検索キーワード： 障害者

An upcoming book to be published by Penguin Random House.

For years, renowned ethics scholar Deni Elliott lived with her own moral dilemma: though severely visually impaired since birth, she spent decades attempting to "pass" as sighted, often finding ingenious but problematic workarounds in the process. Everything changed in her 40s when an ophthalmologist diagnosed her as legally blind and she could no longer hide her impairment. To maintain her independence, she would need to use a guide dog and openly present as disabled–a label she had rejected for decades.

According to the Center for Diseases Control, 133 million Americans—one out of every two adults—have at least one chronic illness, and half of these are women. While many of these individuals finally have a diagnosis, and are no longer “sick”, they’re still not “well.” They’ve gone through the treatments, taken the medications, and yet still find themselves suffering. So, what do you do after you’ve discovered the root of your condition, and you’re still not healed?

After losing both legs from the pelvis down at the age of five, Spencer West tackled challenge after challenge, learning to navigate a world set against those with disabilities. In this deeply personal and transformative guide, he reveals how he stopped living by the expectations of others and instead embraced his true identity, passions, and purpose.

In this emotionally rich first memoir, the New York Times bestselling author of True Biz retraces her path out of the hearing world and into the deaf community—and seeks to understand the journeys her own children must take. Sara Nović’s early years were filled with music, Bible study, and a strong desire to fit in. But when she failed her school’s mandated hearing test, her worldview was thrown into chaos. Desperate not to be marked as different, she told no one, staying in the hearing world for as long as she could by brute force.

I’m Just Here to Remind You has descriptive copy which is not yet available from the Publisher.

Science writer Lorraine Boissoneault has been in pain for most of her adult life. Unable to control or make sense of her chronic illness diagnoses, she began describing the ebb and flow of her symptoms as “body weather.” At first an imaginative approach to coping with flare-ups, the phrase has become a waypoint in Lorraine’s explorations of the intimate relationship between our fragile bodies and the fragile world around us.

Gaelynn Lea was born with Osteogenesis Imperfecta. Her parents were loving, cash-strapped theater kids, and she grew up racing about in her first electric wheelchair, having adventures with her siblings, and handing out playbills at her parents' dinner theater shows. Transfixed by an orchestra performance in 5th grade, Gaelynn was determined to play the cello. When her shortened limbs made playing the instrument challenging, she employed a familiar tactic: adapting. What if she held a violin upright in her wheelchair, like the world's tiniest cello?

Jarred McGinnis was born into a Southern US clan where masculinity, capability, and physical violence were all closely intertwined. He was also the victim of violence outside the family: a car crash that has left him in a wheelchair since his early 20s. Two decades later, he is the father of two small girls, living first in East London and now in Marseille. In this ground-breaking memoir, Jarred writes about the family that formed him, and of breaking the chain of intergenerational harm.

Fetal alcohol spectrum disorder (FASD) affects up to 1 in 20 people, and is particularly prevalent among young people in the adoption and fostering system. As a hidden brain injury, FASD can manifest in ways that often lead to challenging behaviors, which can feel overwhelming for caregivers relying on traditional parenting strategies. In this supportive guide, Barb Clark shares her experiences raising a child with FASD - what she got wrong, what she got right, and what you can do to support your own family.

Lachi is an award-winning musician and leader who awakens the world to this truth: Disability has long shaped our culture and is an identity worth brazenly celebrating. In this book, Lachi welcomes listeners into the vibrant world of Disability Culture, centering identity, innovation, and unapologetic pride.

On an island off the coast of Massachusetts, six miles across the cobalt blue Waters of the Nantucket Sound, there is a place where hope flourishes. The island is Martha’s Vineyard. The place is Camp Jabberwocky, a sleepover summer camp for people with a variety of disabilities.

Born with Epidermolysis Bullosa (EB), a rare and excruciatingly painful condition that makes her skin as fragile as butterfly wings, Emma Fogarty was not expected to survive infancy. Today, at 41 years of age, she is the oldest living Irish person with the condition, continuing to defy the odds with extraordinary strength, resilience and remarkable achievements. However, every accomplishment Emma makes comes with its own set of obstacles.

Most people encounter disability at some point in their lives, either in their own bodies or through a friend or loved one. Faith leaders, sacred texts, and members of religious communities frequently offer religious teachings and metaphors as explanation for the presence of disability, but rarely do we hear the voices of people living with disabilities reflecting on their experiences of God, faith, or religious life.

Almost 10 years after learning that her son is autistic, Julie Green was also diagnosed, shedding light on a lifetime of feeling othered and misunderstood. Motherness traces Julie's journey from childhood to early motherhood, when she must advocate for her son while navigating her own struggles. With more girls and women being diagnosed in the last decade—many of them later in life—the face of autism is changing. Motherness provides a rich, intensely personal account of what it is like to be autistic through the lens of both a mother and child.

Im August 2015 macht Katherine May sich auf, um den 1014 Kilometer langen South West Coast Path entlang der Küsten von Somerset, Devon und Cornwall nach Dorset zu wandern. Sie will den Kopf freibekommen, endlich verstehen, warum ihr so vieles in ihrem Leben schwerer zu fallen scheint als anderen: Warum hat sie immer wieder das Gefühl, nicht recht zu verstehen, was andere meinen, wenn sie mit ihr sprechen? Warum verspürt sie so oft den Impuls, aus einer Gruppe Menschen in die Einsamkeit zu flüchten? Und warum empfindet sie es als besonders herausfordernd, Mutter zu sein?

When Molly Burke was four years old, she was diagnosed with retinitis pigmentosa, a rare degenerative eye disease that leads to eventual blindness, forcing her to see the world through new eyes—literally. Growing up disabled didn’t stop her from playing sports, becoming a rock-climbing instructor, or winning a beauty pageant, but other people’s narrow perceptions of her held her back. Years of relentless bullying, toxic work environments, a rodent-infested apartment, and life’s lowest moments were juxtaposed with red carpets, first-class flights, and personal and professional achievements.

Il tempo ha un suono diverso quando sai che sta per finire. Una mamma lo sa, lo sente. Gli ultimi mesi sono volati, scanditi da visite mediche, nuove sfide e momenti preziosi: Cesare ascolta in loop le sue canzoni preferite, esprime desideri. Vuole andare al parco, fare un giro in moto, poi in barca a vela. E mentre Valentina cerca un modo per restare aggrappata all’amore, ai ricordi di ogni risata, il suo Cece si sta spegnendo.

Wanting to have a baby my whole life, I always assumed I would get the opportunity. But when I received the diagnosis of an incurable disease, that dream faded into a distant memory. When I fell in love, got married, and then pregnant a few years later, everyone questioned if I would get my dream or just be lucky to survive.

This compelling memoir traces an extraordinary journey through mental illness and neurodiversity—one of hard-won insight, resilience, and wisdom. Living with bipolar disorder, depression, addiction, and dyslexia, the author’s path weaves through punk rock rebellion, police work, and entrepreneurship—revealing the complex reality of managing mental health and neurodiversity. Another deep depressive episode became the catalyst for a medical diagnosis, professional help, and true healing.