検索キーワード： 著者 "RARE" すべてのカテゴリー

Il podcast gMG Your Way è una serie di otto puntate realizzato con il patrocinio e contributo dell’associazione pazienti Associazione italiana miastenia (A.I.M). Romina Gibertoni, segretaria di A.I.M, ci accompagnerà in un percorso di scoperta all’interno del mondo della gMG, ossia la miastenia gravis generalizzata. In ogni episodio, Romina sarà affiancata da persone che vivono e affrontano questa malattia ogni giorno, clinici, caregiver e altri membri attivi della comunità gMG, che, attraverso la condivisione delle loro storie, esperienze e professionalità ci aiuteranno a capire ...

Sejam todos bem vindos ao Talento Raro Podcast, um podcast semanal voltado para a cultura e mundo pop. Todas as novidades, lançamentos e assuntos mais comentados da semana você encontra aqui! Para não perder nada, nos siga no Instagram: @talentoraropodcast

The Your way Podcast series features Neuromyelitis optica spectrum disorder (NMOSD) patient ambassador Debbie Leticq, alongside healthcare professionals including neurologist Dr Lesley-Ann Hall, Specialist Nurse and Research Fellow, Dr Therese Burke, and psychologist, Dr Sally Shaw, who all share some deeply personal experiences about this rare, auto-immune condition. Their candid conversations shine a light on the day-to-day reality of living with NMOSD, provide some insights and advice to those who may find themselves either newly diagnosed or learning to live with NMOSD. If you would like ...

Canfranc, 1944. La joven Valentina Báguena, colaboradora de la Resistencia contra las fuerzas de ocupación nazis en el sur de Francia, descubre que la guerra cambia por completo la forma de vivir, de pensar y, sobre todo, de amar cuando conoce al paracaidista alemán Franz Geist el mismo día...

On January 5, 2026, all episodes of "Ask the Expert, ABCs of MOGAD, ABCs of NMOSD, ADEM Academy, and Community Meets Clinic" - past and present - will now be found in one feed called “SRNA Soundwaves” on all podcast streaming platforms. Make sure to subscribe to "Ask the Expert," which will be renamed “SRNA Soundwaves” on January 5th: https://creators.spotify.com/pod/profile/srna-ask-the-expert/ If you have questions about the upcoming change, please email: podcast@wearesrna.org ABCs of NMOSD brings together the latest information and research about all things NMOSD.

SRNA Soundwaves is a podcast network that brings together expert insight, research updates, and experiences from the rare neuroimmune disorder community. Through multiple series, SRNA Soundwaves connects those living with rare neuroimmune disorders, caregivers, clinicians, and researchers with trusted information and meaningful conversations that educate, empower, and inspire. Topics include acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM).

Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.

Hunt and Pie talk about adventures as delivery workers, real stories, total knuckleheads

Hi, Welcome to the Strong and Rare parenting podcast. My name is Victoria, and I am a special needs momma of two fun loving boys. In this podcast, we will speak about all things Autism, ADHD, and Rare Diseases. This podcast will bring awareness, acceptance, and knowledge on all things we want to learn as parents raising children with special and medical needs. When you join me, I hope that you will walk away with hope and be empowered to be a driver of change for our community.

Comment poser le bon diagnostic sur ces nouveau-nés et enfants atteints par des pathologies rares, des malformations de la tête, du cou et des dents ? Vers qui diriger les familles ? Comment parler de ces maladies, les comprendre et les affronter ? Les différents spécialistes de la Filière TETECOU apportent des réponses. Dans « Mots de têtes », le podcast proposé par la Filière de Santé Maladies Rares TETECOU, nous découvrons l’existence de tout un réseau spécialisé dans des pathologies rares, des malformations de la tête, du cou et des dents présentes à la naissance ...

The NMOSD Your Way Podcast series features Neuromyelitis Optica Spectrum Disorder (NMOSD) patient ambassador, and host, Lelainia, alongside healthcare professionals, patient advocates, and caregivers. In each episode, participants share some deeply personal experiences about this rare, auto-immune condition. Their candid conversations unpack some of the mystery behind this little known condition and delve into the day-to-day realities of living with NMOSD. Participants also provide insights into living well, offering encouragement and information to others who may find themselves either newly ...

Hosted by HCPLive, the monthly series tackles the intricate details of the 6,000-plus known rare diseases, featuring an expert guest, one disease at a time.

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Everyone has a dream to become something in their life. We all have some kind of desire that doesn‘t leave us. Rare Conversations is where I speak with different business owners about their journeys.- why they started, how they keep going, what they do when things get tough. I want to help others save time so they can learn from mistakes we have made in our own businesses. I hope to inspire you by giving you an honest look at behind-the-scenes and all the stuff no-one really hears about. Episodes drop every Tuesday and Thursdays, so please join us! You may be my next interview!

Unapologetically femme leftist agitprop created by comedian Rara Imler. New episodes weekly with full-length streams and bonus content on the Patreon.

The aggregate feed for ALL of the Rare Drop Roleplay Adventures. Join us for epic tales in far off lands every week.

Conversations started by The Whitworth Group

GiGi and Ra give a seasonal funny take on all things pertaining to movies, trash television, and Celebrity Entertainment. They have questions, and you do too.

Refined. Aged. Bespoke. The Old Fashioned Podcast brings a refreshing point of view on nerd culture and beyond. Enjoy your weekly dose of witty banter, dry humor & brutal honesty.

What is B.U.? Simply put…Be yoU! Joe “Dr Energy”, and Kathryn “RaRa” share Conversations Worth Having; discussing what it means, and how to, Be yoU. Join us - meet our guests – for conversations with relationship marketing specialists, marketers, entrepreneurs, keynote speakers/presenters, and more, to discover how to Be yoUr authentic self, and the Best yoU possible. We are excited to Be with yoU! Talk to you soon! -Dr Energy & RaRa B.U. Network