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The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An...

A moving memoir from the mother of a child with Treacher Collins Syndrome, with a foreword by R.J. Palacio, author of Wonder For Magda Newman, normal was a goal—she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often...

Already technology enables parents to select some genetic traits for their children, and soon it will be possible to begin to shape ourselves as a species. Countering loud cries of alarm, bioethics expert Ronald Green explains why our fears about genetic engineering are overblown and how we can move forward responsibly to create a better future.

Just Add Salt offers a raw and inspiring look at a single mother’s fight to save her daughter while finding strength through creativity, family, and food. Grace Rose was born with Cystic Fibrosis, a progressive disease that affects the lungs, pancreas, and other vital organs. Her battle with the condition shapes a story of perseverance, as her mother, Leah, navigates the daily challenges of raising a child with a life-threatening illness.

Clear, practical information about a rare genetic disorder affecting the ears, neck, and kidneys. Living with a rare condition like Branchio-Oto-Renal (BOR) Syndrome can feel overwhelming — especially when answers seem hard to find. This comprehensive, easy-to-understand guide is here to change that. Written with warmth, clarity, and deep understanding, The Complete Guide to Branchio-Oto-Renal Syndrome (BORS) offers reliable information, practical tools, and heartfelt support for every stage of the BOR journey — from diagnosis to adulthood.

Was haben Lene, die gesunde Sportlehrerin, Thomas, der lebensfrohe und fitte Lektor, Dominik, der wissenschaftlich erfolgreiche Institutsdirektor und die Katzenmutter Karin gemeinsam? Sie sind plötzlich an Krebs erkrankt und wurden mit modernen medizinischen Behandlungsmethoden therapiert. Ob Krebs im Magen, Enddarm, in der Bauchspeicheldrüse oder im lymphatischen System, warum hat nur Karin überlebt? Dieser Frage geht Professor Christoph Wagener auf ungewöhnliche Weise nach und macht mit diesem Buch eine historische, anekdotische und kriminalistische Reise.

Despite the incredible strain of all these challenges, Mindy manages them with amazing tenderness, persistence, and love. Far from a depressing story of misfortune, Last Nerve is as uplifting and witty as it is raw and real. It’s a testament to hope, the endurance of family, and the resilience of the human spirit.

Could illness be a blessing in disguise; a positive life-changing experience? When the worst imaginable happens, how do you react? Do you wonder “why me,” or “what did I do to deserve this?” Or do you look for the gifts it brings? Filled with intriguing stories of people who have experienced life-altering diagnoses, The Other Side of Illness: Unexpected Blessings demonstrates that every health adversity can result in remarkable beneficial life changes.

It took forty plus years of intense agonizing sacrifice and struggle for Christopher A. Davis to heed the call of the Most High. In doing so he found his purpose in producing an extraordinary piece of work. The Invisible Bully: Thriving in a Life with Sickle Cell Anemia tackles the issues that one may face with the disease head on. This book shows the importance of having inner strength and fortitude, a positive disposition, understanding the power of faith in God and in yourself, and more.

In Painting the Landscape of Loneliness, author Olivia Ash invites you on a transformative journey to understand the complex terrain of human isolation, while discovering the path towards genuine connection and self-discovery. In a world more interconnected than ever before, loneliness remains an epidemic, affecting people of all ages and backgrounds. Ash delves into the very heart of this pervasive issue, dismantling the misconceptions surrounding it. With compassion and keen insight, she reveals that loneliness is a universal human experience, often overlooked or misunderstood.

Diagnose: Autoimmune Hepatitis. Und das mit Anfang 30. Für Hendrik und Denise Verst bricht 2015 die Welt zusammen. 5 Jahre später braucht Hendrik dringend eine neue Leber. Die 7-köpfige Familie steht vor großer Ungewissheit: Wird Papa rechtzeitig ein passendes Spenderorgan bekommen? Jetzt, 2 Jahre nach der Transplantation, arbeiten Denise aka Mathellaslife und Hendrik aka fitdad_hendrik die Zeit des Bangens und Hoffens in einem gemeinsamen Buch auf - bewegend, ehrlich und aufschlussreich.

Ingrassia lost his mother, two sisters, brother, and nephew to cancer—different cancers developing at different points throughout their lives. And while highly unusual, his family is not the only one to wonder whether their heartbreak is the result of unbelievable bad luck, or if there might be another explanation. Through meticulous research and riveting storytelling, Ingrassia takes us from the 1960s—when Dr. Frederick Pei Li and Dr. Joseph Fraumeni Jr. first met, not yet knowing that they would help make a groundbreaking discovery that would affect cancer patients for decades to come.

Discover how to stop the pain from carpal tunnel syndrome! Whether you want to (1) get rid of the pain, (2) heal the inflammation, or (3) prevent carpal tunnel syndrome in the first place, this audiobook will teach you everything you need to know. Get at the root cause. Find out what sets off the painful inflammation and learn to deal with it the right way. Discover proven, practical solutions to reverse carpal tunnel syndrome.

Heart disease is the leading cause of death worldwide, but the good news is that it can be prevented - and even reversed through lifestyle and nutrition changes. Stop and Heal Heart Disease: The Groundbreaking, Science-Backed, Nutrition-Focused Solution provides a comprehensive guide to taking control of your heart health with scientifically proven strategies. This life-changing book empowers you to not only prevent heart disease but also heal your heart, reduce risk factors, and live a longer, healthier life.

Living with herpes can feel overwhelming, but it doesn't have to define your life. In Herpes Management: A Complete Guide to Living Well with the Condition, you'll discover everything you need to know about understanding, treating, and managing this common virus. Whether you’ve recently been diagnosed or have been living with herpes for years, this comprehensive guide offers practical advice, emotional support, and actionable strategies to help you thrive.

Unleash the Power of the Human Genome: Uncover the secrets of genetics and its transformative potential in medicine, even if you’re new to the world of DNA. Are you intrigued by the concept of personalized healthcare and the role genetics play in shaping, not only our health, but our responses to different treatments? Do you ever question why treatments work effectively on some individuals and not on others, even when they have the same disease or ailment?

Born with severe brain defects, Suzy was sentenced to a life of “nevers.” With the unwavering support of her mother, Jane, and extended family, Suzy’s miraculous journey has given many experts reason to question the medical textbooks that have been written. From predictions that she would never walk, talk, or function in society, Suzy overcame all these obstacles with determination and perseverance—not even allowing final-stage renal failure at the age of twenty-four to deter her.

Discover a miracle among us. Life on Hold tells the moving and true story of Ivonne Cabral, a woman who faced the greatest challenge of her life: a chronic illness that brought her to the brink of death. Ivonne shares her journey from diagnosis to the moment she received a double liver and kidney transplant, transforming her struggle into a source of inspiration and hope. There is meaning in suffering.

"An essential read for anyone committed to understanding the technologies that will define our future." CHRISTIAN ANGERMAYER, BIOTECH ENTREPRENEUR AND FOUNDER OF APEIRON INVESTMENT GROUP Welcome to the biotech revolution In the last century, technology has transformed the human experience across...

Cystic fibrosis is a life-altering genetic disorder, but with the right knowledge and tools, it can be better understood and managed. The Complete Guide to Cystic Fibrosis provides a clear, comprehensive overview of the disease, making it an essential resource for patients, caregivers, and healthcare professionals.