Whether you're seeking answers for sudden behavioral changes in your child, looking for treatment options, or you're a clinician looking for guidance, this podcast offers hope, community and education. We tackle the hard questions about symptoms, therapies, school accommodations, and family dynamics while celebrating the resilience of children and families affected by PANS/PANDAS.

Because when you're flying through fog, you don't have to fly alone.

New episodes drop weekly. Join our community of families, advocates, and professionals working together to raise awareness and improve outcomes for children with PANS/PANDAS.

Flying Through Fog is produced and mixed by Tommie Lee.

人間関係 子育て 衛生・健康的な生活
エピソード
  • Navigating Insurance Denials: How Claimable is Helping PANS/PANDAS Families Win Appeals
    2025/10/07
    Getting a PANS/PANDAS diagnosis is only half the battle—the other half is fighting insurance companies for treatment coverage. In this episode, Krystal and Lindsey sit down with Dr. Warris Bokhari, co-founder of Claimable, an AI-powered platform that's helping families overturn insurance denials for IVIG therapy with an 80% success rate. Dr. Bokhari shares his journey from emergency medicine in London to taking on the US healthcare system, and reveals why insurance companies routinely deny legitimate claims—often using unqualified reviewers and cherry-picked evidence. Learn the critical mistakes families make when appealing denials, discover the hidden rights you have under federal and state law, and find out why copying your CEO on your appeal letter could be a game-changer. Whether you're facing your first denial or your tenth, this episode gives you the roadmap and resources to fight back and win. Read the full transcript of this episode at PANDASMichiana.com.RESOURCES:Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts Claimable https://www.getclaimable.com/ PANDAS Michiana https://pandasmichiana.com/ PANDAS Physician Network https://www.pandasppn.org/ PANDAS Network https://pandasnetwork.org/understanding-pandas/ Angela Henry, LCSW https://angelahenrylcsw.com/services/pandas-pans-ae ASPIRE PANS PANDAS Advocacy, Community & Support Aspire Neuroimmune Foundation Neuroimmune Foundation | Inflammatory Brain Conditions Mind Global Council https://www.mindglobalcouncil.com/ OCD Family Podcast https://www.ocdfamilypodcast.com/ Hornets and Hippos Workbook: https://margaretjessoppsyd.com/hornets-and-hippos/ Parenting Resources: Dr. Ross Greene https://drrossgreene.com/ Dr. Becky Kennedy https://www.goodinside.com/about/ Dr. Dan Siegel https://drdansiegel.com/ Brene Brown (professor and researcher of shame, vulnerability, courage and empathy) https://brenebrown.com/ See omnystudio.com/listener for privacy information.
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